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Thread: my sister....

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    She said about a year ago the Rheumy had her on 5mg....

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    What dose of pred is she supposed to be taking?

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    Quote Originally Posted by Lila View Post
    Sangye-
    I have a stupid question! Why does JHU call it a 'clinic' on Tuesdays?
    There is only one stupid question and that is the one not asked when you want to know

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    Oh, Ok.....thanks for clarifying!

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    Thanks Moyan!

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    The Rhuemy told her to take 10mg! She is saying that he called her last week with her blood results and told her it was ok to go down to 5mg based on the results. He's another whacko though.

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    A year ago is totally irrelevant. A year ago she didn't have a trach (twice). 5 mg is a maintenance dose for well-controlled Wegs.

    If the pred is causing such significant emotional changes, she needs to see a psychiatrist and start on appropriate meds. It's not uncommon and nothing to be ashamed about. I seriously doubt a Wegs doc is going to keep her on 10mg pred. She needs to have an antidepressant or mood stabilizer already in place for when they increase her pred.

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    She does have Xanax, but wont take them cause they just put her to sleep! It's a non-stop battle with her Sangye, you know that!

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    You can't go from 10 to 5 in one jump without consequences. I can't even get from 10 to 9!
    Prednisolone is not a drug you can mess with unless you are very familiar with it, but unfortunately it is an essential part of Wegener's treatment. The answer as Sangye has said is to seek help to manage the side effects rather than not taking the required amount. A person could end up with long term damage that way.

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    Quote Originally Posted by Jack View Post
    You can't go from 10 to 5 in one jump without consequences. I can't even get from 10 to 9!
    Prednisolone is not a drug you can mess with unless you are very familiar with it, but unfortunately it is an essential part of Wegener's treatment. The answer as Sangye has said is to seek help to manage the side effects rather than not taking the required amount. A person could end up with long term damage that way.
    I just told her that Jack! Of course, she cut me off and said she had to go get in the shower! All I can do is say the truth, she needs to decide what to DO with it.

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