Theresa
04-14-2011, 02:39 AM
Justin's pulminologist has done tests in December and again last week and the lab results show that he has hemosiderin-laden macrophages in his lungs. He says this is an indication that there is bleeding in his lungs. He does not know how much/how bad, but Justin's airway looks very clean.
To do the test, they did a bronchoscopy and put saline in his lungs and then pulled it back out. Then tested the saline.
Justin is still having trouble getting enough air when he tries to exercise and his subglottic stenosis is doing well - not enough restriction to cause as much trouble as he is having.
I'm having trouble finding any information on the internet that I can understand or that relates to Wegener's. Treating the Wegener's and getting him in remission is the solution, I'm sure. I was just wondering if anyone else has had this or if anyone has any other information.
To do the test, they did a bronchoscopy and put saline in his lungs and then pulled it back out. Then tested the saline.
Justin is still having trouble getting enough air when he tries to exercise and his subglottic stenosis is doing well - not enough restriction to cause as much trouble as he is having.
I'm having trouble finding any information on the internet that I can understand or that relates to Wegener's. Treating the Wegener's and getting him in remission is the solution, I'm sure. I was just wondering if anyone else has had this or if anyone has any other information.