Do I have Wegs or don't I?

[JanW]

Yep, Jack is right, they test for both at the same time. Thinking was when the antibody was first discovered, testing it continually it would steady lowering to zero if you were truly in remission. Apparently they have thrown this thinking out the window. Mine has been stuck at 50-something for months now, although all of my other numbers are normal. Like ANCA, for me it may always remain positive.

Like it or not, the rheumy has always got to look at/listen to the patient. That's why these docs I saw at the Symposium are not only great researchers, they are also wonderful clinicians who see beyond the disease and talk to the patient about what they are experiencing (you could really tell that most of them have good bedside manner -- they seem like 'people persons'. I wish every wegs patient could have that because seriously, if your doc is just reviewing your blood work, he may not be getting to the heart of what is going on with your disease activity.

[elephant]

Very well stated Janw!