T-shirts and other Weggie goodies are available for purchase on-line [Archive] - Wegener's Granulomatosis Disease GPA Support Forum

marta

10-14-2010, 04:30 AM

DEE

10-14-2010, 05:25 AM

HI MARTA
HAVE BEEN LOOKING AT T SHIRT ETC ON ZAZZLE UK .COM IF PRODUCT DOES NOT SHOW YOU CAN AND PRODUCT NUMBER FROM YOUR ORIGINAL POST AND THAT WORKS
JUST THOUGHT I WOULD SAY THINKING OF GETTING A SWEAT SHIRT:unsure: DEEx

marta

10-14-2010, 06:18 AM

Hey Dee,

I thought you could apply the design to any clothing, but I just checked and no sweat shirts or hoodies. I'll make some. I've also just made some shoes, and they look pretty rad, I just have to wait for them to get approved. I've only put this up last night and already there are a few mugs sold, so yeee-haaa.

I'll make some hoodies/sweat shirts this afternoon. Is there any particular design you are interested in? I'll make whatever you like.

gwenllian111

10-14-2010, 06:45 AM

Bought some stuff!!! Yay!!

DEE

10-14-2010, 06:46 AM

gwenllian111

10-14-2010, 06:46 AM

DEE

10-14-2010, 07:16 AM

if you choose a design then look at the description of the product
underthat it says look at design on other products and you can veiw in different colours
red my in colour at the moment too :thumbup:

marta

10-14-2010, 08:05 AM

i look on uk sitr for t shirt and there was a box that said other products this design can be seen on !!!
i like the t shirt with the one in 20,000 parade one !!!
there all great :thumbsup::thumbsup::thumbsup:

That's the one shirt that I can't do on that site. I actually put 20,000 faces on there and there's the one little weggie proudly marching in the open path. On the zazzle site, they only let you fill a certain space on the shirt, so I can't fill it all with my 20,000 spectators. I'll have to figure out a differnet way to do that one. Maybe I'll get that one printed here and then can send it out.

Gwen, thanks for buying some stuff. Have broken the $100US mark in one day (sales that is) - woot woot.

I was thinking of red too, I'll make a couple of things in red - I think pink on red might look kinda cool - I'll play. Wait till you see the shoes, I really like them.

Sangye

10-14-2010, 02:04 PM

I think you guys should all post pics of yourselves wearing the clothes! I think it's great that you're doing this. :smile1:

Doug

10-14-2010, 02:33 PM

There, I've taken Doug's and GigiWendy's advice and have made some t-s and other goodies for Weggies, Weggie lovers and friends, and pred only stuff (hoping to get some flow over from other nasty diseases - tongue in cheek) for sale at Zazzle.com. As you already know, the money from that will go towards the book and anything left over from this and all money from the book will go to research and hopefully our kids wont have to worry about winning the 'wrong lottery' in the future.

You can find 'my store' here: WeggiesUnite: Home: Zazzle.com Store (http://www.zazzle.com/weggiesunite), so spread the word and lets get some balls rolling.

In the famous words of Andrew - Woot Woot!!!:w00t:

Well, Marta, I just ordered an orange hat with the fighting new evils theme, and the prednisone by hour 15 oz. coffee mug! It's a small start, and good luck on having more people come by to shop!

Incidentally, entering SWEETESTDEAL in the coupon box gets you $10 off the total cost until Saturday, so my $41 order became a $37 order (the numbers are approximate....)

Anyway, Australians, New Zealanders, UKers, Americans, and a bunch other citizens of major countries can look to find themselves, by flag, at the bottom of the opening page. All prices will be charged to the currency of the country of the flag represented, and measurement units will change to the customary ones in use in the country where you are buying items from.

Marta will get statements telling her how much money was collected as "profit" if enough of us buy from her "store", or will have to look for that information in Zazzle's section for "store owners". Don't make her go there! Show some support, if even to buy one t-shirt, or one mug. The prices will look high, but remember the "profit" goes to the purposes noted above.

I am a retiree and an insurance orphan in this country, so my funds are slim but sufficient to help Marta in her cause. I intend to visit it again in future because I saw other things I liked!

