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- Positive news Story from patient with WG
- Likelihood of kidney problems
- Wegeners sometimes opens doors
- Cleveland Clinic
- Not feeling "right"...
- Fast sliding out of control ... Stress stress stress :(
- Kidney Biopsy A Success!
- Need advice re: sinus infection & ear infection
- Suspected Wegeners...please help
- Turmeric
- Does this lab work look like a good place to start for a diagnosis?
- ? Signs of Kidney Involvement
- Stupid question
- Waxing??
- Rearing my head and feeling guilty.
- Remission!
- Help-- finding a doctor, diagnosis, eyes
- Prednisone
- Baking Soda for kidneys?
- Cannabis
- Splinter Hemorrhages
- Wegeners and cancer
- 2 Q's Regarding Probiotics and Digestive Enzymes:
- Hearing Issues
- Symptomatic!
- Thrush in the mouth and digestive tract
- Pregnant...40...and...Wegner's...Update!!
- Need something to read? Buy my book!!!
- Helpful study from England
- Wegener's and Pregnancy
- How many rounds of Cyclo
- Migraines or sinus headaches?
- Vertigo...ish
- Thrush / Candida in the system and Prednisolone
- Help. I don't want to overreact.
- 1mg difference. REALLY???
- Good news
- Could it be to do with kidneys?
- Reducing Prednisone !!!!!!!!!
- First pregnancy - super scared.
- Funky Mammogram
- Last chance before we start Rituxan treatment
- Almost tapered off the Prednisone!
- Hey guys
- new to support group hopefully I am posting correctly
- Remission blues
- Can titanium awaken the immune-system?
- Anyone have Corneal Filaments or keratitis?
- Septal Button problems
- A few articles on pregnancy with Wegs
- Thinning skin ????
- WG doc in Newcastle (Australia)
- Rant - Cleveland Clinic
- Anybody have silicone treatment?
- Constipation ??????
- Neph wants to send my mom home to starve to death
- wegs map
- Donating blood
- Joint pain question
- Possible breakthrough in curing AI diseases
- Yet another rant
- Anyone know how blood work reacts after rituxan treatments?
- Interesting article about possible cure for auto-immune disorders
- Red-Palm Oil - Do you take it?
- Update on Debra ( Debbie )
- when is it time to stop working?
- You have control!
- WG
- want to discuss WG and my experience.
- Any teachers out there with WG?
- Hi Everyone, I am new here and haven't been dx with Wegener's yet
- Anyone have a High (BUN) Blood Urea Nitrogen?
- Rash
- Hearing Problems
- Questions
- skin biopsy???
- Looking for Kathy Messinger
- Jack - Rembered
- Throat problems
- Less Severe = Shorter Remissions
- WG &Sleeping
- Nephrologist visit today
- Hearing Test yesterday
- Phil and Alysia
- Feeling very bad
- exercise
- Should I panic, or???
- Canadian pharmacies that sell to the U.S.?
- Atlanta , Georgia
- Bronchial Stent issues
- Could MRSA be responsible for AAV?
- Can't sleep ...what am I doing wrong ?
- Nasal rinses and travel...
- Pancreatic Cyst
- Being a burden and a reality check
- Kidney in Remission in 3 months but Arthritis out of control
- Heart Cath
- Rest In Peace Phil
- saddle nose
- Rheumatoid Arthritis AND WG ??
- Nerve wracking
- Updates
- How many of you think you know what caused this terrible disease to you ?
- Blood Type Diet
- Can anyone help with interpreting FEV1 and FVC?
- Pregnancy and wegeners
- Welp, the taper didn't work
- How to put a picture in a post
- unknown link between common viral infections and autoimmune disease has been found
- So close for dialysis (update on gilders)
- Skin growths
- Anyone here go to HAJJ-ALI, RULA, M.D. at Cleveland Clinic
- Syphilis - could there be a link to Weg's?
- Anyone familiar with Bronchial Thermoplasty?
- Kidney involvement
- Remission?
