This is my life changing story

[annekat]

Mike makes a good point about trying to get all Drs to be at the same place.
In this day and age it should be simple for Drs to pull up test results electronically (via internet) from any hospital, but in my experience this doesn't happen. Even the most dedicated Drs don't have enough free time to be chasing up emails and faxes of results and reports from various hospitals.

I agree. My ENT has to be prodded to send reports to my WG doc and my primary care provider. Then I end up having to tell the WG doc what the ENT said. This annoys me, as I don't think it is my job. Finding a team that works together is more likely at a well-known facility that has a competent rheumatology and vasculitis clinic along with the related specialties for the areas that affect us. I feel the need myself to find something like this.

[Pete]

I agree. My ENT has to be prodded to send reports to my WG doc and my primary care provider. Then I end up having to tell the WG doc what the ENT said. This annoys me, as I don't think it is my job. Finding a team that works together is more likely at a well-known facility that has a competent rheumatology and vasculitis clinic along with the related specialties for the areas that affect us. I feel the need myself to find something like this.

While having all our docs in the same place and on the same page is ideal, it's not reality - yet. My PCP in Columbus orders and reports my monthly labs. My rheumy at Cleveland Clinic needs to see them too. To make sure she does, I update a MS Excel spreadsheet and send a copy to her (by snail mail now - until Cleveland Clinic's MyChart system will allow me to include them in an e-mail).

[annekat]

Well, as long as it works for you, Pete, it seems OK to me!

[jakekell]

I haven't had a problem with my docs providing the info to each other, guess I am lucky. My ENT in Naples dictates a letter to CC while I sit there, provides me with a copy before I leave works well.

[annekat]

I haven't had a problem with my docs providing the info to each other, guess I am lucky. My ENT in Naples dictates a letter to CC while I sit there, provides me with a copy before I leave works well.

Maybe it's just my deadbeat ENT. I actually like him, for the most part, just think he's too casual about things, or maybe it's his office staff's fault.... who knows...

[jakekell]

I maybe just got lucky with my ENT, happens sometimes.