granuloms in the uterus

[mama2005]

I went to the doc today and they did a ultra sound and found a mass the doc said it may be a granuloma. Has anyone else heard of the uterus being affected?

[NicShaf]

No, I haven't heard of that, but I'm still new to this whole Wegs game. Are they running any other tests to figure out what it is, if you don't mind me asking?

[mama2005]

This appointment was just with family doc and he is waiting on the radiologist to say what he thinks it may be. I go to cc on Monday and I am sure he will run a bunch more tests and get this taken care of. I have granulomas in my lungs and was diagnosed with WG in January. The pains just started a few days ago and progressed quickly I had originally planned on waiting to see my doc at cc on Monday and talk to him but the pain got pretty bad so I went to my family doc.

[elephant]

Let us know. Sounds interesting!

[Sangye]

Wegs can affect any part of the body. I haven't heard of anyone with uterus involvement but it can still happen. They will likely have to do a biopsy to prove that it's Wegs.

[mama2005]

I will keep you all updated and thank you for the insight. Should hear back from the doc tomorrow afternoon.

[me2]

I read of a case where the WG presented in a mans prostate - crazy. Good luck to the doc who had to figure THAT out.
Anything is possible. It took months to diagnose my case in my sinus so I don't believe there is a best or worst place in that regard. Wish you well.

[flana]

Definitely do the biopsy to confirm WG...

[vdub]

Wegener's Granulomatosis of the Uterine Cervix: a Case Repor... : International Journal of Gynecologic Pathology (http://journals.lww.com/intjgynpathology/Abstract/2007/01000/Wegener_s_Granulomatosis_of_the_Uterine_Cervix__a. 16.aspx)

Not much to read there, but at least you know it's not unheard of.....

[mama2005]

Friday had the biopsy done and I go to CC on monday. I am hoping that he has the results. blood work showed that my B cells are high and I had rtx in January.

[mama2005]

B cells are high and the mass looks to be a granuloma soo not seeing remission soon. I was wanting better news but I will take what I get and run with it i guess.

[Sangye]

Wow, your B cells came back fast. What is the treatment plan at this point? More rtx?

[mama2005]

yes we are going to try rtx agian hope it works. He says the granuloma is large and is not sure if has been there and I was't bothered by it before or if it is new. first time I had it two times this time wants to do it four times. pred went back up to 60mg.

[Sangye]

You may be like me, in that the 4 infusions work well but the 2 are not enough. I hope it takes care of things for you.