Wegeners not affecting a major organ

[maria garcia]

How many in this forum have Wegeners, but has not affect a life threatning organ like lung and Kidney?

[vdub]

Interesting question.... So what all does it attack? Skin, eyes, hearing, joints, nerves? Those are very uncomfortable, but not life threatening. Lungs, kidneys, and treachea would probably be considered life threatening. Mine attacked my pit, but I can live a long time with the proper drugs. So, I guess I'd have put a check in the non-life threatening block. But there would be an asterick that says "life-shortening". :-)

[JanW]

Life threatening -- mine affected my windpipe -- subglottis.

[elephant]

Mine effected my kidney, lungs, ears, sinuses mostly.

[mishb]

Sinus, ear, eyes and joints

[renidrag]

Lungs, I'm rather partial to them.
Dale

[Chris G]

Eyes, ears, sinuses, throat, nose, sternum pain. Nothing life threatening yet but the throat/airway is always a concern.

Your daughter's mpo antibodies may not affect the lungs & kidneys....mine have not.

[Psyborg]

I have bronch and trachea involvement. I don't know if that counts as lungs or not. Only in one side so I think it's not life threatening at this point really as I assume they'd take that lung if it became enough of a problem. Geez I sure hope not lol

[Dryhill]

Ears, joints and slight damage to the lungs and sinuses. So nothing life threatening as such but lungs and sinuses could be problematic as I get older or infected by anything else.

[HypnoticEyez]

Lungs, eyes and joint pain for me.