Welcome vdub. Sounds like you've had quite the ride. I am always amazed at the strength and fortitude of the people on this site and you're no exception. This is a very good place to be if you're dealing with the $#!^ that comes with Wegener's. The knowledge base here far surpasses that of any ER room when it comes to this particular disease. Listen to what Jack, and Sangye and elephant are saying. One thing that I've learned in my very short time of being a Weggie is that you HAVE to take control of your recovery and health care. Although intentions are good out there in medical world, there is sometimes waffling in the decision making process and if it's at your expense and long term health and welfare, it's no good. Be your own best advocate and forge on forward and demand answers, ask questions and get better.