One last thing, write this down - weggiesunite - because you will need it ar the top in the left hand search box. The right hand one has a drop down box for type of object (mug, hat, etc.) you want a search for. That is the name of Marta's "store". If you don't specify that, you'll get 31 trillion mugs to look through to find her designs! I exaggerate, but not by much!

Incidentally, Marta, I thought they- the things you put up- turned out pretty good! I can vouch for the quality of the merchandise, and have spent hundreds of dollars with them over the past couple of years. I have several things going of my own, including mugs with my avatar, Captain Me-ow so have considerable confidence in them. (That's Louie to you, but don't tell him I told you!)

marta

10-14-2010, 03:34 PM

Thanks Doug and everyone. I'm blown away at the first day success. I agree that the prices do come up somewhat high but like you said earlier Doug, this way people can choose what they like and I don't have to invest a bunch of money I don't have to make it happen ( I was going to figure out a way to do that, but this seems more reasonable for our particular group - spread sparingly throughout the planet). I'm stubborn too so I will make this (book) happen, which is the ultimate goal with this particular game.

Here are links directly to the store from various countries.
Canada: WeggiesUnite: Products: Zazzle.ca Store (http://www.zazzle.ca/weggiesunite/gifts)

United States: WeggiesUnite: Products: Zazzle.com Store (http://www.zazzle.com/weggiesunite/gifts)

UK: WeggiesUnite: Products: Zazzle.co.uk Store (http://www.zazzle.co.uk/weggiesunite/gifts)

Australia: WeggiesUnite: Products: Zazzle.com.au Store (http://www.zazzle.com.au/weggiesunite/gifts)

I have been having fun making stuff, and it's kinda fun trying to get around their limitations. The Weggie's Pride Parade shirt can't be done on there, so I might get some done here and send them out to you if you like. That'll take a little longer though.
Thanks again, and I'm totally thrilled that you guys like the stuff enough to buy it. Here are the first little baby steps to our anthology.

DEE

10-15-2010, 07:23 AM

Psyborg

10-15-2010, 07:53 AM

Got myself a pred-rage tee :) At least maybe it'll spark questions.

marta

10-15-2010, 08:12 AM

They just aproved the shoes. Wa ha ha ha ha - I think they rock - they're Pred Rage Shoes. I've also done a man's tie (no words on it, just the weggie inside dude - all disheveled and sexy - carrying his pistol). I've also done a red t-shirt with lung vasculature on it - couldn't find a red hoodie- sorry. I'll do up an apron right now Dee. A raging cook? A sleepy cook? A superhero cook? Oh, I'll just go on and play.

DEE

10-15-2010, 04:58 PM

thanks Marta wil keep a lookout ,i thought the shoes were great too :flapper:
DEEx

freakyschizogirl

10-15-2010, 10:51 PM

I'd love a hoodie if ya get round to it!! And the shoes are awesome.

What about a lapel pin??

marta

10-16-2010, 03:45 AM

Hey Sam, I've put two hoodies on there. They have no lapel pins but I did make a button (not nearly as nice as what I imagine a lapel pin would be) I've also put a bumper sticker on there. I have a bunch of new ideas that I'll play with along with some earlier ideas from the post Andrew started. I'll play later - gotta go get some blood work done, pick up a monkey from nursery school and when I put her down for a nap, I'll play.

Andrew, do you still plan on putting the short URL to redirect to here? If so, would you like me to use it on some of the stuff? I didn't want to without your concent, so if you give me the go ahead, I'd be happy to put some stuff together. I'll make a new category in the store with 'forum goodies'. Let me know and I'm your huckleberry. You guys can fire off ideas if you have any. I'm wide open to anything.

eileenv

10-16-2010, 04:45 AM

Well done Marta, they really good i will defintly order a tee-shirt, give yourself PAT ON THE BACK.

gwenllian111

10-16-2010, 06:16 AM

I thought some Weggie Pyjamas would be nice, especially for when in hospital. Half the time, medics and nurses don't even know what WG is!!

pberggren1

10-16-2010, 08:01 AM

elephant

10-16-2010, 11:05 AM

The shoes are cute Marta, I probably won't buy anything until December. Need to see if my family members want some of this fun Weggie wear!

janNaz

10-16-2010, 03:35 PM

Hi Marta. Love the products! I just placed my order...can't wait to receive them! :w00t:

Luce

10-16-2010, 10:27 PM

Loving it all, just ordered a pred rage hoodie!

