Thanks for your reply. Yes, things are much better since my second Rituximab treatment. Every problem vanished days after my infusion. I was shocked to hear that you got the diagnosis after the...
Type: Posts; User: Chadwyck
Thanks for your reply. Yes, things are much better since my second Rituximab treatment. Every problem vanished days after my infusion. I was shocked to hear that you got the diagnosis after the...
Hey everyone. Hope everybody is doing well. I just wanted to share the awesome news... on Tuesday, February 20th 2024 I got my second dose of Rituximab, single dose this time. By the time I was...
I was thinking the same thing, Pete. Only because they've put other procedures in place I went along with it and didn't question it. Next week Wednesday, November 24th is the CT scan of my lungs,...
What can I say... I'm speechless now. Last week I got the results of my blood work and it was perfect! Yesterday I went to my Rheumatology follow-up appointment waiting to hear how amazing I'm...
Ok, it has been exactly 16 days since my Rituximab infusion. What a difference! Every single problem I've complained about in the last 6 months are totally gone. What happened before the infusion...
Oh wow! I hope he's doing better. I'm still new to this drug. I've been researching it ever since it was first approved here in Canada back in 2011. As soon as I finished my last treatment of...
Wow, this is awesome news!
I'm happy to announce that tomorrow will be my infusion day for Rituximab after hearing about it from 2011, begging for it in 2014 until now! Unfortunately the disease is hungry again and it started...
Aaaah, thank you Pete! I don't know why I'm so edgy about this after begging for it for so long. I think it's because the way the infusion is done reminds me of cyclophosphamide from the beginning....
Hi Everyone. Hope you're all doing well. I have news but I don't know if it's good news yet but it seems to be. :biggrin1:
So last week I did my regular follow-up with my Rheumatologist just...
Thanks for the response, drz! I just got home from Rheumatology. Good and bad came out of it. The good thing is that my numbers look better than usual. The bad part is, with all that and feeling...
Hello everyone. I wanted to wait until my eyes stopped bothering me before I made this post. Over the past three days I've had a lot of redness in my eyes with excessive tearing and because of...
JBee, I agree 100%. Every time the disease messes with me, it attacks me in new ways that I've never seen before. Most of my doctors from 2009 used the term, "limited" with me. I was in my glory,...
Hello Adelie and welcome to the forum. Just reading your post, you said the exact same things I was asking when I got here in 2011 for myself. I'm not sure what to suggest with your mother-in-law...
Thanks Don. It's been a while since I had several issues at the same time, knowing that I'm still in remission. It made me question it, "am I really still in remission"?? The only big changes...
Happy New Year everybody! Hope you're all doing well. I have a quick question about swelling.
For the past few months everything has been fine except the odd swelling in my left knee. I thought...
I just came here to share the good news. I got my third Covid shot (Pfizer) and I'm perfectly fine. I was hoping everybody else was going to say the same, but, we're all different. I was nervous...
Hello overyone, sorry I haven't been on here in almost a month since my original post. I finally had a conversation from my March 31st 2021 appointment with my Rheumatologist. She said that my...
Thanks for your input. It never occurred to me that the immunosuppressive drugs could also be part of it. Every day something new is messing with me, but not as bad as the beginning. I just faxed...
Hello everyone. Just out of curiosity, does mild decreased kidney function cause dry itchy skin?? That started yesterday but I thought it was from the cold winter weather, so I ignored it. Just...
Well peeps, today is March 1st 2021... it's a new month which requires blood work, no urine this time. It's the Urologist and I that were curious as to why the kidneys are misbehaving. So I've got...
I totally agree with you on everything. Curbside pickup is harder for me financially because everybody's charging Covid prices. Odd how today is a perfect day compared to yesterday! I can't...
This really helps a lot, thank you! Sometimes I believe it's best to get advice from other Wegener's patients; especially if they've had it longer than me. I find that I often forget how bad it can...
Hello everyone. I tried coming on regularly over the past couple months just to say hello to everyone until I started getting sick again. I just thought it was a typical day for me and overlooked...
Thanks, gunnyl and wishing you the same.