- Mind-Body-Chi
- Should things be getting better
- Wegener's Genetic Study - Looking for people with WG
- Methotrexate
- Back from the urologist appt.
- Ent visit
- Saddle Nose Deformity Surgery
- Kidney Involvement
- What is Sed rate?
- Sleep Apnea
- What To Do If You Can't See A Specialist Right Away
- Cyclophosphamide - Bladder Cancer risk
- Ears
- Rituximab Round Two
- How is remission different from active disease??
- anyone ever had "Nephritic Syndrome".....? ( kidneys)
- Biopsy results
- Telling the Kids
- Kidney Transplant
- Couple Questions - Another one for Jack :)
- Well, it's done
- Advice Needed Please
- Nose Bleeding - Advice
- Test results
- Breathing Problems -- Where's It Coming From?
- sternum pain??
- Methotrexate not working -
- Drinking
- Cut not healing- advice please
- An enlightening day
- blue/grey hand
- Negligence Case
- Getting to Know You
- mdication
- Cytoscopy
- Another week of new info
- Low vitamin B12 ?
- Cost of Rituxan, Wegs & A Brief Rant
- creatinine level
- Hip pain
- This is a thread for those who have not posted recently and want to update
- Ramipril, Atenolol, Perindopril?
- Melatonin?
- exercise
- Eye Exam
- WG and a heavy cold
- Long Term
- almost normal
- Hanging from the treetop
- Wegners and Spring Pollen Allergies
- Anca
- Edmonton Docs?
- Weight Gain
- Blood Clots and Weggies
- Weird Wegs Symptoms
- Sorry if this is a "silly" question
- cant remember !
- Gluten Free Diet
- Neutropenia
- Happy Mothers Day to all
- Travel Vaccinations
- About saddle nose deformity
- How did you feel during your first treatment?
- Side effects of prednisone disappearing
- Wegeners flaring when doing too much question??
- Dying your hair during chemo?
- sinus question (is this suppose to be happening)
- Ritixumab - Side effects!!!
- I don't understand this!
- Where is peachyhuggsgina
- 'Food Matters' Film
- 1st anniversary
- Wegeners disease in Remission.
- wegner's with fibromyalgia?
- dizzy spells
- i need help
- Article on Autoimmune Diseases
- what about coffee?
- MRI vs CT?
- Pml
- Wegs and Ayurveda
- Well Now I've Seen Everything
- blocked tear duct surgery
- Low sodium diet???
- being sick (common cold/virus) with WG
- Anyone had any issues with flying and WG?
- Awkward Situation
- Loss of sensation
- Smoldering But Unfortunately not in remission
- Any Weggies from Mississippi, Northwest Alabama, or West Tennessee out there
- Wegs and Your Heart
- Moon face causes
- Foot Pain
- Question about flare ups
- Poll: What's the Longest You've Been in Remission?
- Depression / Anxiety
- Goodpasture's Syndrome and Wegener's
- What is a trach?
- Any suggestions for tonsillectomy and WG?
- surgery postponed
- Granulomas
- Chest issues....yeeeech
- bloody nose bleeds
- Organ Donor cards & WG
- Has anyone been hennaing their hair?
- How do you know when you need dialysis ?
- surgery back on
- Lessons Learned
- Muscle atrophy
- Snooz, It's Your Birthday! How are you?
- Article on Weight Gain Due to Medical Reasons
- it's a small world.
- Any experience with cervical (neck) lymph node resection?
- Hives???
- Anyone with WG of the eyes...
- Need information on heart involvement and WG
- When Did Your Wegener's Begin?
- just a quick question....
- Increased heart rate while on pred?
- Coughing
- Researcher to study mysterious diseases.....
- Visualization and Wegs
- Salt baths and WG
- Heart rate question??
- Bruises?
- Nasal Crusts (Picture)
- Happy Birthday Phil
- Does hearing ever recover?