DEE

10-17-2010, 01:48 AM

ok could not wait till pay day ive ordered a hoodie too and a car sticker will get my yellow apron next time :flapper::thumbsup: DEE x

Geoff

10-17-2010, 02:06 AM

With you DEE, the cold northerly wind today has clinched the Hoodie for me as well. When we get them perhaps we could meet up down at the local shopping centre and terrorise the kids on their skateboards??!!
WEGGIES IN THE HOOD!:cool1:

Doug

10-17-2010, 03:22 AM

hi Marta
its that annoying person from across thw water just had a thought could we have an apron for all the foodies:rolleyes1: possiably with the wegners message think the tote bags ace
cant wait to get paid next week
DEEx

Totes are an excellent idea! If not so common in the US (Canada?), they are more commonly used in other countries. Even then, I see more and more people using them even in the US.

elephant

10-17-2010, 04:58 AM

Did someone mention pajama's , slippers?

marta

10-17-2010, 09:47 AM

You guys are funny. I love the tsunami of ideas, I was looking for a place to contact zazzle yesterday so that I can suggest PJ's (as they don't have any) and now I can suggest slippers when I find a contact for them.

Weggies in the Hood - I love it Geoff, can I use it? I can see it already.

Speaking of this wave... I just ran into the producer of a morning show in Edmonton on City TV, she works with Brian in the winter, and we were talking about Wegener's (her aunt who lives in the states has it) and I told her to let her aunt know about what we're planning on doing with the book and if she would be interested in participating. I told her how we're raising money to get the book published and she asked if I want to go on TV and talk about it. Of course I said yes, so I think I might be on next week when I go to the city for my rheumy appointment. I have to get my head around how to get the message out and be to the point, but if you have any thoughts on stuff that is a must do for awareness, please pass it on.

At the very least we might sell more goodies and be closer to getting the book out - woot woot.

Sangye

10-17-2010, 10:02 AM

That's awesome, Marta! I don't know about you, but I'd prepare by organizing my thoughts and facts on paper. They really edit you on tv, which is why it's good to talk in sound bites. I was on tv in Flagstaff several times for short interviews, and it really paid off to make each point something that could stand on its own. Different from my usual ramble! :rolleyes1:

marta

10-17-2010, 10:03 AM

It's going to be LIVE!!!:scared:

Sangye

10-17-2010, 10:08 AM

Yeah, some of mine were live, too. That really made me want to ramble. Prepping myself ahead of time helped. Get your husband to fire some questions at you (you can't know them ahead of time). It helps.

marta

10-17-2010, 10:09 AM

What did you talk about?

I'm definitely going to talk about how important it is to have support and how much this site has helped me. Which is why I think we need to do the book, so that people can see that there is life on the other side of diagnosis... something that is kinda hard to find in the literature when you get out and are stunned and don't know what exactly the future looks like (not that you ever do) .

Geoff

10-17-2010, 11:06 AM

Good Luck Marta, having read your blog as well as everything you have posted here I know you will 'carry the day'.:thumbsup:

marta

10-17-2010, 01:15 PM

Thanks Geoff and Sangye. I'll do my best. Hopefully they have a wide angle lens for their cameras. :w00t:

pberggren1

10-17-2010, 01:55 PM

I would try and touch upon all the different symptoms one can have.

marta

10-18-2010, 06:26 AM

I've put on a couple more things last night when I couldn't sleep. There are two more aprons with a couple of Weggie Chefs, and a new t-shirt... more subtle. Insomnia finally pays off.

elephant

10-18-2010, 07:01 AM

Hope you get some sleep Marta, thanks for all the hard work!

