gwenllian111
11-13-2010, 05:35 AM
Hi guys,
So sorry haven't posted for ages, have been frantically busy lately.
My daughter, Seren, is now 5 and a half years old. I had her when I was having a terrible flare up, and as a result I had awful pre eclampsia, and when I was pregnant, she stopped growing, and the whole thing was an absolute nightmare. So, she was born at 33 weeks weighing a tiny 3lbs. She was very small for dates, and has had a problem since birth gaining weight.
She has been systemically unwell for years now. Loss of appetite, constant high temperature, extreme fatigue, and raised ESR and CRP. ESR: 122, CRP: 98 last week - NO INFECTION). She FINALLY had some immunology tests today to check signs of an auto immune disease. In a way i'm relieved, but also angry that it's taken the doctors so long to do something instead of fobbing us off all the time.
The sheer thought of my little girl suffering like WG patients do, makes my heart sink. Is there any way that WG is hereditary? Do her symptoms sound auto immune related to you?
I just want her better, with a quality of life she deserves. x
So sorry haven't posted for ages, have been frantically busy lately.
My daughter, Seren, is now 5 and a half years old. I had her when I was having a terrible flare up, and as a result I had awful pre eclampsia, and when I was pregnant, she stopped growing, and the whole thing was an absolute nightmare. So, she was born at 33 weeks weighing a tiny 3lbs. She was very small for dates, and has had a problem since birth gaining weight.
She has been systemically unwell for years now. Loss of appetite, constant high temperature, extreme fatigue, and raised ESR and CRP. ESR: 122, CRP: 98 last week - NO INFECTION). She FINALLY had some immunology tests today to check signs of an auto immune disease. In a way i'm relieved, but also angry that it's taken the doctors so long to do something instead of fobbing us off all the time.
The sheer thought of my little girl suffering like WG patients do, makes my heart sink. Is there any way that WG is hereditary? Do her symptoms sound auto immune related to you?
I just want her better, with a quality of life she deserves. x