how to make a bad day feel worst

[DEE]

monday
had a bad sunday night could not sleep for pain in joints hot sweat etc so after breakfast went back bed
late afternoon the dooe bell rang i went to the porch door looked there stood a young double glazing sales rep leaflet in hand
i explianed he had just woke me up and could he put leaflet through the door please
no he said i want to talk to u i explianed again that i was not what i wanted as i had just woke up
his reply yes you can tell by the mess your hairs in he repled angrily
since taking cxt for nearly a year my hair is very thin and slightlt patchy and has never really bothered me before family friends and colleagues have always said its the least of your problems eg blood clot loss of hearing and cataract in the last three months
i know im no beauty model and maybe slighty senstive but his attitude really upset me ,so i took his leaflet and rang the company he represented and but in an offical complaint its something i would not normally do but respect cost nothing and if i thought my son spoke to anybody the way this young man did i would not be best pleased
thanks for letting me vent needed to get out of my head so can mive forward DEEx ps suppose to here from the company in the next seven days

[marta]

I would have given him a bang on the ear as well.

[pberggren1]

I would have kicked him and said there now you know how I feel good day.

[Hammy8241]

Insensitive clod!! Well done for complaining.

When I diagnosed, I feared the worst, expected to be off work a long time etc. So I immediately looked at my outgoings and decided what I could do without . Most things I cancelled fairly easily after telling them (if asked why) that I had been diagnosed with a serious illness , would be off sick a long time and would not be able to maintain the payments. Even Sky accepted this and even offered to give me a few free months which surprised me as those of you who have had dealing with them know that they are not normally great on customer services.

At the other end of the scale I cancelled my subscription to Which Consumer Magazine by post. For our overseas friends, this is the voice of the people, champions against bad business practice as well as reviewers of all sorts of products. Ok, a few days later I get a call from them asking why? Fair enough. I go into my speech about serious illness etc. But the lady at the other end just ignore me and continues with her script. I interjected three times and said thank you but NO and repeated my story why I could not afford the subscription. Eventually I’d had enough of being polite and forcibly got her to listen and hung up. Well I complained to the MD of the company and did get a letter of apology but I never expected to have to complain to such a reputable company. I guess the moral of this story is every company is only as good as its people.

[elephant]

Good for you Dee, so glad you called that company. Just think that guy is a miserable person. Glad your moving on, he's probably still stuck in the mud.

[Psyborg]

Wow, what a putz. Why in the world would you insult someone you are trying to sell something to? I think you did the right thing by calling his company...if they are decent they should apologize to you themselves as well.

[DEE]

thanks guys feel better about it today but when your feeling rough you just dont need it :) DEE x

[Sangye]

I'm sorry it happened, Dee. Glad you filed a complaint. Are you feeling better physically at least?

[Doug]

You handled it exactly right, Dee and Hammy. A company's contact person with the public needs to be someone who is mature, knowledgeable about the company's product or service, neat-looking, clean including language, polite, and pleasant. They also need to know when to back off- politely!

If a company hopes to grow, they need to know how their representatives are coming across to the public. This even goes to extremes like the "How am I driving? Call 1-800-XXX-XXXX" notices you see on the backs of trailers in this country where the smart companies realize their name and product on a big rig's graphics means a cowboy behind the wheel can %#^* customers and potential customers off so much they will boycott the company because the cowboy cut them off in a dangerous move to speed the product to market.... The worst one I ever encountered on the road, however, was a wise guy who know he was an @$$%^)#, so he'd taped over the toll free number you can call to report bad driving!

[DEE]

thanks Sangye and Doug
glad i did complian now as i realise how uncomfortable he made me feel and hair situation has never posed a problem to mme up till then it is very thin which we put down to the fat ive been on cxt for so long
Sangye things physically still a problem what with the swelling and the two knocks taken to thighs recently on left leg and my right leg and hips still giving pain that makes walkiing difficult somedays still
plus now got to deal with the annoying eye problem very bright here today which does not help !!
how are you today things didnt sound good yesterday ?
just had a work colleague visit so feeling ok just waiting for hubby to come home DEEx

[Sangye]

Aargh... One thing I just can't stand is dealing with a doctor's receptionist when they have a bad attitude.

JHU has 2 main campuses-- Bayview is the one I go to 99% of the time, where all the specialists are. It's easy to get around there. The main campus is downtown and is a real nightmare to get around--long walk from parking, everything is very spread out. I only have one doc there--the neuro-opthalmologist-- and don't see him that often.