marta

10-18-2010, 07:40 AM

Thanks elephant, I'm on 12.5mg as of today - woot woot!!! So who knows, maybe sleep is closer than I think. As for hard work, it's totally a pleasure. Completely and totally. I love doing that kind of stuff.

gwenllian111

10-19-2010, 08:38 AM

i love the car bumper stickers. Also bought myself a hoodie too. My husband is going to go mad when he checks our bank account lol, but hey, all for a good cause!!!

marta

10-19-2010, 10:32 AM

thanks gwenllian, just wait till I hit you up for your story for the book :ohmy:... that goes for all of you :ohmy::ohmy:

you guys are all amazing!!! have I said that once or twice or a hundred times? oh well, I repeat myself, blame it on the pred.

elephant

10-19-2010, 12:10 PM

Your amazing too! You can continue telling us that ....even a thousand times!

Happy Camper

10-19-2010, 02:23 PM

Love all the stuff. Very cute. Just put a shirt on my x-mas list!

pberggren1

10-19-2010, 03:05 PM

Hey Marta:

Have you tried to see if you can advertise your store in the VF newsletter?

jola57

10-19-2010, 07:18 PM

Marta, so many choices, what is a girl to do? I just love everything. thanks, I will now be able to have a tshirt for my trip.

Sangye

10-20-2010, 02:12 AM

Marta, I'm so happy your store is getting good business! Have you thought of adding the link and info (how proceeds are used) to your post signature?

DEE

10-26-2010, 04:27 AM

Marta my hoodie arrived :thumbsup:
just thought i would let you know very impressed with the quality and has only taken a week to arrive
size wise good although cant find hands as usual
im only small if discount preds tummy which hoodie hides :biggrin1: its great
taking for first hospital visit tomorrow
talked to wg consult about what you are trying to do and he said if he could be of any help we only have to ask

marta

10-26-2010, 06:17 AM

That's great Dee. I just ordered a whole swack of stuff, so hopefully the sizing isn't too out there.

That's cool about your WG consult. I think it would be great to have a little something in the book from a doctor to other doctors... telling them maybe how they can get information and help from specialists if they get a WG patient. I'm just shooting from the hip, but it might make the book more worthwile to the medical profession (wouldn't it be cool if it became required reading material for med students--- oh to dream) I'm going to make little business card size info things to give to my rheumy to pass on to his other WG patients. He said it would be OK. So maybe a few more on board.

Incidentally there is a sale at Zazzle right now on all White Apparel - get $5 off all white apparel. Just use the code : OCTSHIRTSALE when you're making the purchase. The sale is on this week only. Hope this helps a little.
Also there is free standard shipping for order on $40 or more use code: HALLWNSHIP40 when making your purchase.

DEE

10-26-2010, 06:58 AM

apron next i think :thumbsup:
my consult name is Dr Mohammed Abuzakouk there is quite abit of infomation online if you google him
how are you doing since you went for your check up last week hope everything went ok

marta

10-26-2010, 02:26 PM

Thanks on Dr. Abuzakouk, I'll look him up. Amazing, hey, technology.

The appointment went well. Always seems too quick even though he spends quite a bit of time with me. Incidentally he had a resident with him this time (he has someone everytime as he's a teaching doctor) who happened to be one of the team of doctors who diagnosed me in the hospital. He didn't remember me but I fully REMEMBERED him.

I have been taken off cyclophosphamide and am going to start methotraxate on Halloween. I mentioned in another thread that I'm feeling a little odd about not being on the immunosurpressant. I've been so looking forward to getting off it, but it's also a little scarry. 'What if's' are flying in my head like birds in a Hitchcock movie. I know everything is going to be fine, but having a bunch of odd symptoms the last little while has put me on edge a little.

I am happy thought that things appear to be moving forward, slowly but surely.

