- Entertainer's Secret...throat spray
- i have an idea!!!
- Japanese Water Filtration
- some good news
- the long road to diagnosis
- It just keeps on giving
- Update After MOHS Surgery
- Whenever I am tempted to feel sorry for myself-
- a lot of this sounds familiar.
- hard week
- Males Who Lift Weights:
- Acetyl L-Carnitine For Neuropathy?
- no appetite
- Vasculitis Appointment
- How much pain is too much pain?
- Endocrinology Update-- Mixed News
- Big life change
- explain this disease so can understand it better
- i am finally back for a minute...with a few questions and answers
- A question for the experts...common colds
- alternative therapies for joint problems?
- ENT specialist
- itchy watery eyes
- what age did you first have this?
- Etiology of Wegener's...big news in science/research
- Been "away" for a while -- happy to be back!
- Pulmonary Function Test (PFT)
- Remission Or Relapse? I don't know.
- Wegeners Study
- Frequency of wegs flares/relapses
- VCRC One-Time DNA Study
- wegs
- News of our beloved Al -- sent from his wife, Eileen
- Suggestions for appeal for disability denial?
- white cells
- in hospital due to kidneys :(
- see you in about a week.
- Interesting Article on looking at the cause of Autoimmune diseases
- Al
- Update and stories
- Do You Receive SSDI AND Work?
- Tribute to Al Swanson written for his funeral (sent to wife Eileen)
- ready to scream in frustration
- Wegener's Is The Medical Highschool Bully!
- Stats on how many of us are on disability
- Wegs and being in close proximity to a recently vaccinated child
- Just checking in!
- Anyone else have ear problems? Elbow nodules?
- Labs and other signs of a Flare
- Sinus Cyst
- Flare or the Flu?
- Update on Lisa Marie
- Raspberry Keytones
- Looking into Saddle nose Surgey
- What does this mean?
- Update after starting treatment
- 2 Years Later
- Peripheral Neuropathy Question (Feet)
- Anion gap?
- Arthritis V WG Joint pain
- Accomplishments
- Help, Disability Question.
- Recommended self-help books
- What could it be?
- Hand pain!
- Adderall for wegeners fatigue.
- Trying Something New
- Tattoo
- Antibody (immunoglobulin) rates and RTX
- Hi from Col 23
- New simple injection might offer hope in treating autoimmune disease.
- Blocked/Plugged Tear Duct
- Is Saddle Nose Inevitable If ...
- Can't catch a break
- My Voice
- Pacemaker
- Dose of Rituxan? 2 vs 4, what is the total amount of meds given?
- Sleep Paralysis...have you experienced this?
- 24 Hour Urine Test
- sweating and weak
- Appeal for disability denied -- what to do next?!
- Stress management
- Open sores that won't heal
- Wegener's won't go to bed
- Chronic Scratchy Throat: A Symptom Of Wegs?
- Can Eustachian Tube Narrowing Lead To Chronic Ear Wax Buildup?
- Racing for Life: A Documentary Film
- Thinning windpipe?
- Remission Question
- Immune System Question
- Update & another one goes to Addebrookes
- Von Willigam test
- North Carolina/Raleigh Vasculitis Support Group gathering Dec 1
- Wegs Dogs
- Sinus stuff
- Immunology Docs
- hair loss
- Research
- Webcast: Presentation and Diagnosis of Small Vessel Vasculitis
- Immunology
- Flu Jab
- Tear Duct Procedure Question:
- Anca
- What is considered remission?
- I'm official
- roaming pains
- Flares and other things
- Weight question
- Your Remedy For Baggy/Puffy Undereyes
- Are Baggy and Puffy Eyes Caused By Wegener's?
- Risk of cancers?
- some good news for a change.
- Missing
- Need some advice.
- Research studies on GPA.
- Remission without Prednisone
- Canadians find possible trigger for harmful immune response.
- Wonder how many GPA patients got hurt by contaminated drugs?
