Deb Roy
05-20-2011, 06:02 AM
Well, as you all know my dad has been through the ringer with WG. He is on his 9th week in the hospital and I am happy to inform everyone that he is doing much better. I cannot believe all the fall backs he has had with this disease. Not once has he had any issues with his kidney's however it seems that there have been issues with every other organ he has in one way or another.
He is eating now and only has the feeding tube on at night. He had lesions all over his face, nose and ears (inside and out) which have now gone away. He is able to swallow without it hurting, He has some scarring but the lesions are gone. His hands and feet look much better, his bottom still has many but are beginning to heal. His lungs are looking much better and the oxygen mask is gone.
He is still concerned about his eyesight, he cannot see in one eye and his other is very blurry. They are looking to get him to the eye doctor so that they can check to see if it is WG or something else.
He cannot walk but he is determined to walk again and I believe he will.
They put in a pace maker yesterday due to his heart going extremely low at night to the point it has stopped for a few seconds. He is still in A Fib during the day and now that the pace maker is in they can continue the medicine to control his rapid heart rate.
Before he went into the hospital he was a healthy 190 lbs, (ok a little heavy per his doc ) :biggrin1: He went into the hospital weighing 176 and today he weighs 145. I could not believe how much weight he has lost during his illness, but now that he is eating more hopefully we will see the weight creep back on to him.
I want to thank everyone with their kind words, advice and encouragement for my dad. It has truly helped me to understand this disease a bit more.
From his many trips back and forth to the ICU to now where they are talking about rehab has been a long road, but he is a fighter and is determined to get back home!
Thank you again everyone and I hope and pray that they find a way to cure this! You are all in my prayers!
He is eating now and only has the feeding tube on at night. He had lesions all over his face, nose and ears (inside and out) which have now gone away. He is able to swallow without it hurting, He has some scarring but the lesions are gone. His hands and feet look much better, his bottom still has many but are beginning to heal. His lungs are looking much better and the oxygen mask is gone.
He is still concerned about his eyesight, he cannot see in one eye and his other is very blurry. They are looking to get him to the eye doctor so that they can check to see if it is WG or something else.
He cannot walk but he is determined to walk again and I believe he will.
They put in a pace maker yesterday due to his heart going extremely low at night to the point it has stopped for a few seconds. He is still in A Fib during the day and now that the pace maker is in they can continue the medicine to control his rapid heart rate.
Before he went into the hospital he was a healthy 190 lbs, (ok a little heavy per his doc ) :biggrin1: He went into the hospital weighing 176 and today he weighs 145. I could not believe how much weight he has lost during his illness, but now that he is eating more hopefully we will see the weight creep back on to him.
I want to thank everyone with their kind words, advice and encouragement for my dad. It has truly helped me to understand this disease a bit more.
From his many trips back and forth to the ICU to now where they are talking about rehab has been a long road, but he is a fighter and is determined to get back home!
Thank you again everyone and I hope and pray that they find a way to cure this! You are all in my prayers!