Activity Stream - Wegener's Granulomatosis Disease GPA Support Forum

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03-17-2023, 08:31 PM

Ian Pike started a thread New here. Diagnosed Feb 2017 in New Member Introductions And Stories

Hi All, thankyou for allowing me to join this wonderful community. it is so good to know that there are more of us out there. I was diagnosed...

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0 replies | 25 view(s)
03-15-2023, 07:20 PM

Adelie replied to a thread Azathioprine Side Effects in Medication

Thanks drz..

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2 replies | 49 view(s)
03-15-2023, 01:16 PM

drz replied to a thread Azathioprine Side Effects in Medication

i took both for 10 years. Main side effect is higher risk of infection from suppressed immune system. Read the pamphlet for more info and asked...

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2 replies | 49 view(s)
03-15-2023, 12:28 PM

Adelie started a thread Azathioprine Side Effects in Medication

Hello, does anyone have feedback on the side-effects of Azathioprine please? I know everyone is different but after suffering debilitating Prednisone...

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2 replies | 49 view(s)
03-12-2023, 01:48 AM

alan1107 replied to a thread Seasonal Allergy Question in General WG Chat

Thanks for everyone's input. It really helps navigate this new lifestyle.

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5 replies | 124 view(s)
03-11-2023, 04:27 AM

[email protected]$0N replied to a thread GPA - New Symtoms in General WG Chat

Just had an opportunity to go back through the thread. Rituxan is what I was put on right away... I hope you are seeing improvements. ``` Thank...

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18 replies | 816 view(s)
03-11-2023, 03:45 AM

UncleD replied to a thread GPA - New Symtoms in General WG Chat

Treated as soon as I was diagnosed in 2021, Methotrexate. Everything fine, until Fall of 2023. Nothing different, no stress, no change, nothing....

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18 replies | 816 view(s)
03-11-2023, 03:21 AM

[email protected]$0N replied to a thread GPA - New Symtoms in General WG Chat

Were you treated in 2021? I have bloodwork every three months unless the dr and I feel it necessary to go sooner. I've just had similar pains that...

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18 replies | 816 view(s)
03-11-2023, 12:03 AM

UncleD replied to a thread GPA - New Symtoms in General WG Chat

I was diagnosed Fall 2021 as non-severe, meaning that disease localized in sinuses. Then in Early February 2023, major muscle pain, can't hardly...

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18 replies | 816 view(s)
03-07-2023, 06:33 AM

[email protected]$0N replied to a thread GPA - New Symtoms in General WG Chat

Did the symptoms progress quickly? I've been having joint and other pain, but it seems to ease up and not as persistent. Mine having started in my...

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18 replies | 816 view(s)
03-04-2023, 04:08 PM

whatthewhat replied to a thread Son, 20 GPA diagnosed 2 weeks ago in Face to Face Support Groups

Hi Helen, Our daughter was diagnosed 10 years ago at age 14, and I've gone on to become very involved with a non-public online group for parents...

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3 replies | 15782 view(s)
03-03-2023, 06:39 AM

UncleD replied to a thread GPA - New Symtoms in General WG Chat

Hi [email protected]$on , for me in was the physical symptoms, and then confirmed by the lab tests. I just didn’t feel normal. Symptoms were way outside my...

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18 replies | 816 view(s)
03-03-2023, 02:02 AM

[email protected]$0N replied to a thread Recovering from symptoms question in General WG Chat

I had issues with recovering from medication and side effects and became difficult to discern. I was given 875mg of Rituxan once a week for four...

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3 replies | 102 view(s)
03-03-2023, 01:57 AM

[email protected]$0N replied to a thread GPA - New Symtoms in General WG Chat

How do you determine a flare vs relapse and so on.. I've been having similar issues with joint pain from when mine started and uncertain of just wear...

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18 replies | 816 view(s)
03-02-2023, 11:23 PM

John S replied to a thread Hi, I'm Matt. in General WG Chat

Hi Matt, By the time that GPA was finally diagnosed, I had given up playing guitar, ukulele and singing. My radio control airplanes were gathering...