- SSDI Claim Confusion/Confession - Need Feedback
- Fractured Ribs
- Medicare
- Inflammation markers on the rise.. help
- Nasal Surgery
- Vitamins and colds
- Heavy metals in weg patients
- ANCA test up
- just diagnosed and got lots of questions!!
- Grumblings
- White Blood Cells
- Poll - Stress?
- Non WG kidney issues?
- Apple Cider Vinegar
- Ok So im out of denail!!
- Treating sinus infections.
- To Root Canal Or Not To Root Canal
- Insurance
- Insurance Woes
- Your Experience with Wegener's
- Have You Had Blepharoplasty (Eye Bags Surgery)?
- Kidney disease symptoms
- This One's About Chipping Teeth:
- Off & On Fatigue (Anemia) Question:
- If you've had eye involvement (scleritis, uveitis, blocked lacrimal duct), how long..
- Merry Christmas
- Have You Been Denied Company Health Insurance Because Of Weg's?
- Foot pain (arch)
- wegs map
- Cataracts
- Anyone with Graves' Disease and Wegeners?
- LightWarrior, Please Check In
- Speculating
- Increased Ear & Sinus Symptoms
- Shingles
- Night Sweats
- UK Weggis - rare-disease-experience
- Cindy, and her challenge in Alaska...has anyone heard?
- Curious about Nerve Issues
- Canceled Judge's Hearing
- Paging Sangye's Adrenal Glands
- Any experience with orbital edema?
- If You Got A Cold/Flu...
- Fundraising Adventure
- Info on Johns Hopkins Wegs Specialist
- doctor
- Nutrition E-book for Autoimmune Disorders
- Hot Flashes?
- Young people
- Finally ... SSDI approved!!
- Dacrocystorhinostomy
- Questions
- Bad day
- Prednisone And Imuran Questions:
- Sonalkiss- Developing therapeutic treatments for neurological & auto-immune disorders
- I'm having a little flare.
- Going gluten free?
- Length of Imuran Treatment
- Looking too far ahead
- A WG decision...
- Close to home
- Lightwarrior
- Lung fibrosis progression
- Shingles or Flare
- Controlling the pain
- When did you stop working
- Taking the plunge
- Cough Vs. Sneeze
- What is a flare? What is a remission?
- Appendix...not so useless afterall
- Finally found out what was wrong - shingles
- Lab tests and what they are for
- The Marshal Protocol and prednisone reduction
- Ringing in the ears
- Possible flare?
- Headaches and light headed
- Headaches and masks?
- Saddle nose
- Wegener's Article (rare disease day)
- Progress
- Top Questions to Ask Dr When Newly Diagnosed?
- Recurrent sinus infection (and proposed surgery to correct deviated septum)
- just need to say...
- Salt linked to immune system problems
- Wegeners Fundraising Initiative
- Bladder Infections?
- Cleveland Clinic First Visit
- Still in diagnosis limbo
- symptoms back after six months on MTX
- Odd Symptom
- Rituxan and Blood Cots
- It's In Writing
- Symtom Question
- Possible first flare
- Is it too soon to tell?
- Starting CTX and rant!!
- Prednisone/Weight Questions:
- Negative ANCA
- Prednisone/Water Weight/Diuretic Pill Question:
- Well I'm no longer in remission
- Who plans to attend these events?
- Blood test results?
- Cool New Search Engine for Physicians
- IgG & IgM readings - Insight into what they mean?
- Out of date information
- ASL Sign Language
- coconut oil
- Bummed
- Warm Humid climates
- My third anniversary of my Weg diagnosis is today.
- Char
- Help with serious weight loss please
- blue veins
- Thickening Pluera
- Wegs vs COPD
- 3rd dose of Rituxan
- Thank you Cheif
- Blood Pressure Meds and GPA/Wegs
- Maybe I should be a doctor!?
- Everybody stay well.
- What to do?
- Perforated sinuses?
- Subglottic Stenosis with Wegener's
- Question about sweating
- The weird and wacky road to a WG diagnosis...Question.
- Barbara's Ketamine treatment
- Mouth/Gums
- eyes involvement ?
- Biopsy question
- Elevated neutrophils
- couple of questions
- Had my sinus biopsy