- New blog from doc in Ark, USA regarding vasculitis
- Cyclophosphamide
- Losing toe nails.
- Surgery on a deviated septum
- off to atlanta
- Oh bother - having a flare!
- Diagnosed One Year ago Today
- Your health advocate
- Ulcer in my mouth
- I need to vent!
- Symptoms
- Stupid cold!
- Flare VS Infection
- body aches and pains from lowering pred
- For those with kidney problems
- Social Security Disability!
- Sangye you would have been proud if me :)
- Alternative Therapies
- immunizations
- My daughter
- Can our drugs and disease cause our cholestrol to climb up out of control?
- S.O.B. story
- What lab results are most important to follow?
- ANCA Test
- ughh...i hate being sick
- onatreetop5 update
- Infection?
- Im back.....in a good way
- Heart & breathing problems
- Sleep Study DONE
- To all US WEGGIES
- Sanyge
- Sinus problems...Here we go again!
- Kidney biopsy
- Methotrexate side effects - when do they kick in
- imuran
- Josh is having Kidney transplant on 12/15
- Kidney problems
- New Research on Cellcept and Long Term Immunosuppression
- Joint Pain
- A few questions!
- A Weggie Focus Group
- numbers going up?
- Lortab? Dehydration? Stress? Depo-Provera? Back on Bactrim?
- Ear Pain
- Update on Lisa Marie
- Saddle Nose - Surgery in Australia
- worried...
- Research shows it is import. for Weggies not to get sick...
- Interesting Upcoming Study
- Root Canal
- Got Any Questions?
- Need of Wegener's "Level Setting"
- Weggies Statistics
- Closed Angle Glaucoma
- Fevers
- Why I am grateful to have Wegener's
- Wegener's and Bariatric surgery
- Wegener's and disability
- I think I am having a flare
- Admitted to the hospital
- sinus issues
- So what is remission anyway?
- confused
- Cell Phone Allergy
- tooth pain
- Aphthous ulcers?
- Restless Leg Syndrome
- Peripheral neuropathy/mononeuritis multiplex/nerve study
- Spanidin?
- Chimera?
- Wondering
- Vitamin D and Weggies
- Question for those with Kidney Involvement
- Questions about getting Diagnosed
- Mayo Clinic is opening a Vasculitis Center in January, 2011
- How do you get through the day? I could really use some insight.
- Happy New Year
- How long do we have to stay immune suppressed?
- For those with sinus involvement...Post Nasal Drip
- Strange Bump Below Right Rib Cage
- Spleen problems anyone?
- meds to reduse fatigue
- WG and thyroid issues
- New Thinking on bisphosphonates
- Aspergillus infection assoc'd with Rituxin use?
- To travel overseas
- Appointment with Dr U SPeck at Mayo in February
- Couple Questions
- One year on
- Are the leg pains flares??
- A little worried about my treatment
- has anyone tried Neuroveen(homeopathic) for nerve damage
- Remission - when?
- Cataracts
- Im New here "Limited WG"
- At the new Mayo Vaculitis Center
- Resveratrol
- eye pain?
- I have a question about treatment
- How true
- risk of autoimmune diseases.
- Feet
- A Minnesota Gathering?
- Small update on Elena
- Low Dose Steroids To Prevent Further Hearing Loss
- Yippee for me!
- How to use this website
- Agent Orange and Wegener's Granulomatosis
- Granulomatosis Hypophysitis due to Wegener's
- 'Master Switch' for Key Immune Cells in Inflammatory Diseases Discovered
- register at rare disease network
- Post treatment?
- guests
- Weird Things People Say
- Words that helped!
- Which Doctor?
- Question regarding sinus involvement
- Josh's transplant
- Is it in my head??
- Legal Action
- Sad!!
- Blood check
- Wedgie
- Vasculitis Foundation
- Prednisone Acne??
- anca vasculitis website
- Should I be taking estrogen replacement?
