Jaha
11-09-2010, 12:24 AM
Hi all,
I ran acrossed this forum and I'm very glad to find a place where I can get hands on information about the issues of Wegner's. I was finally dx with this on 9/2/2010 after referring myself to a pulmonogist at Cleveland Clinic in June. The delay wasn't on CC's side the delay started in Jan from local doctors. I first had feet swelling and pain and rashes on legs 2years ago and was also hospitalized w/ pneumonia. I was given steriods and antibotics and recouped, I thought. then in Jan I started having alot of coughing and stomach problems so, my primary care in Feb ordered catscan of stomach and she called me at work to tell me that I need another
catscan of my lungs because there were nodules showing in my lower lungs. After getting another scan she sent me to an onocologist who want to do a needle biopsy of the caviated nodules,the largest being 4cm, they did that in Mar and the results were not found. I then ended up in the hospital with a 103.5 temp and was given steriods and antibotics. The onocologist wanted to wait a see me again in 3mos. I went back to primary care with alot of pain coming from my lungs, she then sent me to a local pulmonary guy who then referred me to a surgeron who did a lung resection. After surgery I got really sick and had to go back to the hospital with high fever,was in the hospital all of April,still no dx. To make a long story abit shorter, I finally gave up on the locals, after the pulmonogist down here told me that there was no definitive dx, that I had a really bad infection and I needed to quit being so paranoid and go live my life, I did. When I got to Cleveland Clinic that pulmongist sent for the tissue samples and their team of pathologist and rheum. anaylized, my blood work shows nothing, but with the catscans and tissue samples they confirmed Wegner's
and start me on treatments. Just wanted to say thank you to all, for the info I have gotten reading these posts.
Jaha
I ran acrossed this forum and I'm very glad to find a place where I can get hands on information about the issues of Wegner's. I was finally dx with this on 9/2/2010 after referring myself to a pulmonogist at Cleveland Clinic in June. The delay wasn't on CC's side the delay started in Jan from local doctors. I first had feet swelling and pain and rashes on legs 2years ago and was also hospitalized w/ pneumonia. I was given steriods and antibotics and recouped, I thought. then in Jan I started having alot of coughing and stomach problems so, my primary care in Feb ordered catscan of stomach and she called me at work to tell me that I need another
catscan of my lungs because there were nodules showing in my lower lungs. After getting another scan she sent me to an onocologist who want to do a needle biopsy of the caviated nodules,the largest being 4cm, they did that in Mar and the results were not found. I then ended up in the hospital with a 103.5 temp and was given steriods and antibotics. The onocologist wanted to wait a see me again in 3mos. I went back to primary care with alot of pain coming from my lungs, she then sent me to a local pulmonary guy who then referred me to a surgeron who did a lung resection. After surgery I got really sick and had to go back to the hospital with high fever,was in the hospital all of April,still no dx. To make a long story abit shorter, I finally gave up on the locals, after the pulmonogist down here told me that there was no definitive dx, that I had a really bad infection and I needed to quit being so paranoid and go live my life, I did. When I got to Cleveland Clinic that pulmongist sent for the tissue samples and their team of pathologist and rheum. anaylized, my blood work shows nothing, but with the catscans and tissue samples they confirmed Wegner's
and start me on treatments. Just wanted to say thank you to all, for the info I have gotten reading these posts.
Jaha