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Type: Posts; User: TBulger

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  1. Replies
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    I just saw the announcement! I hope this will...

    I just saw the announcement! I hope this will make it easier for all of those having difficulties with insurance companies.
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    3,621

    Congratulations!!!!! Hope it works for you as...

    Congratulations!!!!! Hope it works for you as well as it has for me.
  3. Thread: How true

    by TBulger
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    11
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    2,949

    A wonderful explanation of what it is like to be...

    A wonderful explanation of what it is like to be sick. Thank you for the link.
  4. Replies
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    13,077

    Misskay, I fought the same fight with a...

    Misskay,

    I fought the same fight with a different insurance company. It is EXTREMELY frustrating, but it can be won with time and determination. Your doctor may be willing to fight, but in all...
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    6,069

    My doctor went so far as to call them a complete...

    My doctor went so far as to call them a complete scam. I take the over the counter supplements. I found a 1,000 IU tablet that appears to work well. I don't know if it just me, but the gelcaps were...
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    2,294

    I responded to the letter I received. You need to...

    I responded to the letter I received. You need to visit one of the centers each quarter for blood work and an examination. I am considering making the trip from Atlanta to Johns Hopkins. They did...
  7. Replies
    511
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    68,608

    Had been on 60mg of Prednisone per day. Currently...

    Had been on 60mg of Prednisone per day. Currently at 30 and tapering slowly. I would like to go much faster, but I know I can't. Prednisone is the best and worst drug. I know it keeps things from...
  8. Replies
    511
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    68,608

    I finished the four dose plan a month ago. The...

    I finished the four dose plan a month ago. The first infusion went so well that I was working the next day. The next three caused fatigue, but nothing too bad and I was at work the following day each...
  9. Replies
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    Katarzena, I just finished my first round of...

    Katarzena,

    I just finished my first round of retux yesterday. My doctor took blood and we will meet for more blood work and review next month. Her position is that the retux should keep me flare...
  10. Replies
    511
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    68,608

    Sangye Sorry things are not going well. What...

    Sangye

    Sorry things are not going well. What causes the vertigo?

    I did my first dose of rituximab last Thursday. Scheduled for three more, one week apart. No side effects at all. I went to...
  11. Poll: Statistical analysis is simplified when you have...

    Statistical analysis is simplified when you have only one data point.
  12. Replies
    29
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    8,298

    Sangye, Loved the growl! We've all been there...

    Sangye,

    Loved the growl! We've all been there but rarely actually follow through. Thanks for the tip. I've been having all of this and an intense craving for salt. With my high blood pressure I...
  13. Replies
    511
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    68,608

    I'm on United Health Care and was denied multiple...

    I'm on United Health Care and was denied multiple times. Their reason was that Rituxan is not part of the approved protocol for Wegs. My doctor kept submitting appeals and I spent hours on the phone...
  14. Replies
    511
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    68,608

    Phil My insurance company authorized (with all...

    Phil

    My insurance company authorized (with all of the legal outs an insurance company can muster) the start of Rituxan based on the kidney biopsy confirming diagnosis, use of Cellcept for an...
  15. Replies
    511
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    68,608

    Sangye Drivers are not a problem. I don't yet...

    Sangye

    Drivers are not a problem. I don't yet know when it will take place and I already have three people that insist they are going to drive me. All my life I've been the one that has been the...
  16. Replies
    511
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    68,608

    Lola, When I spoke to the pharmaceutical...

    Lola,

    When I spoke to the pharmaceutical company it sounded like 4 rounds. I will speak with the doctor on Monday.

    All I need is something else to make me hungry. My pred dose was pushed back...
  17. Replies
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    6,517

    A good friend recently commented that I have a...

    A good friend recently commented that I have a lot of tact since I haven't used any of the tact that I was born with.
  18. Replies
    511
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    68,608

    Sangye, Brooke and Lola, Your posts on...

    Sangye, Brooke and Lola,

    Your posts on progress are really encouraging. I just got off the phone with the pharmaceutical company that supplies the retux for my insurance company. They wanted my...
  19. Replies
    4
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    1,510

    Your pharmacist can be you best friend in this...

    Your pharmacist can be you best friend in this process. Too frequently we are prescribed medications by multiple physicians. I always make sure that every doctor visit starts with a recap of all...
  20. Replies
    369
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    41,385

    Sangye, My choice is the sugar free Jello...

    Sangye, My choice is the sugar free Jello Chocolate Pudding cups. Taste is not bad, only 60 calories and it actually makes me think I have eaten something I shouldn't.

    Good luck with the pred. I...
  21. Replies
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    3,812

    Gwen, My heart breaks reading your post. There is...

    Gwen, My heart breaks reading your post. There is nothing worse than the feeling of loneliness that this horrid condition can force on us. I have recordings of my 18 yr old autistic daughter and my 6...
  22. Lowering intensity has helped me. I used to try...

    Lowering intensity has helped me. I used to try and take long walks in the park but found that it really wore me out. Now I take short walks from the couch to the refrigerator and I'm not nearly as...
  23. Replies
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    Gwen, Sorry you are going through this. It is a...

    Gwen, Sorry you are going through this. It is a great lesson for all of us. We all want things to go well and have a tendency to minimize what we are going through. The naggers on the forum are...
  24. Replies
    511
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    68,608

    Congratulations! This is the kind of thing that...

    Congratulations! This is the kind of thing that keeps our hopes up. Maybe some day we can all take a long walk together.
  25. Replies
    511
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    68,608

    I've been at 2000mg of Celcept for around 9...

    I've been at 2000mg of Celcept for around 9 months now. I've had three significant flares during that time and the kidney function takes a hit each time.

    I was impressed at my doctor's attitude....
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