Just Diagnosed

[Sangye]

Rini, I think things will settle down as time goes on. I bet your voice will return to normal, too.

[pberggren1]

That sounds good Rini that you have a good doc now so close and don't have to go far to the lab. Sucks about the voice though, but like Sangye said I am sure it will get back to normal.

[Rini]

thank you guys, how are you these days?

[Rini]

I am taking speech at school and have to give an explanation speech. want to guess my topic? I feel like telling my class about what i have should be the easy part, I am not positive how to make the speech apply to them...we weggies are a rare breed...lately everyone i know has been reaching the "can i catch this" stage of excepting my diagnosis. growing up in a home of AI's the thought never occurred to me that people would be scared...I don't know how to react. My best friends mom has a AI and she explained to me that I am not to share food with her because she thinks they will get it... I know they are smart, where is this coming from?

[pberggren1]

I know what you mean Rini. I have met many others that I thought were fairly smart but when I tried to explain what Wegs is all about they thing it is contagious some how.......go figure, hey?

[elephant]

That is great that you are going to educate your class on Wegeners. Just keep telling them this is not a contagious disease. Most people know about Lupus and Rheumatoid Arthritis compare it with Wegeners. This is a good way to show awareness of our rare disease!

[Sangye]

I am taking speech at school and have to give an explanation speech. want to guess my topic? I feel like telling my class about what i have should be the easy part, I am not positive how to make the speech apply to them.

Maybe talk about the things healthy people take for granted like taking a deep breath, etc....

My best friends mom has a AI and she explained to me that I am not to share food with her because she thinks they will get it... I know they are smart, where is this coming from?

Try walking her through the logic: If Wegs were contagious then it wouldn't be a rare disease.

[Rini]

Than you all, these are very good ideas