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  • Leeski's Avatar
    Today, 12:56 AM
    Andrew, Thank you for the warm welcome. But in the immortal words of Groucho Marx... "I don't want to belong to any club that would accept me as...
    2 replies | 34 view(s)
  • andrew's Avatar
    Yesterday, 07:40 PM
    Hi Lisa Welcome to the club :) Renal involvement is a concern particularly when you have one kidney so I hope you have a WG-experienced renal...
    2 replies | 34 view(s)
  • Leeski's Avatar
    Yesterday, 01:08 PM
    My symptoms started in Aug 2019 with urticarial vasculitis and chondritis of the ear. PCP ordered blood work and discovered I was ANCA positive....
    2 replies | 34 view(s)
  • Masha's Avatar
    12-04-2019, 12:07 PM
    Masha replied to a thread just starting meds in Medication
    Hi Brad, Your fear of this disease is normal. If you had a devil may care attitude then something would really be wrong. The most frightening...
    7 replies | 154 view(s)
  • Don2000's Avatar
    12-04-2019, 09:13 AM
    Thanks so much Pete! I'll be seeing my doctor on Tuesday so I'll ask her then if I shouldn't be on some prednisone, and see if she can check on...
    2 replies | 36 view(s)
  • Pete's Avatar
    12-04-2019, 07:39 AM
    Pete replied to a thread Flare up? in Face to Face Support Groups
    Donna, It sounds like a flare to me. While we'd all like to be pred free, sometimes it takes a long time to get there. If you can't get rituximab...
    2 replies | 36 view(s)
  • Don2000's Avatar
    12-04-2019, 04:42 AM
    Hello, I'm wondering if I'm truly in remission or not (or having a flare up).... I introduced myself last week. I completed rituxan IV (2 doses in...
    2 replies | 36 view(s)
  • annekat's Avatar
    12-03-2019, 02:26 PM
    annekat replied to a thread just starting meds in Medication
    Brad, my first symptom was a severe antibiotic resistant ear infection in both ears. That is a pretty common one among those with sinus involvement,...
    7 replies | 154 view(s)
  • Bradhunter's Avatar
    12-03-2019, 04:38 AM
    Bradhunter replied to a thread just starting meds in Medication
    Thank you Marsha for all of that. Whom do you see at Duke? I will probably do the same to avoid the stress of travel. This whole thing has me spooked...
    7 replies | 154 view(s)
  • Masha's Avatar
    12-02-2019, 12:20 PM
    Masha replied to a thread just starting meds in Medication
    Hi Brad, Even though we are only a few hours away from Duke, my husband, dogs and I drive up the night before, not knowing what kind of traffic we...
    7 replies | 154 view(s)
  • annekat's Avatar
    12-01-2019, 02:26 PM
    I'm sorry to have missed this thread earlier somehow. Karen, how patient you have been on the long road towards a diagnosis. It's true that not all...
    3 replies | 227 view(s)
  • Bradhunter's Avatar
    12-01-2019, 01:28 PM
    Bradhunter replied to a thread just starting meds in Medication
    Thank you Pete and Ann. I will keep you posted on progress and the Duke experience. Hope both are doing well and enjoy the holidays. BB
    7 replies | 154 view(s)
  • Mnjet's Avatar
    12-01-2019, 08:36 AM
    Mnjet replied to a thread Avacopan in Medication
    Thanks for the article Pete! Very exciting news for us!
    3 replies | 91 view(s)
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