Because of this vertigo and weirdness, I have to see him again to make sure it isn't the elevated intracranial pressure kicking up. I also have to see the otologist at the main campus for the steroid injections. This morning I've been going back and forth between the two offices, trying to get them set up the same day this week. JHU is a 2-hour drive for me, and dealing with the downtown campus makes it longer.

I finally got in with the otologist for tomorrow at 2:30. I called the neuro-opth to see if I could get in before that. No openings, so the receptionist said "Just call when you get to your other appt, and hopefully you can just come over and see the doc. He's totally booked, so don't expect anything."

I can't be spontaneous like that and expect to make it through the day. I have to allocate physical resources and know ahead of time how much walking I have to do, when I can eat, etc.... I tried explaining it. She said, "Oh, then just get here in the morning and call. Maybe he'll tell you to come on over." Sure, I'll get there 6 hours early and just hang out hoping.

I just couldn't get through to her. The doc is in surgery all day and I said just ask him to call me when he's done. She didn't like that, and I doubt that message will get sent. She said I was being difficult.

[elephant]

Good for you Sangye, too funny.

[DEE]

What we in the uk wold call her a jobsworth !! sorrybyou had such a rough day hope things work out tomorrow
what is an otologist ?
hubby says i col;ect ologist but i dont know that one :) DEE x

[Lightwarrior]

I'm sorry that this jerk gave you such a hard time. I'm also proud of you for calling the company. The only consolation I can offer is that I would much rather be you than to have to live in his skin, that much rudeness and lack of empathy can't be easy to live with.

[DEE]

thanks lightwarrior before getting wg i was the person who saw good in everyone but i now know life to short to make excuses for other people im worth more than that
its fact you learn who your friends and whats inportant in life and you guys have been so supportive and made me stronger thanks DEE x

[DEE]

ok that was last monday heres how it gets worse today MONDAY lunch lost front tooth up to root have been waitng around to find out what can be done !!!
dentist says can not do much because of chemo high steriods and warfarin combo but will be able to clean and seal the root hopefully until he takes advice from wg consult hubby just laughed said it could only happen to me me i felt like crying
now i can hardly see, tooth missing and generally FED UP not a pretty picture to add to moonface and hardly any hair its so thin the joys of
doctor just given extra anti be for five days ,more tablets :) DEE X

[jola57]

Oh Dee, I am sorry for you, but the image is just priceless, LOL, Forgive me? I have a very bad tooth in my lower jaw. Its been like that for 3 years. It is possibly split down the middle and can't be repaired. I will have to start antibiotics profilacticaly but even then nobody wants to touch it. It has to be removed and an implant put in. It gets slightly infected every couple of weeks and then I have to wait again. I am also afraid (deathly so) and I keep postponing my trip to the dentist. So for now I just try not to schew on that side and hope it will repair itself, do you think it will? Lol I am willing it to.

[elephant]

Dee I am so sorry. That is aweful!

[DEE]

Jola dont know about your tooth repairing but when i was talking to receptionist i got a telling off for not keeping up with folow up treatment !!!! when i asked if she had the rest of the afternoon to explian what had been happening to me over the last two years that has put me off having dental work completed , she began to be a bit more sympathetic hence the appointment thurs am DEEx
ps hubby only laugh because he knew i was about to cry which i dont normally do pps was having steak for tea :)

[DEE]

Thanks Elephant just come of the phone with gp we had to laugh about wg consult only be on holidays for ten days !! has to deal with what we can do with cataract in both eye and now the tooth situation .He says its to early to take me of warfarin to do either in his opion as im still getting slight pain in multi blood clot area which they is due to recovery or maybe some scarring (sp) and INR level not at a stable level yet !! DEEx

[Col 23]

I can relate to Sangye's issues, Ive given up believing anyone has any compassion or is able to understand the enormous effort and energy it takes to attend appointments. So sorry Dee, what's that saying" bad is good when worse comes along." So b.....hard some days. I can also relate to having tooth issues and problems getting teeth repaired because of WGs. My husband has decided he is taking over from today as I get so frustrated with dealing with people. He has advised that all I have to do is give him the information, he will call and make the arrangements and get me there. I was booked in to go under anesethetic to have my teeth done and the whole thing ended up with me loosing patience and totally frustrated, so I cancelled it all. My local dentist wont give the needles another go even though I have been reducing pred. So Im back to square one. So im with Jola I hope it repairs on its own for now. Soon I wont be able to smile if I dont get it done.
Big hug for all of you. Cheers Col 23