Sangye

10-26-2010, 02:38 PM

That's great news, Marta. I sure understand the mixed feelings about not being on an immunosuppressant. After the second round of rtx got the Wegs under control, I was worried about not going on something until the next round. You'll be fine. Keep a daily journal of symptoms so you can stay objective and watch for trends.

marta

10-26-2010, 03:30 PM

Thanks Sangye. I was just talking to Brian and thinking about a comment Jack made in a thread a couple of weeks ago. He jokingly said how it's funny when doctors tell us Weggies what to do we take it more as a suggestion. Well I'm having that kind of moment right now. My doc, decreased the markers he's looking at on a new labwork requisition (doesn't have ESR on there anymore or urinalysis) and he's increased the amount of time between labwork appointments (from two weeks to once a month). I just decided that I will continue on with the old bloodwork req for at least a couple of more appointments - at least until I see that things are sticking with the methotraxate. I get to see my results too, so I'll keep an eye on them. I think this is an odd time to decrease surveilance - while we're switching drugs and the serious wean off pred.

What do you think? Am I crazy or am I paranoid?

pberggren1

10-26-2010, 04:09 PM

You are absolutely right Marta. One has to stay highly vigilant.

DEE

10-26-2010, 04:52 PM

Marta i was taken off cxt and put on cellcept which didnt agree .so had to wait a week until i could start Imuran that was after been on cxt for for 10 mths
so i know were you are coming from
ive been fine and think that my ache etc come more preds tappering
take care of you DEEx

DEE

10-26-2010, 05:01 PM

ps i like the idea of seeing blood results
wg consult showed me what to look for ,as i have mine done at gp surgery and has on occcasion been useful as i ring his office if i see some thing im comcerned about
usually means drugs chsange but also save a trip into town just by been able to fax him and discuss what to do
im still having bloods done every two weeks

marta

10-26-2010, 05:16 PM

Yeah, I think I'll keep it going as long as I can before I get called on it, and if I do then I'll call'em back... if you know what I mean. I didn't pay attention to the new lab requisition until I got home, and was a little disappointed when I saw it compared to my old one, so I'm sticking with my old one. I've also been seeing my rheumy once every two months and now he has changed that to three months. It could mean that I'm doing amazingly well, but I'm thinking that's not the case considering how I feel right now, so I'll have to keep on top of my own stuff I guess. I'm OK with that.

On a more fun topic, I've just put up three more shirts. Two roller coasters from H-E-double hockey sticks, and a Panda shirt - remember when we were talking about pandas being our mascot because of the dark circles around the eyes, well now they can be.

Have an awesome night you guys, I'm off to bed to read my book (The Girl Who Played With Fire) and the kids (Brian and Hana) are asleep so I get to polish of a few more pages.

jola57

10-26-2010, 06:04 PM

Marta, hopefuly all will be right and you will not have any problems before getting onto mtx. Why were you not put on both for a transition month? My rheumy also stopped seeing me every month, now its actualy once a year, and my blood test is every month, but all the markers and urinalysis and esr etc is still on there. By the way this is for all Canadians. In BC we now have myehealth website where I can log on and see my lab results within a day. See if you have the same possibility.

elephant

10-26-2010, 10:49 PM

Marta, if you go four days feeling unwell, call your Rheumy. You know your body best!

pberggren1

10-27-2010, 07:26 AM

Marta, you are reading a book called The Girl Who Played With Fire? I am The Man Who Is Fire.
I don't remember playing with any girls.:wink1:

:predrage:

marta

10-27-2010, 08:51 AM

Phil, I just read your post while eating a piece of watermelon and it just about came out my nose. You're too funny. I'm still laughing.

Elephant, thanks, it's quite hard getting a hold of my rheumy. It's a little irritating actually, and my GP who's an hour away is also hard to get in to see. I was thinking of getting one of the docs in our town - who you can get in to see easily to be my 'go to guy' when I have an emergency. I am pretty well the one taking care of my 'get healthy' program, so all I need is someone to bounce ideas off and have access to the medical system - i.e. blood tests, and other things. I just upped my pred to 20mg today after quite a few days of a perpetual headache and stuffed sinuses. Today I had some pinkishness in my sinus excretion, so I decided to up the pred, and within a couple of hours of taking the higher pred dose, my headache is gone, my sinuses are unstuffed, my ears don't hurt - it really is a miracle drug, as much as I hate it. My rheumy also told me that if I happen to have a cold or flu I can up the pred for a couple of days as this is what normally happens when our adrenals are working. I'm gonna hold at 20 for two days and then go back down to 12.5 and see what happens.

