Param
10-12-2011, 07:40 PM
Hi
My dad who is 67 yrs old has been diagnosed with wegeners in early July this year after 1 month of wrong diagnosis and literally on the verge of heart failure.
Well he had renal failure and contrary to what his nephroligist thought (or rather was sure) his kidneys have completely recovered so no dialysis since August!!!!!!!!!
His tests are improving but he is so weak................i mean he has lost 10 kgs of weight and sometimes he falls down and is not even able to sit up let alone stand :-(
He has been given 2 infusions of RTX (cyclophosmides brought his condition stable but his body could not tolerate it more than 15 days).
He started on 100mg of Pred which is now tapered to 20 mg along with MXT.
Just wanted to know if this weakness is pretty what everybody exprnces and will he be normal again????Also he is in DENIAL mode doesnot even want to talk about his disease.You know he is wishing it away :-)
He is Dubai right now and since i cannot be with him for long (I have a job and need to pick up the bill ....he has no insurance :-( ).. I wanted to have a reality check as we all are hopeful that another month he should be back to completely normal life
Thanks a lot For this FORUM.....................and Andrew for helping me register............
PARAM
My dad who is 67 yrs old has been diagnosed with wegeners in early July this year after 1 month of wrong diagnosis and literally on the verge of heart failure.
Well he had renal failure and contrary to what his nephroligist thought (or rather was sure) his kidneys have completely recovered so no dialysis since August!!!!!!!!!
His tests are improving but he is so weak................i mean he has lost 10 kgs of weight and sometimes he falls down and is not even able to sit up let alone stand :-(
He has been given 2 infusions of RTX (cyclophosmides brought his condition stable but his body could not tolerate it more than 15 days).
He started on 100mg of Pred which is now tapered to 20 mg along with MXT.
Just wanted to know if this weakness is pretty what everybody exprnces and will he be normal again????Also he is in DENIAL mode doesnot even want to talk about his disease.You know he is wishing it away :-)
He is Dubai right now and since i cannot be with him for long (I have a job and need to pick up the bill ....he has no insurance :-( ).. I wanted to have a reality check as we all are hopeful that another month he should be back to completely normal life
Thanks a lot For this FORUM.....................and Andrew for helping me register............
PARAM