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Thread: Sangye's Status

  1. #1
    pberggren1's Avatar
    pberggren1 is offline Phil Berggren, dx 2003
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    Default Sangye's Status

    I noticed Sangye was not on the Forum the last couple of days so I e-mailed her and got this reply:

    Hi Phil
    woke up Monday morning turned over in bed and got instant massive
    vertigo. Long story but am in local hospital trying to get transferred
    to jhu. Also lost hearing in one ear. Jhu ent put me on40 mg daiily
    pred 1-2 wks. Hoping to protectt hearing. Thinks is inner ear ifxn or
    wegs but no othrr signs of wegs.

    Using. Friends. IPhone but won't work on our site. Sorryfor typos. Say
    hi, can post this email to group.
    Tale care Sangye

    I am worried for her now. This sounds scary.

    Lets all pray for her.

  2. #2
    Lightwarrior's Avatar
    Lightwarrior is online now Lightwarrior
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    Phil,
    Thanks for the update. Please let Sangye know how much she means to us and how much light and love we are sending her. I hope they transfer her to JHU. Good news that there is no other signs of Wegs, also that she has ENT from JHU following her. Ask her if her Wegs specialist knows where she is??

  3. #3
    LisaMarie's Avatar
    LisaMarie is offline Registered User
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    Oh no....will put her on our church prayer chain...please keep us posted

  4. #4
    MCC
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    Oh no, how awful

    Thinking of you Sangye and hope that you are doing ok.

  5. #5
    Jack's Avatar
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    Thanks for letting us know.
    I'm really scared for her. How is she going to tolerate 40mg of Pred considering all the problems she has with it?

    Sangye - I'm sending you all my best wishes. I wish I could do more.

  6. #6
    DEE's Avatar
    DEE
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    Thinking of you Sangye sending you my best wishes to with a triple choc muffin
    take care of you DEEx

  7. #7
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    Hope you are feeling better soon, take care xx
    Lisa

  8. #8
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    Fingers crossed. Hope you get it sorted soon. x

  9. #9
    JanW is offline Registered User
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    Oh, no, Sangye. Will pray for you.

    Thank you Phil for noticing and being in touch.

  10. #10
    elephant's Avatar
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    Sangye get better soon. Praying for you too! Miss you already!
    Thanks Phil for letting us know!

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