Hi There

[Sangye]

Did you contact the VF or check out their list of consultants? I don't know of anyone in Texas. You might have to travel.

[wizard0562]

Hello Everyone,

Does anyone know any WG Drs. close to El Paso, Texas. My sisters Drs. are not doing anything for her she needs a Dr. that knows what shes got. Thank you very much for all your advise.

Contact Dr. Alfredo e. Gonzalez, MD or Dr. Dionicio Manual Alvarez, MD at he Kidney Consultants of El Paso. 915-544-7767... he will and is very aware of WG after taking care of mine and can direct you according to your WG symptoms. You must explain ALL the symptoms so as the y may be connected... take a family member to listen in and take notes... get all the info you can get and these guys with other Specialists (Dr. DeMaio, Dr. Tan, Dr. Demick, Etc.) are so helpful and just recently associated with two WG cases in El Paso. Good Luck!

Craig Moshier
El Paso, TX WG Patient

[barbie279907]

Thank you for the information. My sister went to see Dr. Gonzalez yesterday. She had gone to see him. Dr. Gonzalez had referred her to the infectious disease Dr. Apparently, The Infectious Discease Dr. called Dr Gonzalez and told him that the vasculitiis was out of control. Although Norma had an appointment nx wk. Dr. Gonzalez saw her yesterday, Friday. He access the leg and ordered a dropper test, and an oxyen chamber. He put her on prednisone and chemo tablet medication. He told her to be very aware that with chemo her immune system would be weak and with an open wound she could get a deadly infection. She told him that she has an infection with no chemo what percautions to take so she won't get any more infectons or what options did she have. He said none but that he needed to see her weekly. Her open wound is 5 centermeters round and 2 21/2 deep on her left leg on her calf on the right side. No more med vac. She is in constant pain and her house and she smell of rotten meat and she is never hungry.

[Sangye]

Please consider getting a Wegs specialist involved. A doctor who's treated a couple cases of Wegs just does not have the skills and understanding of how Wegs works and looks to treat it alone. It happened to me with my original local docs, who had treated 6 cases in 12 years. Then I went to Mayo Arizona. They were way better, but still not Wegs specialists. They kept insisting I needed to go back on high-dose chemo, and were basing everything on ANCA. Once I got to the Wegs doc at JHU, it was a whole different world. (Even the non-Wegs rheumy's at JH don't know how to treat Wegs)

Even if things seem to be going okay, I still recommend getting a VF consultant involved. The risk of over- or under-medicating us is extremely high. And either one causes a lot of damage. You'll never regret getting the very best docs involved.