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Thread: Tingling feet

  1. #21
    gmyi is offline Registered User
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    Default shingles

    Hello all
    I also developed shingles at May 2007 and I still have hypersensitivity in the area of my left side of head face and throat and it is about more than 3 years so I am aware of your suffering ,I use to wash with cold water to relive the pain

  2. #22
    elephant's Avatar
    elephant is offline Registered User
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    How are you doing gmyi?

  3. #23
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    renidrag is offline Registered User
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    As you know I am in remission since May 10. My feet, heels and toes go from numb to painful to squishy in a flash. I don't know which it is going to be until I put my foot down. I did not know of vitamin B being good for this, I will ask today as I follow up with my Rhuemy. Will it affect my INR at all, this seems to have become a problem, I don't know why but I am all over the scale. Over all still feeling very good, still adapting to the new normal and by the way I have received disability from my company. Haven't been following as often. I hope all are feeling ok.
    Dale.

  4. #24
    Doug Guest

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    Quote Originally Posted by wgrebel View Post
    Doug,

    I developed shingles last week & I have to say it is some of the worst pain I have ever felt. Mine are on my right leg. The WG has damaged the nerves in my right foot and when the shingles flair so does my foot. The pain in my foot has returned (see above post) & the swelling has returned. My foot goes from nothing--to pain--to tingling--to a squishy/mushy almost like I am dragging my foot around and then back to nothing. How long did it take you to get over the shingles and did your specialist think it was WG related?

    Thanks,

    WGREBEL
    WGREBEL ~ I just came across this (!), and am sorry I didn't see it last May. Yes, my doctor notes the increased susceptibility to infections that comes from WG treatment makes it reasonable to regard the shingles as more likely for us than others.

  5. #25
    Doug Guest

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    @gmyi ~ Mine (on the right side of my face) came in October-November of 2007.

    Sometimes I used hot water, sometimes I used cold. Other times I wrapped my head in a towel that I soaked in water and microwaved.

    Until I was put on Gabapentin (generic form of Neutrontin) at 600mg four times a day and Cymbalta (60 mg at night), I would get pain attacks so severe, I couldn't drive a car long distances for fear I'd have one in, say, Denver rush hour traffic while returning home from a doctor's appointment. I'm off Cymbalta now, but continue with the Gabapentin.

    It is some pain, eh?! I have to sleep on my left side still because of the hypersensitivity of my face on the right side. I can't stand the pressure from the pillow! While less than three years ago, it is a constant reminder from wake-up till I fall asleep.

    Even now, I'll dash cold water on my face for the reduced pain. The tongue pain is the most bizarre, since it affects (a jolt of pain) just the one side, of course. WGREBEL's experience (above) is all too familiar. As for WG, I'd say in my case the shingles is worse for debilitating pain.

  6. #26
    gmyi is offline Registered User
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    Thanks for asking i am filing well as i do not exert myself

  7. #27
    gmyi is offline Registered User
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    I also have the same problem to sleep on my right side and have hypersensitivity on face and head ( I have a beard ) I could not support wind on my hair and face but I am used to that form of sleep

    LSO HAVE THE SAME PROBLEM

  8. #28
    Doug Guest

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    @gmyi ~ I'm fuzzy on my face, too! I grew it because of the discomfort of shaving the afflicted side.

    Attachment 616 Here I am with my cat. He's the orange one being uncooperative.

  9. #29
    ScreaminMeanie is offline Registered User
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    I have also mononeuritis multiplex - the painful/numb/tingly feet. It has gotten a lot better since starting treatment, but I'm gathering that it is something that may never go completely away. One of the things I've found that helps is to NOT wear the same shoes two days in a row. I've also had to buy all new shoes about 1.5 sizes larger than I used to wear, because any pressure anywhere on my feet makes it noticeably worse.

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