Hello from central Texas.

[annettepoole06]

Hya
I was told at first i had got limited WG only affecting my nasel space but 6yrs later found it has affected my tracea.It is so great to read and share experiences with you all.Before finding this forum i felt there was only me with WG so thanks.
Regards
Annette

[Jack]

Until I came to this Forum, the term "limited Wegener's" was new to me. I guess its because I have the "unlimited" type.

[coffeelover]

Hello annette,

I was told I have limited Wegs also and my trachea was affected. There are some on here that way there is no such thing as "limited"
Welcome to you (the unlimited welcome)
LIsa coffeelover

[deb]

Hello and thanks for your replies. I was wondering about the symptopms you experienced with traech involvement. How did it start for you all? I have had trouble with losing my voice for several years. Once I started treatment I had one winter free of it. Then this year I had a flair a few weeks before Thanksgiving and lost it but just for a short time (2 weeks or so).
Thanks again,
Deb

[annettepoole06]

Hya deb
I was told my trachea had been affected by WG about 4 wks ago had to go in hosp for my windpipe to be dilated , am due back in at any time to see if this procedure has worked if not got to have a stent put in.
My voice was affected slightly but it was more that i was out of breath
Keep well
Annette

[jola57]

Limited or unlimited (lol Jack I like that) we all suffer differently and yet the same over time even with meds we may discover wegs affecting yet another part of our bodies. Untreated the pronosis was 18 months to 3 years now it is unlimited in the nicest way.