New Member Introductions And Stories [Archive] - Wegener's Granulomatosis Disease GPA Support Forum

New Member From Pittsburgh (2 replies)
New member with long history (4 replies)
Newbie here feels like all they can think about is this diagnosi? (4 replies)
Newly diagnosed in Indiana (2 replies)
One Year After Diagnosis (2 replies)
New Member (3 replies)
Newly Diagnosed (3 replies)
Newly Diagnosed (0 replies)
Mum recently diagnosed with GPA This is my first post and I would love some advice! (5 replies)
New here. Diagnosed Feb 2017 (1 replies)
New diagnosis in Dec 2022 (6 replies)
New here, and new to GPA (4 replies)
New here! Questions about possible GPA (6 replies)
Newly Diagnosed (6 replies)
Hello from new member (6 replies)
Hi I'm Arlene and I'm new here! (17 replies)
This is my first post (0 replies)
New Member : Husband Diagnosed in January (0 replies)
New Member : Husband Diagnosed in January (1 replies)
Most Likely Diagnosis is WG/GPA (2 replies)
Greetings Everyone! (2 replies)
Hello everyone! Diagnosed with Wegeners in my early 20s (5 replies)
Hello everyone! I’m a Wegener’s patient diagnosed in my early 20s (2 replies)
Y’all settle in and I’ll make this quick… hopefully (8 replies)
Diagnosed August 2020 - New to WG (3 replies)
Bloods Negative, doctor doesn’t want to do nasal biopsy. (3 replies)
Hello. I’m new. No diagnosis yet. (2 replies)
First post - diagnosed in 2012 (3 replies)
I am a new member & fairly newly diagnosed (9 replies)
Gave Up on Facebook Groups (15 replies)
Hello there. (5 replies)
New Here - Possible GPA with Nasal involvement (23 replies)
Dagnosed in two weeks (2 replies)
New User with no diagnosis. Looking for advice. (13 replies)
New Member diagnosed in 2017 (3 replies)
New member diagnosed in January 2020 (8 replies)
G'day Mate.. From Australia,Land down under (7 replies)
One year in, greetings from Australia (8 replies)
New Member from Indiana (11 replies)
New Member ~ Phoenix, Az (14 replies)
New member from Canada (3 replies)
Diagnosed with GPA in Bonn - Germany (8 replies)
Introducing myself (2 replies)
GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropathy. (12 replies)
Recent diagnosis and new to site (6 replies)
Recently diagnosed with GPA (6 replies)
Thankful to find this forum (12 replies)
Speak Up Newbies (1 replies)
Welcome new members!! (4 replies)
New to Wegener's, new to the forum (7 replies)
Diagnosed yesterday (12 replies)
New to forum, not new to GPA (7 replies)
My story... (7 replies)
New Here - Dx question (8 replies)
Feels like a flare, but normal labs. (1 replies)
Here I go (8 replies)
Not a diagnosis I expected (8 replies)
Prune fingers (2 replies)
Outlook on recent diagnosis with lung complications (2 replies)
Possible Wagner's but still in limbo (15 replies)
Diagnosed a year and a half ago (1 replies)
How many got the Wegners or GPA Dx without a bx? (8 replies)
Recent Diagnosis (11 replies)
Trying to figure it all out. (10 replies)
Newly Diagnosed (10 replies)
Recently diagnosed (3 replies)
Journey to being diagnosed, treated, and already first flare up (13 replies)
Split decision on diagnosis (6 replies)
My journey so far (3 replies)
New, in Palm Springs (10 replies)
Mal Brown. Diagnosed 10 years ago but new to the forum (3 replies)
new (3 replies)
In process of being diagnosed (14 replies)
In process of diagnosis (4 replies)
Hello from Shawny (14 replies)
Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure (15 replies)
Reply to Lena (1 replies)
Lena's story (1 replies)
Lena's story (12 replies)
My GPA story (7 replies)