- Atrophy of the spleen and WG
- Anyone use Apple cider vinegar and honey for holistic treatment?
- WG Specialist in Southern California
- My Cousin diagnosed with Hypereosinophilic Syndrome
- Input needed
- Pesticides Linked to RA, Lupus Risk
- Online Research Study by VCRC
- I'm so complicated...
- Funding for research on Wegener's disease?
- Sinus problems and confusion? :/
- Metal
- An infectious lung question
- Specialist question
- How many have had intubation or trachetomy as part of their treatment?
- Best news since diagnosis:
- Should I have concerns about possible dental surgery?
- Tracheal stenosis and loss of voice with increased soa
- What is crusting?
- Physical fitness for Weggies
- Roberta
- Lilypony update
- Leading-Edge Research & Strategies for Living with Vasculitis Symposium
- Flare-ups?
- Getting ready for Mayo
- Lung problems
- Psyborg Update
- Update on pwc51
- Hot flushes
- ANAC and tissue sample confirmation
- Joint Pain
- Neti pot question (really gross, sorry)
- Advice for a novice please?
- Just got the go-ahead from Dr. Langford to start Rituximab
- What causes Wegener's Granulomatosis?
- Crusting in the throat
- Cure Together Website
- Ramifications of ICU Treatments
- Having children when diagnosed with WG
- Low Grade Fevers
- Questions for Dr Seo
- Replacement med for Bactrim/Sulpha-based products
- Caregivers
- GP not being fair...
- Just want one good day
- Prednisone and Diabetes
- P-anca positive
- Weather and Weggies
- still undiagnosed and annoyed
- Finally!!!
- Worst things about having Wegener's granulomatosis
- Tour de Cure Tour
- Is The Immunosuppressant Medication You Are Taking Preventing Further Hearing Loss?
- Methotrexate
- random wegners questions of the day...
- Woke up with excruciating earache tonight.
- some more questions
- Cleveland Clinic - advice please
- Update from Mayo
- Saddle Nose
- Update on JanW
- WG & Genetics
- Got my Packet from Mayo
- Methotrexate to induce remission
- Numbness & Tingling... new
- Scared!
- What I have learned from having Wegener's granulomatosis?
- Oh no! Catching my 1st cold!
- Crahsing... Part of the diesease?
- Fluid Retention
- drug strengths?
- How to help someone newly diagnosed and being advised to see a natural doctor
- Liver?????
- Just got word that I'm Rituximab approved!
- I have an adrenal question?
- Nose bleed!!
- Vericose veins
- Update on Chris
- Cleveland Clinic - Vasculitis Foundation Symposium for Patients, Family & Friends
- A Brick Wall During Treatment
- Feeling down
- little family support
- Scared..
- Thinking...is there any famous person with WG?
- Posting from the infusion center - they have WIFI!
- Getting Sick while on Cytoxan
- Remission - woo hoo!
- Journal
- Local Vaculitis Foundation
- Over medicating?
- testicle-concerns
- lungs
- Hemosiderin Laden Macrophages in the lungs - anyone have experience
- Prednisone Side-Effects
- Thought I'd pop in and say hi
- Cataracts and Prednisone
- Research due to a cluster of wegeners diagnosis in South Wales, UK
- Wegener's on House
- Looks like Rituxan is in my future
- Update on Lisa Marie
- Vasculitis Awareness Month Auction Needs Stuff
- What to Expect...
- FDA approves Rituxan for Wegener's, MPA
- 2nd Rtx infusion today - went well
- Anyone from Honolulu with WG?
- new to site
- cytox
- New Name for WG
- Patient Symposium
- Easter in the hospital
- First Symptom
- Maternal Hellps Syndrome
- Differnece between P Anca Vasculitis and Wegners?
- How many years have you lived with Wegners?
- Wbc
- what are they looking for in your nose to diagnose you with Wegners.
- Update on my dad
- Baseline Symptoms?
- Stenosis
- Confused
- Colostrum
- MPO positive