Anca result higher

[maria garcia]

What is your usual Anca result? All bloodwork is fine except for Anca alot higher.1:320

[delorisdoe]

Everyone will tell you that the Anca results are only good for confirming diagnosis and this is probably true. I know very few people on this site have an increase in their anca value that corelates with how sick they are. For me, anytime over the last ten years I have gone to the specialist due to what I think is a possible flare up of wegeners, my anca is always high at those times. When I feel good it is low. This is not true for most.

If your daughters Anca is high then that is further proof that yes she most likely has wegeners but it quite possibly means nothing more than that. If she is feeling good right now and all other tests are fine then the actual value of 320 is probably not significant.

I also know that different labs can come up with different values with the same blood sample. How does she feel?

[maria garcia]

Feels good except her red eyes and stuffed nose. Her eye doctor specializes in Immune disorders of the eye. He told us her chronic epiclerities is due to her Auto immune Disorder of vasculites . He did a biopsy on scar tissue of the eye. Its been 1 week and 3 days and no results. Now there saying it could take upto twenty days. It s not what I was originally told. So we will see. Her blood work concerned me her ANCA is alot higher than usual and her MPO lower. I called the lab to speak to the doctor who reads it so he can explain how this works. Her Rheumy is not very informative. Im trying to learn as much as I can.

[Chris G]

If the eye specialist confirms that she has some sort of vasculitis, and the ANCA results support this, when will she be starting medication? Or has she started meds? If so, what is she on? If I recall correctly, your daughter has had episscleritis or scleritis for over 6 months. It can not be good for those tiny blood vessels to be inflammed all this time.

[maria garcia]

After all the other doctors said the Episclerities had nothing to do with her Autoimmune. This one confirmed it. After biopsy he talked about MTX . Even if biopsy is negative he will still put her on Meds . Hopefully things won't changel. I've had run around for way to long.

[elephant]

Hope she gets treated, I agree with the eye doc too!

[Kami]

Everyone will tell you that the Anca results are only good for confirming diagnosis and this is probably true. I know very few people on this site have an increase in their anca value that corelates with how sick they are. For me, anytime over the last ten years I have gone to the specialist due to what I think is a possible flare up of wegeners, my anca is always high at those times. When I feel good it is low. This is not true for most.

My Anca results work the same way, when I have symptoms like my legs start aching, my nose is worse, etc, my numbers go up.

[delorisdoe]

My Anca results work the same way, when I have symptoms like my legs start aching, my nose is worse, etc, my numbers go up.

This causes really big battles at my hospital. The lab doctor does not want to do the titer and my treating doctor tries to insisit but it always ends up the lab doctor wins the first battle and my treating doctor has to call the day of my appt and pester him to do the titer.

I dont care much either way except i always try to guess on the number depending on how im feeling just to see if i am close based on symptoms. stupid game I play while waiting in the office for my turn.

[vdub]

I don't always respond, but read almost everything.....

Anyway, this is the first time I noticed this on Leigh's sig..... "Sorta bad? I feel sorta bad when I'm outta milk..."

<snicker> I like that..... :-)

[Al]

...Her blood work concerned me her ANCA is alot higher than usual and her MPO lower. I called the lab to speak to the doctor who reads it so he can explain how this works. Her Rheumy is not very informative. Im trying to learn as much as I can.

Maria--this confuses me. There are two main kinds of ANCA: PR-3 and MPO. Are you saying that the PR-3 is higher, and MPO lower? (Had the MPO been higher in the past?) Most often, patients have one kind or the other, but not both. But sometimes both are present. Making an accurate diagnosis does indeed require more than an ANCA test, but 320 is a high enough level that the warning bells should be going off like crazy.

Some doctors are more informative than others, but it helps to learn what you can (we of the forum will try to help you with your studies!). You need to know enough to fight with your rheumy!

Al