Wegeners/GPA for 41 years - Transplant for 25 - Having a Relapse (19 replies)
17 Year Old Daughter (4 replies)
Newly Diagnosed (26 replies)
New here, being diagnosed (3 replies)
Mags (7 replies)
Help (8 replies)
Hello from another new member (12 replies)
ear issues with Wegener's (4 replies)
Just diagnosed from Queensland Australia (23 replies)
Hi everyone (6 replies)
Second Opinion (16 replies)
Diagnosed December 2018 (8 replies)
Newly dx 11/28/18 and scared! (10 replies)
Origin Story (5 replies)
5 months - DX/treated/ & in remission :) (7 replies)
Just Diagnosed 13/12/18. (10 replies)
Will be seeing my doctor to if I have Wegeners (8 replies)
New Member - Newly Diagnosed (7 replies)
New Member - two decades of patient experience (9 replies)
Newly diagnosed and scared (22 replies)
Finally confirmed (5 replies)
13yr daughter has Wegeners (10 replies)
Curious...how many members work with this illness (12 replies)
I need some advice (9 replies)
GPA diagnosis very recently confirmed (7 replies)
New Memeber (6 replies)
Wegeners veteran (at 22 y/0) (3 replies)
Newly diagnosed (15 replies)
New to Wegener world (23 replies)
New member. 57 years old. expecting the best (7 replies)
New Weggie (13 replies)
Newly diagnosed-happy to be here! (9 replies)
New gal with kidney question (7 replies)
Old member have nit been on in a while thought I would update everyone and say Hi!! (2 replies)
Looking for recommendations (3 replies)
Diagnosed in Dec 2017, just now getting around to saying hello (10 replies)
I love someone with Wegeners (15 replies)
Newbie to forum (4 replies)
some gpa symptoms- ENT advice (10 replies)
I might have Wegeners or not... (11 replies)
Recent diagnosis as a "weggie" (8 replies)
Hello! Freshly diagnosed, New to the Forum, Here’s My Story. (13 replies)
Diagnosed when I was 15 (5 replies)
Thank you & My Story (3 replies)
HELP! My nose (2 replies)
Six months in and just taken off Predisone. Retuzin infusions every six months. (4 replies)
Worried WG veteran in Texas (6 replies)
Merry Christmas! (2 replies)
Hello! new member but have had WG for a long time! (4 replies)
Northwest Louisiana (4 replies)
Hospitalized currently praying for a miracle (37 replies)
I'm hellojulie and this is My Story (8 replies)
My introduction (20 replies)
My Introduction & Story (17 replies)
New member. Newly diagnosed. (10 replies)
Hello! Just joined the support group a few days ago. Here is my story (8 replies)
New Introduction (5 replies)
Newbie Introduction (13 replies)
Introduction and Story (7 replies)
new weggie (2 replies)
Newbie :) (7 replies)
I was officially diagnosed today with GPA (17 replies)
Living with Wegeners for 20 years (5 replies)
My story and intro (8 replies)
Wow! (9 replies)
29 years survivor of WG; 11 years survivor of bladder cancer (15 replies)
Results of Univ. of Penn visit (27 replies)
New Member (15 replies)
New Diagnosis (14 replies)
New Zealand (6 replies)
Confused with pANCA test and doc recommendations (35 replies)
Brand new and still shiny? Nop I'm old and wrinkled (15 replies)
Newly Diagnosed (2 replies)
Dianosged November 2015 (25yrs old) Sinus (4 replies)
WG Diagnosed in 2002 (1 replies)
Hello, newbie recently diagnosed with GPA (11 replies)
After Hemoptysis for 2.5 years I finally got my diagnoses .... (5 replies)
Mother of 13 year old daughter diagnosed with GPA in August (17 replies)
New to forum, not new to Wegners (31 replies)
New Dx looking for information and perhaps comfort. (9 replies)
Thanks for letting me join this forum (11 replies)
15 year old diagnosed. (7 replies)
First post (20 replies)