I'm getting braver.

I just saw that someone bought the panda shirt... I wanna see how that one looks on, so whoever it is you gotta post a picture.

elephant

10-27-2010, 10:01 AM

Sounds like your WG is playing games with your Marta, keep a close on on your sinuses....they are a great indicator for active WG.

pberggren1

10-27-2010, 10:22 AM

Phil, I just read your post while eating a piece of watermelon and it just about came out my nose. You're too funny. I'm still laughing.

I wish stuff came out that easily out of my nose.:w00t::laugh:

elephant

10-27-2010, 12:40 PM

Hey, maybe that might be the next big thing ...putting mushed up watermelons up our nose.

pberggren1

10-27-2010, 12:45 PM

Hey, maybe that might be the next big thing ...putting mushed up watermelons up our nose.

I'll give it a try. Marta has already tried out the nose.

marta

10-28-2010, 12:09 PM

Sounds like your WG is playing games with your Marta, keep a close on on your sinuses....they are a great indicator for active WG.

Thanks elephant. I went to a new doc in town today - she's a great young doctor who was here when I was prego, and left town to have her own baby and just got back - so that I have access to someone close to home who I like and trust (I can walk to the docs office from my house). I told her the whole story and asked if she could be my 'go to' - she took a bunch of notes, asked some great questions, and I now have someone I can bounce my self diagnosis off of. I put myself on 20mg of pred and was going to stay here for two three days, she suggested staying at 20 for a week, and then instead of going down back to 12.5 go to 15 while we're working out the immunosurpressant switch. I was thinking exactly the same thing in bed last night (going to 15 instead of 12.5 as that's when most of my symptoms popped up). So I'm happy with the doctors visit. I'm also happy to have someone close to home.

Thanks a ton for your help and support, I really don't know how I could have handled this crazy WG without all of you guys here. You have no idea how totally invaluable this group is to my life and mental well being.

pberggren1

10-28-2010, 12:44 PM

We are always here for you Marta. Glad to hear that you have a good local GP.

elephant

10-28-2010, 01:39 PM

How wonderful that you can walk to her office and talk to her about what's going on with you. That is why I like this forum, wonderful people and great support. Like Phil stated we are here for you!

Sangye

10-28-2010, 02:29 PM

Marta, I'm glad you found a go-to doc. I like the idea of lowering more slowly. I did not like the idea of jumping all the way to 20 mg because you had sinus symptoms. That's a huge jump. The comment about adrenals doing that when we get sick is not very accurate. For one, they don't produce anywhere near the levels of cortisone that we are on with pred. For another, they don't sustain the higher levels, just spike them. Like Elephant said, sinus activity can mean Wegs activity... keep an eye on things.

My Wegs doc only sees me every 3 months, including during my flare last year. I can get in sooner if I have to, but most of the time if I have concerns I email his office and he tells me what to do. Someday when things quiet down I'm sure he'll extend it to every 6 months and eventually annually.

marta

11-06-2010, 07:47 AM

Friday four hour sale at Zazzle. Hoodies 50%off sale. Code HOODIES4SALE.
FYI.

Hammy8241

11-06-2010, 06:54 PM

Nice items Marta. Impressed. Can you tell me what the wording is under the panda t shirt as I can't quite read it on the site. Thanks.

Hope your stay in hospital is coming to a sucessful end.

Hammy8241

11-06-2010, 07:25 PM

Nice items Marta. Impressed. Can you tell me what the wording is under the panda t shirt as I can't quite read it on the site. Thanks.

OK relax - got it. Black eyes, fat cheeks, big appetite, slow reaction time, round belly, generally good disposition, and cute as a button... a big round button. lol.

