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Andrew, Thank you for the warm welcome. But in the immortal words of Groucho Marx... "I don't want to belong to any club that would accept me as...

Hi Lisa Welcome to the club :) Renal involvement is a concern particularly when you have one kidney so I hope you have a WG-experienced renal...

Hi Brad, Your fear of this disease is normal. If you had a devil may care attitude then something would really be wrong. The most frightening...

Thanks so much Pete! I'll be seeing my doctor on Tuesday so I'll ask her then if I shouldn't be on some prednisone, and see if she can check on...

Donna, It sounds like a flare to me. While we'd all like to be pred free, sometimes it takes a long time to get there. If you can't get rituximab...

Brad, my first symptom was a severe antibiotic resistant ear infection in both ears. That is a pretty common one among those with sinus involvement,...

Thank you Marsha for all of that. Whom do you see at Duke? I will probably do the same to avoid the stress of travel. This whole thing has me spooked...

Hi Brad, Even though we are only a few hours away from Duke, my husband, dogs and I drive up the night before, not knowing what kind of traffic we...

I'm sorry to have missed this thread earlier somehow. Karen, how patient you have been on the long road towards a diagnosis. It's true that not all...

Thank you Pete and Ann. I will keep you posted on progress and the Duke experience. Hope both are doing well and enjoy the holidays. BB

Thanks for the article Pete! Very exciting news for us!

It will be interesting to see who offers this treatment first after it gets clearance from FDA! It may take a year or two before any of us see...

Pete, this sounds like a dream come true. I wonder if patients like me, and maybe you, who are not in "acute" Vasculitis, will be able to use it....

Dr. Seo at Johns Hopkins is highly recommended as a GPA doc, and I can think of 3 Weggies I know who are extremely happy with him. I think there are...

Bradhunter You may want to make the trek to Johns Hopkins anyway just to be sure you're getting care according to the latest protocols. I live...

Thanks to you both. I'm in Nova Scotia Canada. We see who our family doctor can get us in to see. My specialist is a rheumatologist. As far as my...

Don2000 I’ll second Drz’s thought about consulting with a vasculitis specialist. For me, roaming joint pain and the purpura rash on my legs...

Even when doctors consider you in remission, residual symptoms can still cause you discomfort. Many people find they have to stay on pred and and...

Hi I developed subglottic stenosis whilst in remission. I was in remission for 20 years and then developed symptoms including subglottic...

Welcome Onirin and Mnjet . I came in late to this thread, and excellent responses have been given. What's most noteworthy from all the posts...

Appreciate the detailed response drz. I too developed dental sensitivity, but it started after I was put on Bactrim by the Cleveland Clinic. Lasted...

I too had unexplained dental sensitivity ( for September and October) and increase left hip pain. I thought I was in remission. Towards end of...

Residual symptoms can differ from initial symptoms preceding diagnosis and treatment. Usually there is some over lap but GPA symptoms can evolve...

Thanks Masha. I've developed a habit of having a single slice of buttered toast with my pred in the morning (breakfast of champions).

Medicine can cause this. Once I took my prednisone without food and spent the entire day vomiting.