Chadwyck
11-02-2011, 08:48 AM
Hi Forum. This is only my second day using this forum but I wanted to wish all Wegener's patients the best of treatment, feeling well, and get back to living life the way things were prior to knowing your Wegener's disease status.
I just got the call I've been waiting for from the university hospital here in London, Ontario. My new re-scheduled surgery date is in the next day and a half... this coming Thursday at 8:00AM! I have to be there by 6:00AM so just for today and tomorrow I'll be online using the forum.
As I posted in my first thread yesterday, because of the anemia I was born with, "Alpha Thalassemia Minor" it posed as a threat with faster bone deterioration to my prednisone intake. It did, unfortunately, damaged my left hip bone (avascular necrosis) requiring me to have a partial hip replacement. I have no idea how long it will take to heal. The office did advise me today that because it's only a resurfacing surgery and I'm only 39, there's a very good chance I'll heal a lot quicker than their average patient.
What is very interesting is out of all Wegener's patients they've treated since day 1, they've never had to give a Wegener's patient a hip replacement as a side effect! Even though they tell you about the bone deterioration side effect up front, they already know that prednisone takes at least a couple of years from constant use to cause this. So, now I'm thinking... how many Wegener's patients other than myself have thalassemia? If Wegener's is 1 in 30,000 to 1 in 50,000... what range am I in for Wegener's hip replacements out of all treated patients?? What is so special about me that makes the doctor's eyes pop open wide like I have 3 heads on my shoulders?? :ohmy: They seem to be more stunned with this result more than me.:w00t:
If I'm ok enough to be online on Friday, I will definitely be back on this site. I really like it here, so much support in only a 24 hour period of time. Thank you all!
Chadwyck
I just got the call I've been waiting for from the university hospital here in London, Ontario. My new re-scheduled surgery date is in the next day and a half... this coming Thursday at 8:00AM! I have to be there by 6:00AM so just for today and tomorrow I'll be online using the forum.
As I posted in my first thread yesterday, because of the anemia I was born with, "Alpha Thalassemia Minor" it posed as a threat with faster bone deterioration to my prednisone intake. It did, unfortunately, damaged my left hip bone (avascular necrosis) requiring me to have a partial hip replacement. I have no idea how long it will take to heal. The office did advise me today that because it's only a resurfacing surgery and I'm only 39, there's a very good chance I'll heal a lot quicker than their average patient.
What is very interesting is out of all Wegener's patients they've treated since day 1, they've never had to give a Wegener's patient a hip replacement as a side effect! Even though they tell you about the bone deterioration side effect up front, they already know that prednisone takes at least a couple of years from constant use to cause this. So, now I'm thinking... how many Wegener's patients other than myself have thalassemia? If Wegener's is 1 in 30,000 to 1 in 50,000... what range am I in for Wegener's hip replacements out of all treated patients?? What is so special about me that makes the doctor's eyes pop open wide like I have 3 heads on my shoulders?? :ohmy: They seem to be more stunned with this result more than me.:w00t:
If I'm ok enough to be online on Friday, I will definitely be back on this site. I really like it here, so much support in only a 24 hour period of time. Thank you all!
Chadwyck