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- Joints, Hot/Clammy, Headache
- Sinus involvement but supposed to be in remission......??
- Memory loss/ forgetfulness
- Nosebleeds
- VA and the health care system!
- Forehead question and progress report.
- New member
- Hearing loss
- Grain-Free Cooking
- One good thing Wegener's has brought into my life...
- Azathioprine (Immuran): Do you take it? Would like to get off, but doc says no!
- Wegners and thyroid
- Soft Palate involvement.
- Folate, and an add on to a recent post...
- Ears - blockage??
- Got A Hernia (Groin)
- lab frequency in remission
- If anyone has had saddle nose surgery, what is recovery like?
- In need of support
- Birdie, Deb, everyone... would really appreciate your thoughts?
- C-ANCA LEVEL AT 16 - high/low?
- Elizabethkingia
- is this a sinus flare op?
- Understanding Lung functions test - posting for Gwen
- Feel worse after treatment?
- Be PERSISTENT when you are in the right!!
- bone anchored hearing aids
- Just FYI: Tried a Capsaicin Cream For Foot Neuropathy:
- Limited Weggener's ? and labs
- White blood cells
- Vasculitis Foundation Canada
- Teeth Sensitivity
- Diet & suppliments
- Need some love from my fellow Weggies (& advice!)
- Churg-Strauss Syndrome Vs. Wegener's Granulomatosis
- Groundglass in lungs
- Need some input....
- Fever
- Aza and Rituxan.
- Has anyone else had a bad reaction to rituxan?
- Coughing up very small white gel stuff from lungs.
- MGH Visit
- on my way to rheumatologist, anxious for sure!
- Guess Who?
- Still don't know
- Rituximab co-pay programs
- Losing the bridge of my nose
- Carrie's Success
- Vasculitis Foundation - VF Red Award
- High neutrophils, very low lymphocytes ?
- Flareup
- We all need to be aware of this and do our part to try promote it.
- Vision/Optic Nerve Question
- So frustruated- negative biospy
- My heart..
- Another hosp screw up !!!!!!!
- Does saddle nose reconstruction surgery actually help with breathing?
- We've been published Weggies - Congrats to you/us all
- Eye lid ulcerations.. Wegs? RTX? Steroids?
- Sinus Cleansing (Neti Pot/Squeeze Bottles) - Bad Experiences?
- Best Bed??
- Good news from my Dr appointment
- Getting Closer
- Prescription Painkillers and Kidney Damage - Do you know of an ok one to take?
- 2016 Vasculitis Awareness Video
- Newby
- Treatment plan
- Mouth issues
- Sed. Rate
- newly published article re: MTX and alcohol
- How long does it take Wegener's to
- How Do YOU Think You Got Wegs (No answer is wrong) And ...
- Limited GPA
- Another foot fracture! ARRGH!!!!
- Bowel involvement (this really is a $#!t topic)
- Hello New to site looking for info
- In the hospital again!!!
- Immno-Therapy vs Traditional Cancer Treatments - Would You?
- Mayo Clinic
- Its been a long time !
- Good news
- Surgery again lucky me!
- First biopsy
- My turn to Flare
- First Rituxan treatment
- Just want to say hi :)
- Medical Travel For Vasculitis
- Yoga and WG
- Lab frequency
- Do You Have Kidney Disease? Question:
- Blood Thinners
- Cure for prednisone skin spots
- Update: Another year with Wegeners Granulomatosis
- Going back to work
- Need advice
- Meniere's Desease, PKD, and Wegener's
- Vitamines in IV or injection ??
- Biopsy update
- Flair but normal SED/CRP?
- Just an update
- Ocean Air - Sinus and Lung Effects
- Foot agony, related or no?
- Best Treatment/Dr?
- Crohn's Disease coexisting with WGP
- new labs once diagnosed?
- Cleveland Clinic - Outrage FINALLY resolved!
- Dialysis
- Good news for a change
- Partners bio bank
- partial nephrectomy vs embolism for angiomyolipoma
- Factors Determining the Clinical Utility of Serial Measurements of ANCA Targeting Pro
- Six years ago today, 9/02/2010, diagnosed and treated for Wegener's Granulomatosis
- Mayo Clinic Fundraising Email
- Concerned newbie
- Social Security Disability Fight
- Wegener's GPA pediatric trial
- Creatinine level
- Fighting off sicknesses after rituxan
- ???? Don't know what going on with me
- Saddle nose developing?
