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Anne, A belated very happy birthday wish. Sounds like you had a very blue day. Are the blueberries in your area large and sweet? Whether we...

Thanks, Pete! That means a lot to me. I hope your health issues are leveling out in a favorable way and things can get back to something like normal...

Thank you so much, Alysia, for the special birthday wishes! The song and video are so cute, I will try to save them for another person's birthday. My...

Happy Birthday Anne! Hope you have a great day and a year of good health.

Happy Birthday annekat and thanks for being with us all the way, sharing your wisdom and experience, being such a sweet and kind friend. We love you...

Hi AlysiaThank you for your reply. I am feeling a bit better after 3 weeks of insomnia. I have let the clinic know about the side effects. This was...

Gliders, Congratulations on the graduation of your son! I’m so pleased there is finally some good news for you. I still think of you every day! ...

Masha Cathy is on the mend. Her liver enzymes are getting close to normal. She’s feeling better every day and getting her energy back. My flare...

Geez-O-Pete! You guys got hit with a double whammy. Stress is hard on GPA, sometimes it just can’t be avoided. Moving is brutal, but at least now...

I wishing you both the best for getting things calmed down.

Good News my friend, keep up the good work!!!:thumbup:

Sorry about the flare Pete and about your wife's disease. Stress is a triger for flares. Sending prayers for both of you. Please update us.

We sold our house and bought a smaller condo in May. We moved in late June. Cathy went into the hospital on July 3, and was diagnosed with autoimmune...

Thanks Pete. It has taken me 2 months to get down 1 1/2 mg without a flare. Any faster and I will be back where I started. Sorry to hear you are...

That is wonderful news, Pete! I'm looking forward to more excellent results posted in the future. Sent from my MotoE2(4G-LTE) using Tapatalk

gilders Great news, Pete. Hoping the progress continues.

Hi Kim, Glad the RTX infusion went well, especially after slowing it down and giving you a different antihistamine. I think you're correct with the...

Latest blood results were really good. Kidney function has risen 2% to 38%. From mid April I had constant declining kidney function for 3 months and...

It’s post #1 in this thread. https://www.wegeners-granulomatosis.com/forum/threads/5835-Pred-Taper-Completed?highlight=Prednisone+taper+Pete ...

My situation was similar to GoldenJen....it was the prednisone that caused my hair to become brittle and break....I feel like I lost about half my...

It is great to read about people surviving decades of GPA even when the treatment was not as refined as it is today. This should be reassuring for...

Hi Gilders, Congratulations on your transplant and thanks for the note! In the beginning the antirejection drug doses are always high and they take...

I'll be looking forward to hearing how your infusion goes. I usually take my computer to play around on because it takes so long. I think for a first...

Thank you Alysia for the welcome and kind words. I appreciate the reminder to drink a lot and the other details on the infusion. Many thanks also...

Thank you Alysia for the welcome and kind words. I appreciate the reminder to drink a lot and the other details on the infusion. Many thanks also...

Hi Andrew, Thank you so much for your message and kind words. They really give me a lot of comfort before my infusion tomorrow. I will prepare for...

Welcome Kim (and thanks for tagging me in Alysia), 41 years is great, especially with kidney involvement! It's very helpful to read that...

If it's indeed a flare then the pred will make the difference, if the dose is enough. How much did he prescribe ? Only in 2 flares my blood tests...