bartlesher
03-04-2009, 03:41 AM
Hi. My name is Sheryl and I was diagnosed with Wegener's in 1984 at the age of 19. I had been sick with horrible ear and sinus "infections" for 2 years. I had a Dr ask me how long I had been snorting cocaine because the inside of my nose was so destroyed. After multiple trips to the Dr and barely able to stand up on my own, my mother convinced the Dr to admit me to the hospital. When they admitted me, they did a routine chest x-ray where they found multiple spots on my lungs. Apparently they then decided that this wasn't all in my head (no pun intended!:)). They performed both a sinus and lung biopsy and the diagnosis was made.
I have been treated over the years with Cytoxan, Methotrexate, Imuran and Prednisone. I am in remission for a couple years and then flare again. Even in remission, I still have lots of pain in my joints and my head. It is very frustrating!
The miracle of the story is, I was able to deliver 2 perfectly healthy children after taking Cytoxan multiple times! They are now 18 and 21 and are the joy of my life. And my other babies....4 dogs! A yellow lab, golden retriever mix, pomerian-bischon, and yorkie! They are all very spoiled!!
Unfortunately, my first husband didn't deal with the WG very well. We divorced after 16 years of marriage. I am now married to a wonderful man named Andy and we will have our 5 year anniversary in May. Although he doesn't understand the disease very well, he is very supportive.
My mom and dad have been my rock throughout the years. Unfortunately, my mom was just diagnosed with cancer and began chemo treatments about a month ago. Now it is my turn to be there for her!
I think that's about all. Have a great day!
Sheryl
I have been treated over the years with Cytoxan, Methotrexate, Imuran and Prednisone. I am in remission for a couple years and then flare again. Even in remission, I still have lots of pain in my joints and my head. It is very frustrating!
The miracle of the story is, I was able to deliver 2 perfectly healthy children after taking Cytoxan multiple times! They are now 18 and 21 and are the joy of my life. And my other babies....4 dogs! A yellow lab, golden retriever mix, pomerian-bischon, and yorkie! They are all very spoiled!!
Unfortunately, my first husband didn't deal with the WG very well. We divorced after 16 years of marriage. I am now married to a wonderful man named Andy and we will have our 5 year anniversary in May. Although he doesn't understand the disease very well, he is very supportive.
My mom and dad have been my rock throughout the years. Unfortunately, my mom was just diagnosed with cancer and began chemo treatments about a month ago. Now it is my turn to be there for her!
I think that's about all. Have a great day!
Sheryl