[marta]

ok that was last monday heres how it gets worse today MONDAY lunch lost front tooth up to root have been waitng around to find out what can be done !!!
dentist says can not do much because of chemo high steriods and warfarin combo but will be able to clean and seal the root hopefully until he takes advice from wg consult hubby just laughed said it could only happen to me me i felt like crying
now i can hardly see, tooth missing and generally FED UP not a pretty picture to add to moonface and hardly any hair its so thin the joys of
doctor just given extra anti be for five days ,more tablets :) DEE X

Oh Dee,
Sorry to hear that. You seem to not have it good on Mondays. According to Deepak Chopra's Seven Spiritual Laws for Parents, Mondays are the days of giving. You've got that one nailed. "Today's the day we tell our children 'If you want to get something, give it'", so with that logic you should be getting back all those things you're giving tenfold. Your sight, your hair, your tooth, your patience, your peace of mind, they're all coming your way stronger and healthier, you just wait and see.

[DEE]

Thanks Marta just had sausage and mash instead of STEAK :) DEEx

[marta]

Thanks Marta just had sausage and mash instead of STEAK :) DEEx
Sounds yummy. Steak is over-rated anyways.

[Sangye]

Dee, I'm growing more and more concerned that your INR is still not stable. It's been too long.

[Sangye]

Col, there are plenty of compassionate people out there-- that receptionist just wasn't one of them!

Pred can make you feel very depressed. I hope you're taking care of yourself. I think it's a good idea to let your husband take over communications for a bit. If he's willing, there's no need for you to exhaust yourself further.

[DEE]

Sangye im going for full bloods test full count esr cpr etc this morning will ask again about INR which i have done next monday
when i asked about it last time they said it could be that im still fighting infections of some sort or because because of moving preds up and down that thet were keeping an ete on it
last time was the first time i have reached the top of the ranage they gave me thanks for caring DEEx

[Sangye]

Dee, do you take Bactrim? If so, it's famous for interfering with warfarin. It would usually make the INR too high, but if you only take it a few times a week it might be throwing it all over the place.

[DEE]

[QUOTE=Sangye;22572]Dee, do you take Bactrim? If so, it's famous for interfering with warfarin.

yes i take ine four times a week 169/800 mg
INR anything between 1,5 -3,0 target 2,6 - 3 only managed to reach between target figures twice
due to be done next tues am DEEx

[Sangye]

Good grief, that's a very small target range! No wonder you can't stay in it. The usual range is 2.0 - 3.0.

I have a home INR tester and am quite stable with my readings, but even I couldn't stay in 2.6 - 3.0. Add in Bactrim, and no wonder you're having trouble!

[DEE]

ok Sangye taken drugs head off , not a good day!
checked INR book target range is 2.0 -3,0 only been in target still twice since April one of them 3.0
bloods still done every two weeks for INR its all new to me :) DEE x

[Sangye]

LOL-- I couldn't imagine that anyone would be put on such a small range. Do you usually run too low or too high?

[DEE]

that i know its to low thats why they are still doing every two weeks they said it would be every month when i first started taking it DEEx

[DEE]

hi guys not such a bad day today although not looking forward to visit to dentist tomorrow :(
some good news i have got my appointment with a rheumatogist that wg consult ask for at last
ive been on waiting list as he is so sort after, when i rang wg consult secertary she said she knows he's good she see him herself !
seeing him 23rd ,wg consult 26th aug should just take residence at the hospital :)
full blood results tomorrow fingers crossed xx DEEx

[JanW]

Dee: what kind of doctor is your WG consultant if he's not a rheumy?

[DEE]

hi jan
hes a director of allergy diagnostic and therapetic centre ,lecturer in clinical immunology and has a fellowship in pathology but most of all did research paper for wg and has been treating wg for years . he a god send to me was only sent to him originally for him to check bloods as no one knew what was wrong with me
he knew from the fisrt day and started treatment after me spending the good part of a year in and out of hospital !
His name is DR MOHAMMED ABUZAKOUK
He wrote a patients booklet that i found useful and i have regular contact with him and when things not so good he rings me weekly
i also have a good repore (SP) with his secertary if i leave a message with him he usually rings back the same day
i know im very lucky as i have the same support from my own gp too DEEx

[JanW]

what are you going to be seeing the rheumy for, then?

