Update from Mayo

[jtausan]

Hello all,
I had a great day at Mayo, by 9 am I had blood drawn, urine sample done and a chest xray. I then went to pulmonology floor to do the dreaded breathing tests. Ugh! After that, I met with the throat specialist and he put the scope down my nose and into my throat. My Subglottic Stenosis is way worse than before. I am breathing out of a small straw. My nose and throat were also infected, their was gross green and yellow mucous. They took pics of my throat to show the wegs dr. I explained to the throat dr that I wanted to have surgery done the sooner the better, he agreed but wants me to see Dr Specks first because Wegs is not under control. I see Dr Specks tomorrow, I will find out from him my lab results etc. I am so excited to see him and see how to proceed. I don't think I have ever had the wegs under control so this is a big change for me. I have ALOT of questions to ask him.
Just FYI, Mayo is awesome! Very efficient, very helpful and kind. I will update tomorrow after seeing Dr. Specks.
Take care everyone!:rolleyes1:
Jodi

[Palmyra]

Good luck to you Jodi,
I hope you will find Dr Specks to be as kind and competent as we did. It is very reassuring to find a great brain and even temperment in a physician. Please keep us posted! (And yes, isn't the efficiency of the place wonderful! Take a little time to admire the art as well)

[Sangye]

So glad you're getting great care at Mayo, Jodi. :thumbsup:

[Brooke]

I agree, very happy you are at Mayo, they take good care of you there!

[LisaMarie]

Good Luck today...Hope all goes well and Dr Specks answers all your questions...hopefully your wrote them down....Did you see ENT? and if so whom?...I have to go back May 19th ...wish me luck..been on 20 mg of pred and holding ...go to 15 mh on the 27th.....:w00t:.Keep us posted

[elephant]

Jodi, so glad you getting good care there. Doesn't it feel like Christmas getting to see the Wizard who can help you back to feeling good?

[jtausan]

Thanks all, yes it is great to see one of the "greats" when it comes to Wegeners. Dr Specks ok'd for me to have the throat surgery but I need to get the infections under control first. He put me on Bactrim for nose and throat infection and Cipro for bladder infection. He kept me on the Methatrexate for now but wants to change that after the throat surgery. I did ask Him about the kidneys, that since I have not had kidney involvement yet, would I? He said most likely not. That was a Hugh relief for me.
I come back April 6th for the surgery and I honestly can't wait. This will be life changing for me!!
Jodi

[Sangye]

So glad for you Jodi. :hug3:

[Chris G]

Sounds like you've had a really rough road lately, Jodi. I'm so glad you're in good hands now.

[LisaMarie]

Congrats...glad you had a great experience:hug3:Hope you keep us informed as you keep getting better:biggrin1:

[Brooke]

Awesome news! So glad you went there and got some answers!!