Remission - woo hoo!

[Luce]

I received a copy of my renal consultant's letter to my GP today and it states "This 27 year old lady has stage 1 chronic kidney disease due to WG. She is in full remission and doing very well." Yippee, I have it in writing that I've kicked WG's backside for now!!!

I was stage 3 chronic kidney disease when diagnosed 2 and a half years ago and it's taken plasmapharesis, 6 months of cyclo, some Cellcept and 4 rounds of Rituximab but I'm now only on 100mg Immuran, blood pressure tablets and 4mg pred which we're dropping down 1mg a month until I'm hopefully off of the rotten stuff.

Just thought I'd share the good news and maybe give you all a little hope that there is light at the end of what seems to be a very long tunnel.

[sadpixie]

Congratulations! That is great news! :)

[Brooke]

Way to go!!! What a great feeling!

[DEE]

Great News:thumbsup:

[Jack]

Great news, I'm so pleased for you! :thumbsup:

And a little jealous too. :rolleyes1:

[NicShaf]

Yay! Congrats! It's always wonderful to hear good news like this.

[ArlaMo]

Woohoo!!:thumbsup:

[Daggar]

Nice to hear that someone can come back from fairly serious kidney involvement.... as you say -- it gives hope!! Congrats...

Did your kidneys respond fairly quickly or was that something that improved gradually over the 2 years?

[Sangye]

Wow, Luce I am SO happy for you!!! It's been a long time and you've been through so much. :w00t::hug3:

[Lightwarrior]

This news makes my heart sing Luce :thumbup:

[elephant]

Congrats, and glad you are doing great!

[pberggren1]

I hope this is a trend for you Lucy and that things will only get better. Congratulations!

[Chris G]

Wow, that's awesome news. I'm so happy for you!.

[marta]

Woo Hooo! Woo Hooo! Woo Hooo!!!
I'm over the top happy for you. I can only imagine the smile on your face as you walked out of the doctor's office. I probably would have shed a tear of joy as well.
YES Sistah!

[Geoff]

Brilliant News Luce and thanks for sharing it with us!!!

Now enjoy this wonderful weather along that fantastic Dorset coastline. I'm so envious!! :thumbup:

[Luce]

The sun is shining, life is good! Thank you all so much for your messages, no one else quite understands like you guys.

My kidneys started to heal pretty quickly after plasmapharesis, but it took a while for my creatinine to come down to normal levels.

Fingers crossed I can kick my nasty little pred habit and shift some of this excess weight now.

Good luck to all of you waiting to hear that magic word!

[JanW]

Great news, Luce!

[Psyborg]

Congratulations :) Glad to hear you are doing so well.