[DEE]

seeing rheumy because he can get somethings done quicker with out having to refer to each deparment each time
h
He is posiably going to be part of the wegners clinic they are trying to get started local hospital and to be a support when DR A is not about
when gp and i needed help to sort things out to get me into local hosp because DR A was on holiday , i was sent to a different hospital they dont want thisto happen so he wants DR Patel to be part of the team working with me
he said he also had other wegners patient he sent to him as they have a larger support team which he is not able to give in his own clinicss at the moment
i often have to see him on a day which is not cllinic day because he needs longer than the normal time alloted for an appointment
i have renal consult,ent consult ,urinoligist,audio consult and a heamatoligist i see all within the same hospital and just aboutto add eye specialist to sort out cataract
because i have all the separate consulants they get together and decided what treatment they think i should move onto hence the meeeting on 26th aug with hubby and me
they know i need to come off cxt because of the damage its started to do but still only class condition as stable because everytime they try to lower drugs the symptoms start again or something else goes wrong !
roll on 26th aug sorry if ive gone on a bit but could not think howelse to say it ,its just the way it was explianed to me :) DEEx

[pberggren1]

I forget, what is INR again?

[DEE]

hi Phil it means international normalised ratio a test to measure how long your blood take to clot
how s things with u DEEx

[elephant]

Dee that is good news about the consult. Don't worry about the dentist, glad your going. Hope it all works out for you.

[pberggren1]

Thanks DEE, not too bad.

[DEE]

ok guys back from the dentist five min appointment to seal the tooth and tell me he could not do anything else thirty five pound to pay !!! think i want to be a dentist :)
said i need to talk to wg consult about as he wold perfer to do when im off chemo and would need me to stop warfarin
blood results back more above and below average results than ever !! when i rang wg consult secartary yesterday we had quiet a conversation she said she thought i had my fair share just lately and her grandma would have sais YOU NEED RUBBING OUT AND DRAWING AGAIN :) some days it feels as if we should but not today DEE x

[elephant]

So glad you are persistant Dee. Big hug to you!

[Col 23]

Hi Dee, I like the rubbing out and drawing again. Made me smile. Was just checking this thread to see how you were going Dee. Im in the same boat, I have to be sedated
to get my teeth done. No one gets anything. I hate Wegs being rare, it all cost more, soon as you mention Wegs everyone wants to consult with your doc/Rheumy
and its all totally frustrating. Gone are the days of just doing it. Everything takes so much longer to organise. As Sangye refers to Wegs as a dog, I think Im going to start
barking.....Hope your feeling better soon. Cheers Col 23

[Sangye]

Dee, that made me laugh too. My family chiropractor always said, "Did the rain wash away your glue?" I used that with my patients, too.

I've had dental crises during Wegs. No fun. I have pretty extreme dental phobia which makes for more fun.

[DEE]

thanks Col 23 not feeling to bad just frustrated as its one of my top front teeth ive broken off , it had to be didnt it :)
Sangye ive the same phobia too
.more worried about going there than when i was sat in hospital with oxygen mask on because of blood clots on lungs !!!
how odd are we DEEx thanks uys

[DEE]

So glad you are persistant Dee. Big hug to you!

thanks elephant driving myself with stupid cough today it never rains put pours round here !!!!!!!!!!
hope your ok DEEx

[Sangye]

Oh yeah, the only other thing that terrified me as much as having to get dental work was getting a spinal tap when I first got the elevated intracranial pressure. But even that wasn't as bad! I mean, I wasn't screaming like a hysterical person. Seriously, it was embarrassing.

[DEE]

dont mind if they knock me out and get on with it just dont like to watch or hear them
you would think it was the least of our worries !!!!

[marta]

dont mind if they knock me out and get on with it just dont like to watch or hear them
you would think it was the least of our worries !!!!
Dental phobias are what nightmares are made of. I had a root canal done in Bulgaria when I was 8 years old, without a freezing, with two nurses holding my hands down on either side, my grandmother holding my head down and the dentist (a family friend who was doing us a big favour according to my grandma) pulling out my nerve with a little screw like instrument. At the end of which she showed me what a dental nerve looks like by dangling it in front of my face as it limply hung off said instrument. It was lovely. I HAVE DENTAL PHOBIAS. I can totally relate to preferring a spinal tap over dental work.

[DEE]

Finally got a letter of apology had to wait for discipline hearing results, hopefully if it stops him doing it to anyone else thats all i wanted DEEx

[Sangye]

That's good to hear, Dee. An apology--even if forced-- goes a long way.

[elephant]

:wink1:Glad to hear that too Dee. Rudeness is not allowed!