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Thread: This is my life changing story

  1. #31
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    Birdie, hi. I dont have the swelling. Just the burning pain? I went through something different some years back, with these type symptoms and it was horrible... Interesting how everyone is effected different yet similar? Very strange.... The weg dog, Realy bites..... But not for long, cause I'll be biting back! Me.

  2. #32
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    Lily,
    I was just dx'd with small fiber neuropathy, which effects the feet and the hands mostly. It can effect other parts of the body. It is a different kind of neuropathy and is not detected by a EMG test, you have to have a skin biopsy to find it. It will cause stabbing pain, burning, swelling, itching,unusual sweating, and numbness and is very hard to treat. I wish you all the best in getting some relief from your pain and numbness, take care.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  3. #33
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    Hi Jana,

    Do you have a treatment plan for your neuropathy?
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  4. #34
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    I'm with Jaha on this one, neuropathy. Gabbapentin is the drug of choice for the pins, needles and pain. I resisted for years but once I did most pain went away. The feeling of walking on bubbles did not.
    Dale
    Dx Aug, 2009 Remission June 2010 until 8/1/2014

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    Quote Originally Posted by renidrag View Post
    most pain went away. The feeling of walking on bubbles did not.
    Hey Dale, bubbles? I had ziplock bags full of Jello on the bottom of my feet. Compression stockings went to the top of my legs. Worked magic on the swelling all the way up. A week wearing them and I got a few weeks without a problem. Put em back on at the first sign of Jello bags. After a few months... no more issues...

  6. #36
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    Quote Originally Posted by renidrag View Post
    I'm with Jaha on this one, neuropathy. Gabbapentin is the drug of choice for the pins, needles and pain. I resisted for years but once I did most pain went away. The feeling of walking on bubbles did not.
    Dale
    Ditto, mine is very well managed by gabapentin too.
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  7. #37
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    Quote Originally Posted by MikeG-2012 View Post
    Ditto, mine is very well managed by gabapentin too.
    Gabapentin didn't do much for me except disturb my balance so walked into more door jams. But my pain from neuropathy wasn't that severe and it decreased as the nerves died. I still get an occasional stabbing or burning or itching sensations from time to time.
    Knowledge is power! Wisdom is using it to make good decisions!

  8. #38
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    Drz! Drz, I'm on a posting binge! Drz, what's happening to me? Does it pass? I was wondering if this drug is neurotin? Spelled wrong no dought, but... So maybe the generic of this? Deb.

  9. #39
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    Quote Originally Posted by debra View Post
    Drz! Drz, I'm on a posting binge! Drz, what's happening to me? Does it pass? I was wondering if this drug is neurotin? Spelled wrong no dought, but... So maybe the generic of this? Deb.
    yes it is. A newer drug thought to be more effective but lot more expensive is Lyrica.
    Knowledge is power! Wisdom is using it to make good decisions!

  10. #40
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    Drz, thank you! Deb.

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