Thanks, i think my sinuses are better, just dont let up. I get dizzy at times, right side turn of the head a certain way, so have to be careful when up and walking. Started a pred decrease again and also the methotrexate injection. Didnt want any more oral as my poor stomach has taken a beating thru all this. Are you on both of these yet?
PT is physical therapist, i see her 2x wkly, and MFR is for myofascial release therapy. She does MFR and reiki, which i am training her in as i have extensive training in and am a Reiki master and have taught classes for years. I used to work with a really good PT who got me into MFR and it is really effective in facilitating gentle progress. I could not tolerate typical therapy as it was too rough and intrusive. I will try the water pik, it just may do the job. thanks a lot. how are you doing?
i started feeling poorly so went to doc and am on antibiotics, had cough and congestion. is working, i read articles on the use of antibiotics for chronic sinusitis and it said that we are not treated long enough on antibiotics so i told my doc and he did listen so on a 10 day dose. we meaning wegeners disease. the article said it can take as long as 21 days for some to clear up the infection. i drew a picture of what i feel like having this disease, is anyone interestd in seeing it?
Rose, keep an eye on that infection. It might be Wegs in disguise. It does get tricky, because being on immunosuppressants can slow recovery from an infection.
I've been in the confusion loop on this several times now: chest infection that responds a little to antibiotics, but doesn't really kick it. Then hospitalized for IV antibiotics (stronger) that helps slightly but also doesn't kick it. Then kept on antibiotics for a month. Turned out it was Wegs all along.
The key is that you should feel markedly better within a few days on antibiotics if it's an infection (and if the antibiotic is the right one).
I would love to see your picture, Rose!Originally Posted by Rose Cozzette
Please post your picture Rose. Would love to see how you are feeling about W.G.
i know, its always in the back of my mind. i got better and then worse, the doc ordered more antibiotics and and an inhaler and they seem to be working now. tho am wiped out. the inhaler gets me all jittery. those articles i read on the use of antibiotics and how they need to be used aggressively and longer than the average person, so my doc did listen and follow thru. so hopefully , i have my grandaughters bday party coming up next sat. and i WILL be there!! she will be six and is such a joy, keeps me motivated. trying hard not to give in to the feeling poorly thing. tho i want to jsut scream sometimes. this methotrexate is not as easy to figure out, is sneakier in its side effects. have you used it?
ok, lets see if i can get the pic sent. i will try and forward it.
I sure hope you feel better, Rose. I understand about wanting to scream sometimes.
Others can help you with mtx side effects. I was only on it for a couple months and got pneumonitis (lung infiltrates) so I had to stop and can't take it again.
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