Hi Helen,

Our daughter was diagnosed 10 years ago at age 14, and I've gone on to become very involved with a non-public online group for parents of pediatric-onset wegener's. Your son is a touch too old to qualify you for the group but I am completely willing to message with you privately and if you are in the states there is a chance I will know someone else who is a parent of a young-adult Weggie in your region... There are several of us who I can introduce you to. You are not alone. Let me know how I may support you as you support him.