Sangye

11-07-2010, 05:19 AM

That's hilarious. :laugh::laugh::laugh:

marta

11-07-2010, 07:48 AM

Glad you got it Hammy. I just had to go and check it out as I couldn't remember what I had put down. I just make that up and post it. I had a great idea in the hospital but didn't have internet access with my computer. I could get on with my phone (which is how I kept tabs on you guys, and maintained a level of 'irritating my Weggie friends') but couldn't get the shirts done. Once I shake this headache I'll put it together.

Thanks for the nice wishes. I'm at home now with my amazing family, and in quite a bit of head pain, but I'm just about to go to the basement (my isolation chamber) and pop a morphine and have a nap.

Thinking of you guys all the time. What a weird way to be connected to a bunch of people. We're connected by such a web of yucky things and hopefully one day before we leave this planet we'll be connected by something big and beautiful and positive.

I just read a quote from Mother Teresa. Not sure if it was on this site or something else that I was surfing on my phone while at the hospital. I'll probably misquote it, but it's a good one. "God only gives me as much as he knows I can handle. I just wish he wouldn't trust me so much." Probably misquoted but you get the jist.

Peace y'all.

Geoff

11-07-2010, 10:12 AM

"God only gives me as much as he knows I can handle. I just wish he wouldn't trust me so much." Peace y'all.

Dont you just feel sometimes as If you've been given the ball but someone forgot to tell you the play?

(I've americanised that for all our friends across the pond but I'm sure we all get the drift)

Hope you feel better Marta real soon and those nasty head pains go away.

Sangye

11-07-2010, 01:02 PM

I'm glad you're home, Marta. Any idea why you're getting headaches like that? No need to answer now. Rest. :smile1:

DEE

11-07-2010, 08:11 PM

glad your home take care of yourself :hug3::hug2::hug1:

Natalie

11-17-2010, 09:26 AM

Hi guys and Gals , hope your feeling better soon Marta , I had a visit on Friday with my doc and he is very happy with everything , I am glad too; its been a crazy year . I Ordered a T-shirt last week and a bumper sticker :biggrin: cant wait till they arrive .. will be interesting if i got the right size for me :) , Thanks Marta you have done a great Job with this .

marta

11-18-2010, 08:01 PM

Thanks Natalie, I'm feeling better slowly but surely. I got my weggie shirt and wore it to my local doc, and will wear it to my rheumy's appointment next week. See what he thinks. It's been fun doing all of that. Once I get my umpapa back I'll make some more, I had some great ideas in the hospital that I never got around to, but they're in there, in the vault. I was also thinking of making some for our docs. Wouldn't it be good to go in and give something to them showing them how unbelieably rare THEY are. If we're rare, they are even moreso. But only for the good docs. Bad docs are a dime a dozen. ha ha.

marta

11-18-2010, 08:06 PM

Thanks to you all. My awesome extended Weg Family.

Sangye

11-19-2010, 02:07 AM

But only for the good docs. Bad docs are a dime a dozen. ha ha.
LOL! Yeah, bad docs should get a lump of coal. :laugh:

LisaMarie

11-27-2010, 02:36 PM

hey ...fyi....all hoodies for weggies united are 1/2 off til midnight pacific time....i just ordered 6 for some youth......whoo hooo gotaa love black friday.....Marta hope you r feeling better....we need you here...thanks for the teen design...it's cool they wanna help
have a great night yall

Natalie

11-30-2010, 09:36 AM

Received my t-shirt and sticker love them both they are a great way to spread the word about WG .. I will get more when my bank balance lets me :) hope all of you s are ok ..nat

elephant

11-30-2010, 12:43 PM

How are you Natalie!

Natalie

12-01-2010, 09:36 AM

How are you Natalie! hi matey , I'm Ok still getting a bit of yuck from my wound but its not angry or anything so im just hoping it gos away Docs have checked it say just keep squeezing it . doesn't sound very professional but i don't want go back on antibiotics so that's what I'm doing. my bloods have been coming down n every 4 week when I go back which is good , im now down to 7and A half of Pred .. I have put on a lot of weight but that will go I hope :) and hope no more miss haps for awhile .. 12 months of doctors and surgery takes its toll on ones sanity :unsure: how have you been ? :)