new to site

[Red]

Hello everybody newly diagnosed with wg nov.2010 dealing with a lot have alot of ? were do i post thank you

[pberggren1]

You can just keep going on this thread Red. Welcome to the Forum and ask all the questions you like. We are one big supportive family here.

[Red]

is there a standard treatment pred and sytox how much sytox is normal ? i have had 4 treatments eye flair rumy says mabe more treatments than 6 scheduled eye flared right after pred reduced from 30mg to 20mg eye doc says go up to 30 rumy says ok and protopic for eye any way i am just rambling the ? is cytox

[Red]

have a lot of foot pains and numbness pain is getting better but numbness and mobility are bad will that get better my rumy say he does not no so did my neurologist any thoughts ?

[drz]

have a lot of foot pains and numbness pain is getting better but numbness and mobility are bad will that get better my rumy say he does not no so did my neurologist any thoughts ?

Both are right. No one can predict what will happen with neuropathy. Pains generally get better with treatment but it can take awhile. Welcome to the forum.

[Sangye]

Hi Red, welcome to the group. I hope you will take advantage of the fact that Minnesota has one of the few vasculitis centers in the world--Mayo in Rochester. They will give you the best treatment.

[Red]

i just called Mayo thy need reveral did that ,called insurance mayo is in my network ,thy will call me dr is booked until late summer but maybe sooner only 90 miles away thank you for that info.

[Sangye]

That's great to hear! Keep checking in with them-- lots of people cancel and you can likely get in sooner.

[Kami]

Hi, I doctor at the University of Minnesota and I feel I get the best care. They are in contact with the Mayo also so they are up to date on all of the information. I suggest you contact the Division of Rheumatic and Autoimmune Diseases. Any questions let me know.

[Mitch]

I'm so glad your numbness is getting better. The prob with Mitch is that one foot is totally dead half-way up his leg. The docs are most concerned about this. They say they can control everything else, but this they're bothered with. He's in 2 case studies and under good care.....

[marys4373]

Hi Red, Just wondering who you are seeing at Mayo. I am very fortunate to live just outside of Rochester, I hope to have a diagnosis in a couple of days as I will be working with the specialist. I am going to see Dr. Warrington.