andrew
Please handle as you see fit.
Type: Posts; User: Pete
andrew
Please handle as you see fit.
Good idea, Tom!
My wife and I set up a revocable family trust into which we put all our assets (car, house, bank accounts, retirement savings accounts). In Ohio, the trust allows the successor...
CapeKay
Hi Kathy!
I am being treated for neuropathy. I take 300 mg of Gabapentin about an hour before bedtime. It calms the tingling/pain for about twelve hours. I don’t take it early in the...
crowneagle
Wow, Tom! That was quite the episode. My last CRP a year ago was 12. Normal is under 10. Glad you’re on the mend.
JohnS. Sorry to hear you’re still using a walker. Did the surgeon give any indication about when you might be able to walk unaided? Were you put into physical therapy to regain lower body strength?...
Snake Eyes
Hi Mike,
I'm sad to learn that your union wouldn't go to bat for you. It's bad enough to be sick, but when the people you count on to help you fail, that really sucks.
Where are...
Assuming it’s only one disk, and the orthopedic surgeon understands the travel requirement for your infusion, go for it! Hope you recover quickly!
I have Eustachian tube dysfunction in my right ear. It’s pretty intermittent and more of a nuisance than debilitating. I’ve not tried (or heard of) the ear popper. Hope you get relief soon.
Thirteen years ago today, I was diagnosed with GPA. I remember asking what the heck is that?? Bad news: Its not curable. Good news: It’s treatable.
About twelve years ago, I found this forum. I...
My new GPA doc. She’s a good listener and is maintaining my treatment regimen.
Lynne Fussner, MD
The Ohio State University Wexner Medical Center
Department of Pulmonology
(614)293-4925
She...
Hope the new drug works well for you, Tom!
I’ll give you the news the doc who diagnosed me gave. The bad news: You have GPA (whatever the hell that is) and it’s not curable. The good news: It’s treatable, and since we diagnosed you early on...
Send a pm to andrew?
CaraJ
Welcome to the club no one wants to join. It seems your doc is using the “Fauci” protocol. It’s harsh, but it worked for me. I hope you won’t be on cytoxan too long. One of the longer term...
Chadwyck
I don’t know for sure if GPA gave me CKD. Other than secondary indicators (creatinine and eGFR), no one had taken a direct look at my kidneys. When I fell in 2019, I had a thoracic CT...
I’m thinking a consult with nephrology is in order. I have stage III chronic kidney disease as a gift from GPA. Creatinine is consistently elevated and eGFR is consistently low. Like you, I feel fine.
John S
I also get two 500 mg infusions a year. This most recent is the first I’ve had at OSU since 2017. All of my infusions have been under Dr VillaForte’s protocol. (Dr Fussner followed the same...
I had rtx infusion #23(?) yesterday. Thirty minutes before the rtx was started, I got a dose of solu medrol, benadryl, and Tylenol. The infusion proceeded normally under the accelerated protocol. (It...
Talk to your wegs doctor, but I expect that you won’t get these vaccinations until sometime around Christmas. I was told to get my vaccinations at least a month before the infusion.
Quick update…
I saw my cardiologist last week. He minimized the concern about the change in the EKG. However, he did order an echo cardiogram which was inconclusive and a lipid panel which was not...
John S
I wanted to get my Covid shot no later than this week so I can get RTX sometime in November.
I got the RSV vaccine and high-dose fluzone vaccine last week. For the first time, I had a reaction to a flu vaccine — injection site discomfort. It was mild, and was gone the next day.
I had a...
Welcome to the “club” AmyG
i’m glad to see you’ve found good docs. I also have eustachian tube dysfunction. Fortunately, it doesn’t bother me too much. Are the docs giving you anything for the...
Chadwyck
Other than staying hydrated, no medical prep is needed. The first infusion will last 4-5 hours. Immediately prior, you’ll get doses of steroid, benadryl, and Tylenol. This is to prevent...
CapeKay
If you’re having difficulty breathing and chest pain, call 911 and get to the hospital. Ambulances that arrive with patients with breathing difficulty and chest pain get higher priority. I...