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4 replies | 123 view(s)
03-02-2023, 11:15 PM

John S replied to a thread Long term Rituximab in General WG Chat

Thanks for the update

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1 replies | 95 view(s)
03-02-2023, 11:11 PM

John S replied to a thread Seasonal Allergy Question in General WG Chat

My allergies kicked in 30 yeats ago, when I quit smoking. I guess the tar and nicotine were protecting my lungs. we have a cat so I use generic...

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5 replies | 124 view(s)
03-02-2023, 01:35 PM

Pete replied to a thread Hi, I'm Matt. in General WG Chat

Hi mattm, and welcome to the club nobody wants to join. What is your current treatment regimen? Are your symptoms abating at all? Where are you...

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4 replies | 123 view(s)
03-02-2023, 10:19 AM

gunnyl started a thread Long term Rituximab in General WG Chat

Curious how many of my fellow Weggies have been on Rituximab long term. I've been getting RTX infusions for 9 years now. I recently experienced...

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1 replies | 95 view(s)
03-02-2023, 09:45 AM

Ljj replied to a thread Seasonal Allergy Question in General WG Chat

I've had seasonal allergies since I was 7 years old and as an adult it's been bad from February to November. Interesting for me that I haven't had...

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5 replies | 124 view(s)
03-02-2023, 07:10 AM

mattm replied to a thread Hi, I'm Matt. in General WG Chat

Thanks man. Respect.

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4 replies | 123 view(s)
03-02-2023, 07:09 AM

gunnyl replied to a thread Hi, I'm Matt. in General WG Chat

Welcome aboard Matt Sent from my iPhone using Tapatalk

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4 replies | 123 view(s)
03-02-2023, 07:01 AM

mattm started a thread Hi, I'm Matt. in General WG Chat

Hello, i'm Matt. born in Plymouth, U.K. Currently living in Germany (for work purposes only). Before i was diagnosed with W.G. i loved...

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4 replies | 123 view(s)
03-02-2023, 02:35 AM

Pete replied to a thread Seasonal Allergy Question in General WG Chat

I’ve had good results treating allergy symptoms with OTC meds. I take 10 mg of loratidiene daily along with two puffs of Flonase in each nostril...

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5 replies | 124 view(s)
03-02-2023, 01:56 AM

gunnyl replied to a thread Seasonal Allergy Question in General WG Chat

Consult with your doctor but I always treat allergies the same as I always have; independent of GPA. Sent from my iPhone using Tapatalk

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5 replies | 124 view(s)
03-02-2023, 01:42 AM

alan1107 started a thread Seasonal Allergy Question in General WG Chat

So coming up fast on pollen season. This will be my first pollen season with WPA. I typically start over the counter allergy medicine the first...

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5 replies | 124 view(s)
02-28-2023, 02:41 AM

UncleD replied to a thread GPA - New Symtoms in General WG Chat

Thank you everyone for the encouragement I find strength in your experience. It did end up looking like kidney involvement according to the...

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18 replies | 816 view(s)
02-26-2023, 10:54 PM

John S replied to a thread GPA - New Symtoms in General WG Chat

For my first visit to Cleveland Clinic, Dr. Villa Forte, I took copies of all my historic records from previous hospital visits. The good Doctor...

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18 replies | 816 view(s)
02-26-2023, 02:48 PM

Pete replied to a thread GPA - New Symtoms in General WG Chat

Cleveland Clinic has MyChart, an internet portal where you can make appointments, see test results, review your doctors’ after visit notes, etc. If...

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18 replies | 816 view(s)
02-26-2023, 06:12 AM

drz replied to a thread GPA - New Symtoms in General WG Chat

Glad to hear you getting some more appropriate care for your GPA. GPA can simmer for years before it suddenly flares into a serious condition where...

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18 replies | 816 view(s)