- Time for Dentures?
- Flare
- If it's nothing, why am I so freaked out?!
- Sooooo frustrating
- More questions
- Wegs/GPA in one word - a new project
- Sleep
- Eye tearing
- Probiotics
- Tendon issues
- God bless us every one
- KathyB Update
- always something!
- Anemia
- Fathering children?
- Apparently, we are "Gray" and "Muddy"
- Good news/bad news
- acupuncture as treatment for headaches
- Hmmm..could it be WG after all?
- A strange question.
- Vacationing with Wegeners
- New People
- Livedo Reticularis - anyone?
- kidneys
- Sinusitis
- Swollen Feet
- Taking a step to find out if I have Wegs
- Anyone with heart issues
- Iron
- Ritixumab?
- Does it bother anyone else
- kidneys Rituxin or imuran
- Hearing Problems, Update 1
- Not responding to Cyclo - Risking it all with Fecal Transplant on 2nd Of December
- Lobectomy
- Alt diagnosis
- The Common Cold
- Ear clogged
- V-pprn
- Kidney
- TAPIR Trial
- kidney update
- Vasculitis Patient-Powered Research Network
- Thankful
- Any thoughts?
- Any thoughts?
- Anyone with hormonal involvement with WG?
- Infographic on SNOT. Seriously.
- Highest CRP rate?
- So stress really can cause flares???
- working with wg
- Stopping My Meds - Your Experience?
- Pain in the evening
- Swelling under one eye
- Possible phone scam...be careful!
- 3D Print a new organ
- People concerned with awaremess.
- Has anyone had trouble getting diagnosed? Desperate and starting Organ failure
- Progress
- High ANCA = Fatigue?
- New symptom sore throat
- Prednisone and Brain Powers!
- To Travel or Not to Travel
- ulcers
- Respiratory Cold -- Again this winter!
- Positive anca Negative kidney biopsy
- Holding meds when sick ...then mild flare ???
- Florida Conference
- Going back to work!
- Fatigue and Prednisone reduction
- Wonder if this would work for those who have Wegener's?
- New blood testing technology - one drop for 30 tests cheaper
- Working
- What happens when you forget your meds?
- Excessive Sweating
- Living in Florida?
- Snorting
- The Virus that stoled Christmas!
- Sometimes it just honestly sucks !!!
- Trying the pred taper... Again...
- John Preusser
- Cellcept???
- Symptoms & Age
- Possible cause of Wegeners?
- What is YOUR biggest trial with wegeners ?
- Where do people go???
- Prednisone Problem
- Future treatment for autoimmune illnesses?
- Allergy Alert!
- Bowel or colon problems/how to dx its wg related.
- Is a rash part of Vasculitis?
- I am fast approaching my wits end
- Colloidal silver
- Excited about my new medicine!
- going out of my mind... courtesy of a flare-up
- The Whole 30
- Anyone re-locate to help wg symptoms?
- Chronic sinus infections, bronchitis, and nasal rinses.
- Low Hemoglobin
- weg's map
- Fatigue?
- Just have to laugh!
- WG -predisone - when does it end?
- ear issue/ inflammation...what should i do?
- LiveStrong Exercise Program at the YMCA
- Not getting the chance to give birth
- It's winter. Where is hope ?
- Sexual Side Effects?
- New to the site but not the DX...
- New member: Curious about a lab result
- Need your help asap. In the er.
- Nose pain
- Dental work .deep cleaning root plaining
- Denture Misery
- creatinine continues to decrease
- How many of us are there?
- IgA or IgG ANCA's
- Face to Face Support Groups
- Treatment
- Doctors
- Skin Rash
- wegeners sufferer
- Had my second opinion
- Wegener's in a dog... seriously
- Exercising - prednisone
- Question
- NeilMed website sale
- I'm new!!!!
- Did you display cholesterol problem????
- 2nd sinus infection of the year
- First Post, Anyone else have Paralyzed Vocal Cords?
- Symptoms...
- Blood pressure
- Waiting Again
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