- When adrenal glands shut down..
- About empathy..
- possible wegs...not being treated at the moment :(
- TB and Wegeners
- Saw the immunologist today
- Big appointment today
- Spoke with my Mayo doc
- Sangye's Still Alive
- Swimmer's ear or flare?
- Anti inflammatory meds
- Just Diagnosed
- Questions from the new kid in the sandbox
- Wegener's and work.
- How many of you??
- skin nodules or lumps on body
- Effect of Seasons on Wegs Onset/ Flares
- yes another question
- How many here also have diabetes?
- New Symptom?
- Alochol
- Work- Related question..
- Help- the flu!!!
- Arthritic symptoms with WG?
- What kind of adjustment did you attain after diagnosis and initial treatment?
- blurry vision
- Wishing you peacefulness today--
- Is there a person...
- Life insurance??
- glad i speak a little german
- Hope Everyone is Well :)
- Leucocytes High - is it of concern?
- Genetic Predisposition
- bbq day
- Cramps in hands and legs?
- Excercise Question
- Vasculitis Symposium - Do You Guys Questions
- back to the balloon again
- Your opinions on this
- s o s talisman braclet
- What the Newly-Diagnosed Need to Know
- Making physician's more aware of wegener's
- How many have required intubation as part of treatment for WG?
- In CT
- "I Don't Know" - Notes from the VF Symposium
- Register with the Vasculitis Clinical Research Consortium
- Interesting Article on Root of Autoimmune Disease
- Going to a Major Center For a Second (or First) Opinion
- help weird things are happening
- how to make a bad day feel worst
- Pregnancy
- Bloody nose
- Josh's transplant
- I hope this isn't a flare!
- Another Newbie Question
- Looking for input.....
- Autoimmune inner ear
- Double Hip Replacement
- Methotrexate vs. Imuran
- Tear duct obstruction..bloody nose..severe headaches..
- Here goes... my crazy idea
- casualty - bbc1 sat night - did any of the uk'ers see it
- can't find it
- Pamphlet design for the newly diagnosed - what should be in there
- What are your thoughts on this?
- post your links to downloadable information sheets on WG here
- WG/Vasculitis - UK Charity
- Question for the ladies
- sleeping problems
- Question About Hearing
- Eye Pain????
- Thin Skin
- Don't know what's going on!
- Cytoxan and Mesna and some other things that might help
- Just had my bronchosopy
- Where are Katwoman and Timbo Vic Aust?
- Could this be WG?
- Your veins / IV Access
- Anybody 21 or younger with Wegners on here.
- Weggies & Work
- Question on Submandibular Glands
- Just need to vent
- Weird Finger Symptom
- Update on Natalie
- Need Sleepy!!
- Good Morning America
- Update on Tracey
- New Book from someone living with WG
- Flare?
- Hello
- Preds not helping this time
- A new WG study for those in larger centres
- Finally some light and maybe an end to the tunnel.
- Idiot
- Bronchoscopy
- Visiting the dentist
- Left or Right Handed?
- Bags under my eyes
- What wegs took away but I will get back
- Vasculitic Rash
- Question
- Totally Weird But True
- Croaky throat
- Cancer worry
- Bilateral cramps in the arches of my feet??????
- Feeling sick all the time (but not throwing up)
- What are main causes of edema after getting Wegener's disease?
- What causes problems with balance and walking,especially on stairs?
- pain int the tip of nose
- anybody use Bacroban/Mupirocin in your irrigation solution?
- elevated resistive indices on kidney ultrasound
- Wegeners and Chicken Pox
- Heel Pain
- Help me make a t-shirt decision
- Nose biopsy, I'm nervous!
- MRSA and Streptococcus Pneumoniae
- T-shirts and other Weggie goodies are available for purchase on-line
- Weird Skin " Bites"
- Organ and tissue donation???
- Bursitis
- Remission!
- How to get a "healthy" energy boost?