- My Story - MikeG2012 in an ad campaign
- A New Beginning
- Flu Vaccine
- Anyone treated with Lovenox shots for DVT and PE?
- Need some advice- recent doctor visit- confused!!!
- Throat Ulcers?
- Is it possible to relapse without nose issues?
- Water Quality?
- Kidney involvement question
- Dental Implants
- Electromyogram
- Cateract surgery
- Neuropathy & Capsaicin Cream Question:
- Weird itchiness/burning sensations
- Funny question
- Pain Medication? It really hurts and I can't sleep.
- Back Pain; could it be kidney involvement?
- So much for feeling good, starting methotrexate on Saturday
- Blood Type Poll
- Just Wondering...Red Spots
- Prednisone & Acne
- Prednisone required? And new "symptom"(?) - light sensitivity
- Immunoglobulin testing
- Travel Insurance for Pre-Existing Condition
- Facial neuropathy or prednisone side effects
- A small victory
- Trouble Breathing
- Allergies?
- How to tell if dietary changes are effective
- Needing to vent
- Protein Chemistry - C3 and C4
- Question About High Temps & Illnesses
- Need your help... research questionnaire
- New symptom? Onycholysis?
- I start treatment for WG on Wednesday
- Bowel Flare
- Mtx and dental extraction
- My Sis Has Stage 3 Uterine Cancer - Any Experiences?
- Older Wegener's patients
- Lots of pain
- Vit. B-12 toxicity
- I'm getting my 19th RTX infusion tomorrow!
- Imuran
- Help Needed
- Where is everyone?
- Does anyone get these short head colds that last a few hours and go away
- Conductive autonomic nerve damage
- I'm starting to get worried :(
- Traveling with Meds
- Merry christmas to all
- Post on behalf of Sperez7
- On the hunt for a 2nd AI
- Deteriorating vision ?
- New to WG
- Not feeling well - flare?
- Odd test results
- Understanding this test
- Off to the Neurologist
- Feeling Lost
- Ideas to help with respiratory issues
- Leash getting longer
- abnormal PR3 and c- ANKA
- 2017 Vasculitis Symposium
- ADHD Moment
- Chiropractic
- Streptococcus viridan UTI
- Stem Cells for the Cure?
- Jaw Pain anyone?
- Student struggles for her life and overcomes with a nursing degree
- Thyroid issues
- Doctors in Charleston, Seattle, and Chicago
- Odd Test Result
- Hi all!
- stress
- nose surgery
- sadness
- Vagus Nerve and Inflammatory Response.
- PR-3 always negative?
- Sick & Tired
- Granuloma Annulare
- CD19 B Cells & Absolute CD19
- Wegener's and hyperparathyroidism
- Help
- Having Each Other
- Acceptance
- A young man with GPA who needs assistance
- Big thanks to Scott who is doing maximum to help me
- Elevated C4a
- Is there any corelation between Wegeners/GPA and Cardiac?
- Forteo & Pred induced Osteoporosis
- Elevated pANCA only = Wegs or something else?
- Fatigue and Rituxan
- Big hugs
- 3 years in remission
- Just when you thought you had it bad....
- Has anyone had something to wrong with your liver?
- Question about ANCA Scores
- 5 Long Years
- for those whose onset was sinus-related
- Confirmed Diagnosis
- Chronic atelectasis or stable scarring
- Glucocorticoid avoidance...unmet needs in management of GPA
- Seven years ago today I had a lung resection
- Allergies?
- Awareness Month
- pediatric / adolescent Wegener's
- last mtx
- Drug free remission
- Tennis Elbow - Have You Had It?
- Scott Valen my hero friend.
- Longevity with GPA
- not myself
- My GPA Cure and journey, need help
- Anyone have the same lung problem?
- Has anyone been diagnosed with GPA and later found they had EGPA?
- MikeG-2012 - Checking In!
- As seen at VF Symposium!
- New!!
- Chronic illness - another perspective
- Follow up of my stomach issues
- Cellcept
- Swollen ankles
- together we are strong.
- Feeling Cold/Chilled Frequently
- Prednisone, Weight-Gain/W-Reduction, Your Experience?
- Sore red eye or inflammation question? Can this be GPA related?
- What is going on?
- My Granulomaversary
- Bride raises awareness for Vasculitis
- Wegeners and Kidneys
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