View Full Version : Headed to Mayo Clinic tomorrow

03-13-2012, 07:51 AM
Hello all,
I have not posted in a while but have been trying to keep up with reading some posts:)
I have my follow up appointment this week at Mayo with the usual: urine, blood work, chest x-ray, breathing treatments, ENT, and then I see my pulmonologist, Dr. Keogh. I will also be seeing a high risk OB doc so I can ask questions about having another baby.
I hope everyone is doing well.

03-13-2012, 08:02 AM
Brooke, what breathing treatments will you be having at Mayo?

03-13-2012, 08:16 AM
Sorry, I meant breathing tests.

03-13-2012, 08:17 AM
I thought that is what you meant. Good luck. How far a drive is that for you?

03-14-2012, 01:20 PM
I hope it goes/went well for you, Brooke!!

03-14-2012, 01:41 PM
I hope your visit went well and you got good reports.

03-15-2012, 01:37 PM
What did you learn at Mayo?

Anyone going there next week? We will be there for three or four days at beginning of the week.

03-17-2012, 02:46 AM
I'm back home! I did urine test, blood work, chest x ray, ent visit, breathing tests, and saw pulmonologist on Wednesday. Everything looked good and my pulmonologist, Dr. Keogh, said no more Rituxan treaments for now! Just check my blood and urine every 3 months, mostly to watch for any kidney involvement since that can sneak up on you. My breathing tests were same as last time (Aug 2011) - my subglottic stenosis looked good from ENT - my nose probably looked the same - still scarring and mucous.. but no inflamation or open sores.
On Thursday, I met with 2 high risk OB doctors. One of them is currently treating 4 pregnant patients with Wegeners! I got the ok to try and have another child.
I will have my high risk ob doc treat me here once I get pregnant. If I get a flare, I will go to Mayo to be seen.
I am a happy camper for now:)

03-17-2012, 04:16 AM
I am a happy camper for now:)

congratulation on the good news! :thumbup: Sounds like a good visit and worth the trip for you.

03-17-2012, 05:01 AM
WOW! This is just awesome Brooke!

03-17-2012, 07:09 AM
Awww, I'm so happy for you Brooke!! :thumbsup::hug3:

03-17-2012, 09:42 AM
This is excellent, Brooke! I hope this carries you for a long time, even the rest of your life. Still, we'd love to hear back to you from time to time--how you are, how the family is and such!


03-17-2012, 08:21 PM
That's wonderful news Brooke.
Excellent results received from Mayo and much wanted results from the OB.
You have done very well.......keep up the great work

03-18-2012, 01:41 PM
What wonderful news, Brooke! I'm sure you are hopeful for success with another test in the near future!! Nothing beats motherhood! Good luck and thanks for sharing your great news!


03-19-2012, 05:48 AM
congratulation on the good news! :thumbup: Sounds like a good visit and worth the trip for you.

Ditto Brooke, Congratulations, I am happy for you

03-20-2012, 08:06 AM
Thanks everyone!!!! I will keep you all posted!

03-20-2012, 09:18 AM

It is so great to hear your good news, congrats!