Joints

[Derek]

This weekend has seen the return of the joint pains in my feet, ankles, knees, elbows, fingers etc etc etc. It is lucky I am seeing the Ent doc and my Rheumatologist later this month. Do not want to sound negative but I have felt things were not right for a while. This has been
an early warning in the past of a flare so I am a bit apprehensive at the moment. Was this a sign of a flare with any one else.

When visiting your Rheumatologist what tests including blood tests do they carry out. As we are all so far apart and we do not compare with anyone it is hard to know if your doctors are looking after you properly or not.

Thanks in advance for any info

I hope you all are doing well.

Derek
:mad::mad::mad:

[crackers]

derek my rheumy does the usual blood and urine tests but if she feels it necessary doesn't hesitate to refer me for any others she thinks will help.in the last few weeks i've seen cardiology,respiritary and ent consultants.ent found what could be a lesion inside my left nostril and took a biopsy so waiting on the results of that.
john.

[jola57]

Hi Derek, I'm sorry to say that my relap started out the same way, with joint and muscle pains all over. I hope that you cought it early enough that with treatment it will not get worse. My rheumy and my GP order along with regular blood workup cAnca, CRP, ESR, urinalysis. Sometimes they will do iron and B12, each time I was deficient and needed to take supplements.

[Derek]

Thanks for the feed back I will keep my fingers crossed (that will help) that when I see the doctors they can get me back under control as I am still taking Methotexate
and other meds.

Derek

[Sangye]

Derek, those were my original symptoms before my Wegs got diagnosed. So it could be a flare.

BUT a few months ago, I was having some increasing symptoms like that and thought for sure it was a bad sign. I also had a bad feeling for a couple months that it wasn't going well. My rheumy at JHU totally surprised me by saying it wasn't a flare, that it was due more to the effects of Wegs-- the damage, drug side effects, weakness, etc.... All the collateral damage. He said my Wegs was actually fairly stable.

Since then I've noticed that the symptoms rise and fall, but never turn into much. Like somedays I'll be sitting here and get bad joint pain somewhere, but it kind of burns itself out in a few minutes. I've been under the impression that Wegs is only under control if you don't have symptoms, but it's not true. So don't lose hope yet or feel doomed.

I don't remember if you see a Wegs specialist, but it makes such a difference. Any of my former docs (including Mayo in Arizona) would have increased my meds just based on my symptoms. They just didn't see the volume of Weggies to know how it can look when it isn't really flared up.