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Poll: Rtx efficiency after long term use

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Thread: Rtx efficiency - long time use - Poll

  1. #21
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    Quote Originally Posted by dlynnsmith View Post
    I have had 3 rounds of Rituxan and was just told I was in remission. I have 3 more rounds scheduled. I have not been told yet what my maintenance will be.
    Thank you for sharing and welcome to the forum. I am glad the rtx brough you to remission. I hope you will stay there. if you feel like, please share your story on the "new members introduction".
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  2. #22
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    Quote Originally Posted by me2 View Post
    I just had Rituxan today. I went two weeks over the 6 month mark and flared. My doc came to visit and he said he hopes that after a couple years or so of 6 month treatment I might have remission. He has at least one other patient who had that experience. First he wants me off prednisone. Then off of Methotrexate. Then off of Rituxan. This is the order of toxicity.
    I doubt mtx is working for you if 2 weeks late of rtx took you out of remission. for me it never worked so I just stopped it when I first got into remission.
    For me as well 6 weeks late on rtx and I was out of remission. not back yet.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  3. #23
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    Quote Originally Posted by Alysia View Post
    It seems that one cant vote if he comes with the taptalk or through the site for mobile. if you use the mobile, press on "view full site". then you will be able to vote.
    Where does one find "view full site". I am on an iPhone mobile mode. (Not tapatalk right now) and I don't see where it says that.

  4. #24
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    I dont have iphone. in my phone I press at the left side down, get list of options. press on "ask site for desktop" (its in Hebrew, so sorry if the translation is not as it is).
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  5. #25
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    Quote Originally Posted by Gab122 View Post
    Where does one find "view full site". I am on an iPhone mobile mode. (Not tapatalk right now) and I don't see where it says that.
    @andrew - do you know how to view in desktop mode on an iPhone? See quote please. Thanks!

  6. #26
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    Quote Originally Posted by Gab122 View Post
    @andrew - do you know how to view in desktop mode on an iPhone? See quote please. Thanks!
    It's all the way down the bottom of the page when you view it on a mobile. Click on 'Full Site'.

    I've just looked at it myself. Is the formatting mucked up for anyone else? Looks awful.
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  7. #27
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    It's not on the bottom of my screen @andrew. ??


    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

  8. #28
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    Well that's strange. I have no answer for that so I've turned off the mobile template for the whole site. If you just refresh the page now you should get the full site.
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  9. #29
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    @andrew I can see the poll now!

    I figured a lot of people couldn't see the poll if like me they just used tapatalk or their mobile device for the forum!
    I wanted more people to vote for @Alysia poll! 👍😊

    that's why I was trying to access the desktop version.

    Gab
    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

  10. #30
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    @andrew - another thing I noticed in mobile version - there is no "like" button on that view. I have to go into tapatalk to "like" a post. No biggie for me. but thought I'd let you know.
    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

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