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  • Dorothea's Avatar
    Today, 08:03 AM
    Good luck to you too!! I will be getting Retuxin every 6 months. I hope all is fine with you now! Be safe!! Sent from my XT1650 using Tapatalk
    6 replies | 52 view(s)
  • me2's Avatar
    Today, 08:00 AM
    me2 replied to a thread Lung Flare in Face to Face Support Groups
    When I first had WG it was over 40 years ago. Joints, sinus , kidneys etc- but NO lung involvement. I was in the hospital for several weeks waiting...
    6 replies | 52 view(s)
  • Dorothea's Avatar
    Today, 06:13 AM
    This time Wegeners didn't go after my kidneys, they do believe it is Wegeners. I was supposed to start Retuxin treatments before this happened, that...
    6 replies | 52 view(s)
  • drz's Avatar
    Today, 06:05 AM
    drz replied to a thread Lung Flare in Face to Face Support Groups
    If the Wagner's attacks your lungs then coughing up blood can occur. It can make breathing very difficult too. There are other medical issues that...
    6 replies | 52 view(s)
  • Dorothea's Avatar
    Today, 06:01 AM
    Thank you for your response! Have a Happy 4Th!! Sent from my XT1650 using Tapatalk
    6 replies | 52 view(s)
  • me2's Avatar
    Today, 05:44 AM
    me2 replied to a thread Lung Flare in Face to Face Support Groups
    A lot of people like to get away for the holidays- but not like this! It sounds like they are giving you a good work up and hopefully get things...
    6 replies | 52 view(s)
  • Dorothea's Avatar
    Yesterday, 11:48 PM
    I'm in the hospital, Thursday morning I coughed up blood. Dr. sent me in for blood work and a cat scan. I was admitted and had another procedure...
    6 replies | 52 view(s)
  • Pete's Avatar
    Yesterday, 12:56 PM
    Pete replied to a thread Coronavirus and GPA in General WG Chat
    I had to go to the ER this past Sunday evening. I had fallen off a low step stool on Friday and glanced off a drain pipe on the way down. I think I...
    130 replies | 6695 view(s)
  • Masha's Avatar
    Yesterday, 11:11 AM
    Masha replied to a thread Coronavirus and GPA in General WG Chat
    I got to meet my new rheumatologist yesterday. Hooray. I really like her. Sorry to see my Duke doctor retire, but with the virus threat the timing...
    130 replies | 6695 view(s)
  • seied's Avatar
    06-29-2020, 06:04 PM
    My last rheumi visit I had was in person. It's a busy practice with many doctors on staff. I asked my doctor if their office had any of their...
    6 replies | 102 view(s)
  • Keith's Avatar
    06-28-2020, 11:29 PM
    Keith replied to a thread Coronavirus and GPA in General WG Chat
    Itís crazy how the mask issue is so political. The economy has a large influence on election outcome, so too many folks are in denial about...
    130 replies | 6695 view(s)
  • andrew's Avatar
    06-28-2020, 01:08 PM
    Pete Wow sorry to read about those spikes in cases. I hope it's temporary. Great that you can get outside though! I've seen what happens elsewhere...
    6 replies | 102 view(s)
  • andrew's Avatar
    06-28-2020, 01:05 PM
    Haha yeap saw that one about the pigs. Nature takes over :lol: Link for you: https://www.abc.net.au/life/how-to-cook-and-enjoy-kangaroo/10408336
    6 replies | 102 view(s)
  • Susan Jean's Avatar
    06-28-2020, 08:42 AM
    Welcome! Glad you found us. :rolleyes1:
    1 replies | 88 view(s)
  • Pete's Avatar
    06-28-2020, 12:43 AM
    Itís been kinda quiet in my part of the world. Ohio has opened up too much and too fast, and we have big spike in new cases as a result. Iím sure the...
    6 replies | 102 view(s)
  • Alysia's Avatar
    06-27-2020, 11:35 PM
    Hi :smile1: Kangaroos sounds so lovely to have around.... (I hope you don't really eat them @andrew ? They are not Kosher and are too cute) ...
    6 replies | 102 view(s)
  • andrew's Avatar
    06-27-2020, 08:12 PM
    andrew replied to a thread Dexamethasone in Medication
    Way to go on the Pred reduction :hug3: Just been reading about Avacopan. Looks positive!
    1 replies | 45 view(s)
  • andrew's Avatar
    06-27-2020, 08:10 PM
    Hey! Yeah we have a lot of Kangaroos. They're a pest. There's a cull happening locally here soon which will be great although I must say I haven't...
    6 replies | 102 view(s)
  • Masha's Avatar
    06-27-2020, 03:00 PM
    I miss hearing from all of you. Does everyone have lock down fever? These are certainly challenging times, but we must try to keep our spirits up....
    6 replies | 102 view(s)
  • Masha's Avatar
    06-27-2020, 02:28 PM
    Masha started a thread Dexamethasone in Medication
    As a side note to this drug they are using to treat covid-19 patients, I must add my late brother in law was on this in the late 60ís early 70ís. ...
    1 replies | 45 view(s)
  • RiverJoy's Avatar
    06-27-2020, 10:43 AM
    Yup...I cut my own too! I think I'll be continuing with this $65 savings in the future! It didn't turn out bad! lol! On a side note...(I was just...
    12 replies | 259 view(s)
  • chrisTIn@'s Avatar
    06-23-2020, 12:54 AM
    It is now almost three weeks later then when you wrote this message, Pete. I also went to see the hairdresser last week. For the first time since...
    12 replies | 259 view(s)
  • annekat's Avatar
    06-21-2020, 03:02 PM
    Alysia, I put a Like because I'm glad to hear from you and that you got your RTX and it's starting to help. The same thing is happening in our...
    130 replies | 6695 view(s)
  • Pete's Avatar
    06-18-2020, 09:04 AM
    Pete replied to a thread Coronavirus and GPA in General WG Chat
    Glad to hear youíre on the mend. Hope it continues. It seems Israelís politics are as messed up as ours in the USA...
    130 replies | 6695 view(s)
  • me2's Avatar
    06-18-2020, 07:28 AM
    me2 replied to a thread Haircut in Random Off-Topic Discussion
    Alysia, you have picked up a new skill during the pandemic. Good for you. I think cutting hair is kind of fun as a hobby.
    12 replies | 259 view(s)
  • Pete's Avatar
    06-18-2020, 06:07 AM
    Pete replied to a thread Haircut in Random Off-Topic Discussion
    @Alysia There’s an old saying that the difference between a bad haircut and a good one is about two weeks. Glad to hear your cosmetology skills...
    12 replies | 259 view(s)
  • Alysia's Avatar
    06-18-2020, 05:15 AM
    Alysia replied to a thread Haircut in Random Off-Topic Discussion
    When the pandemic started we bought a haircut machine. After the first haircut that I did for my 2 sons they didn't want to talk with me :thumbdn:...
    12 replies | 259 view(s)
  • Alysia's Avatar
    06-18-2020, 05:08 AM
    Alysia replied to a thread Coronavirus and GPA in General WG Chat
    Hello, my friends, I've missed you and I love you. Sorry for not writing earlier. I've being too sick with red bloody eyes so it was not easy...
    130 replies | 6695 view(s)
  • Pete's Avatar
    06-17-2020, 10:48 PM
    Pete replied to a thread Coronavirus and GPA in General WG Chat
    richard052018 Where did you get your mosr recent infusion? Iím going to Cleveland in September.
    130 replies | 6695 view(s)
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