Chills and pain- new symptom? (3 replies)
Newly Diagnosed Prednisone Hater (1 replies)
Diagnosed 11-year-old (31 replies)
New to the group (14 replies)
Intro, not so much newbie. (4 replies)
15 year old daughter diagnosed 10 months ago (5 replies)
Hello! :) (20 replies)
Nasal Wegeners diagnosed in August 2013 . Losing confidence in the recent past. (36 replies)
Confused.. Can anyone help? (4 replies)
10yr old daughter possibly has GPA (7 replies)
New Member: Wegener's GPA Diagnosis 2016 & Lung CA 2014 (11 replies)
Scared Mom of WegGPA and widow of PAN (8 replies)
It is good to know... (37 replies)
Almost big OOPS, I think (7 replies)
Reasonable precautions to take to prevent infections when immunosuppressed. (1 replies)
Hello! And thank you to all! (7 replies)
much of a pain in the butt does one have to be? (7 replies)
Question about targeting B cells (4 replies)
Hi there! (6 replies)
Suddenly joint pain (6 replies)
Supplements, medicine questions (4 replies)
Medical bracelet (Prednisone) question (11 replies)
Newbie question (7 replies)
29 year old almost died out of nowhere (21 replies)
Me too - New GPA diagnosis. High Anca titer (107 replies)
Intro (9 replies)
Hello.. Bloody Nose (15 replies)
thanks (3 replies)
New and confused (14 replies)
25 years old, diagnosed with GPA (22 replies)
Recently diagnosed (15 replies)
New member looking for info c-anca+ Pr3+ (5 replies)
Pacific Northwest Newbie - long story (7 replies)
My Big Sister's Story by Her Little Sister (17 replies)
New Member Bio (10 replies)
Wegs Doc needed, headed to to Cleveland (1 replies)
New member to the group (29 replies)
Me again😏 (25 replies)
My Story (10 replies)
Hello -- Looking for Info (10 replies)
Hello from New Zealand (4 replies)
Stress and WG (9 replies)
Hello, I am new here. (3 replies)
Me Too! (11 replies)
hello from new member (13 replies)
Newly diagnosed -or not sure what is going on. (13 replies)
Change of Meds (4 replies)
My Wegener's Intro (6 replies)
Hello (18 replies)
Hi From Oz (140 replies)
New to fourm- just wanted to talk (21 replies)
After a three year journey, I've come home for good. (39 replies)
Still accepting new members? (17 replies)
Warning.... morbid post (13 replies)
Presentation with Vision loss (16 replies)
New to group, diagnosed 11-22-15 (19 replies)
New to the forum (8 replies)
Newly Diagnosed (18 replies)
November 2015 - new diagnosis (67 replies)
heart breaking story, posting for a friend. can we help her ? please ? (1841 replies)
20 year old son (233 replies)
Hello!!! I was diagnosed in 1994.... (8 replies)
Just took my first dose of MTX, scared out of my mind about side effects (24 replies)
Hello from Ontario, Canada (11 replies)
Long time Survivor, and now it's coming back (10 replies)
Katie's story (7 replies)
New Member Here! (21 replies)
SpaceflightAddict Checking in: Two years with Wegener's. (15 replies)
WTC First Responder and my first post (64 replies)
new to forum (8 replies)
Symptoms: Taper off Steroids (26 replies)
Infomation regarding saddle nose formation (39 replies)
New Member... possibly. In need of an expert in the field. (85 replies)
New Member Introduction 😉 (24 replies)
Pain in legs (6 replies)
New Member Intro (8 replies)
introduction (7 replies)
New Member Introduction (12 replies)
Epstein-Barr titers (2 replies)
Help regarding diagnosis?? (14 replies)
Has anyone ever heard? (67 replies)
Today marks five years of treatment (8 replies)
It feels nice to share: (24 replies)
On the bright side ... (6 replies)
Here I go again (4 replies)
Hope you can help me out (6 replies)
I don't know what to do (12 replies)