Deanne Hull
04-06-2012, 10:24 AM
HI Everyone, for those who celebrate easter, have a lovely time, ( watch out for those easter eggs ).As I haven't been on for a while so I hope everyone is okay. I am well, all my markers are going down and i am managing to have a "normal" life!
I just thought i would tell you that the other day while i was at Fremantle Hospital ( Perth, Western Australia ), waiting for my medication from the Hospital Pharmacy, I heard a lady behind me extremely upset and crying on her mobile phone telling whoever was on the other end about the diagnosis she had
just got and the medication she had to pick up and what it was going to do to her.
As i was listening, I couldn't help it, as everyone else was listening too, I thought
what she was saying sounded quite familiar. When she finished off the phone,
i was compelled to go over and see her. I asked if she was okay and sat down and she told me
and she said she had this rare thing, I asked her what it was and it was
Wegener's. I couldn't believe it and said that I had it as well and I was there
waiting to pick up my meds.
We were both very shocked as I have not acutally met anyone with wegs!
So as she was newly diagnosed she asked me so many questions etc and i answered
as many as I could without swamping her and we have swapped phone no's and I said if she needed to talk she is more than welcome to ring me etc. ( i honestly wish i had met someone who had been though it themselves, it would have made things much easier to understand and cope with ).
At least too, she could see that what someone looks like with Wegs, ( not that bad really ).
She has got quite a journey and if I can help, I will.!!!!
In the end we had a big hug, as you do, and I hope she went off feeling better
than she did, because I know I did!!
Love Deanne xxx
I just thought i would tell you that the other day while i was at Fremantle Hospital ( Perth, Western Australia ), waiting for my medication from the Hospital Pharmacy, I heard a lady behind me extremely upset and crying on her mobile phone telling whoever was on the other end about the diagnosis she had
just got and the medication she had to pick up and what it was going to do to her.
As i was listening, I couldn't help it, as everyone else was listening too, I thought
what she was saying sounded quite familiar. When she finished off the phone,
i was compelled to go over and see her. I asked if she was okay and sat down and she told me
and she said she had this rare thing, I asked her what it was and it was
Wegener's. I couldn't believe it and said that I had it as well and I was there
waiting to pick up my meds.
We were both very shocked as I have not acutally met anyone with wegs!
So as she was newly diagnosed she asked me so many questions etc and i answered
as many as I could without swamping her and we have swapped phone no's and I said if she needed to talk she is more than welcome to ring me etc. ( i honestly wish i had met someone who had been though it themselves, it would have made things much easier to understand and cope with ).
At least too, she could see that what someone looks like with Wegs, ( not that bad really ).
She has got quite a journey and if I can help, I will.!!!!
In the end we had a big hug, as you do, and I hope she went off feeling better
than she did, because I know I did!!
Love Deanne xxx