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Natalie
09-07-2010, 07:24 AM
Hello all How is everyone today
. Im well and just thought I would post a update on my health .
well at present Im not getting any dressings On boob It has healed, Yeah . just scar tissue now .
My Doc did increase My Pred dose on the 2nd of July from 5mg to 15 mg Daily , i have blown up like a blow fish as expected .But Im ok . Blood levels are dropping and Im hoping Doc will reduce pred on next visit .
I have booked a MRI on my Orbits as my Right eye (good eye) has been watering a little . This is a symptom I had prior to lossing site in Left eye so its just for peice of mind .
Had have a increase of crusting as well .. lol as writing this I realized I have a ENT appointment TODAY !! So I can get this checked out . My memory is so shocking Right now .
I have been dropping in here and there and reading up on a few things . keep the smiles going
Nat xxoo:thumbsup:

elephant
09-07-2010, 08:10 AM
Thanks for the update Natalie, the increase crusting does not sound good. Let us know how that ENT appointment went!

Sangye
09-07-2010, 09:25 AM
I appreciate the update, Natalie! Glad that boob wound healed finally. Let us know how it goes with the ENT today. :smile1:

pberggren1
09-07-2010, 11:48 AM
I appreciate the update, Natalie! Glad that boob wound healed finally. Let us know how it goes with the ENT today. :smile1:

What is the proper name for a boob doc?

Natalie
09-08-2010, 09:41 AM
What is the proper name for a boob doc? :) A breast surgon ;)

Sangye
09-08-2010, 09:44 AM
How did it go today, Natalie?

Natalie
09-08-2010, 09:57 AM
well my appointment wasnt with ENT but with the Breast surgon , was a mix up and they have booked me under the wrong clinic .. oh well easy done when I see 3 different specialist in the same hospital they did make me another ENT appointment for the 5th of Oct .. so will wait till then and will let yous know how it gos
.. Im hoping my ENT will get back on the Nose reconstruction talk .. But this Breast issuse has scared him off a bit . Especialy how long it has taken to heal . :kittyscared: < love this smiley :)
Is there any one in here that has gone threw with the Nose reconstruction .. was it sucsessful ? . did it hurt after wards for long .. yada yada yada :unsure: brusing ??

Natalie
09-08-2010, 10:00 AM
post sent :) how are you Sangye :hug2:

Sangye
09-08-2010, 10:20 AM
I'm hanging in there. Recovering from a very rough few days but doing better as I rest. :smile1:

Natalie
09-08-2010, 10:39 AM
I'm hanging in there. Recovering from a very rough few days but doing better as I rest. :smile1: GOOD TO HEar YOUR HANGING IN THERE . some times thats about all we can do just hang ( INSERT KITTEN HANGING OFF A BRANCH HERE :) ) WE NEED a smiley like that
.rest is good im just about to head for some rest too .. take care nat

jola57
09-08-2010, 04:57 PM
Glad you bood healed. My right is just smaller and has a scar but no more oozing. Take care

pberggren1
09-08-2010, 05:47 PM
Glad you bood healed. My right is just smaller and has a scar but no more oozing. Take care

The d is backwards!:wink1:

Natalie
09-09-2010, 06:32 PM
Glad you bood healed. My right is just smaller and has a scar but no more oozing. Take care yes it is a welcome change jola and looking farward to putting my energy into something more positive . I have a good scar too . take care too Jola thanks ")

Pberggren '.. YOu dont miss much do you lol :razz:

jola57
09-10-2010, 11:52 AM
Ha Ha Phil, and I can't even blame it on pred, 4mg is too low.

Natalie
01-04-2011, 01:39 PM
off to the Doc today for regular check up .. Boob has healed completely .. I feel good .. , so hoping that my bloods reflect the way i feel .

Sangye
01-04-2011, 01:41 PM
That's terrific, Natalie. I'm sure if you're feeling good you're doing good. :thumbsup::hug3:

Natalie
01-04-2011, 01:43 PM
That's terrific, Natalie. I'm sure if you're feeling good you're doing good. :thumbsup::hug3: Thanks Sangye :) I hope your feeling better now .. I was just reading threw Your WAY sick Thread .. :( ..

elephant
01-05-2011, 02:24 AM
Natalie so glad to hear you are ok. Good luck at the docs!

Natalie
01-08-2011, 10:10 AM
Well Doc went well, my Bloods are good , My PR3 level is at 12 the lowest it has been in 15 months ,, he is keeping me on 7 1/2 pred , said that he believes the whole issue with my boob was WG related and not so much the Fistula thingy the boob surgeon was following :confused1:. Says I just wasn't on enough pred .. was on 5 for ages like 2 years ?? Who knows !?:unsure: that fight is between them ..( They don't get along ! ):angry: all OK now so lets move on hey :rolleyes1:. I don't see him for 3 months now . quite a long break . its been well over twelve months since I was stable enough to not see him for this amount of time. so im glad .

Sangye
01-08-2011, 01:03 PM
That's great to hear, Natalie! I hope you continue to get stronger. :smile1:

renidrag
01-08-2011, 10:56 PM
Congratulations Natalie, I am on a four month rotation with the Doctors now. I remember being a little anxious at first. It was like a way of life that every month this is what I do, then it changed. I am used to it now and am still feeling well. In remission and drug free since June 2010.
Good Luck
Dale

elephant
01-09-2011, 01:04 AM
Natalie good news and you sound like you are so much better!

Sangye
01-09-2011, 04:13 AM
I've always been on a 3-month visit schedule with Dr Seo and only see him more often if we can't resolve a problem via email. Even when I was severely flaring I only saw him every 3 months.