What to call ourselves

[Dryhill]

If we stop using the name Wegeners Granulomatosis for our fun disease and start using the new name Granulomatosis with Polyangiitis, what are we going to call ourselves? We will have to stop using weggies, would granules or pollys be ok? Come on lets have some suggestions.

Jim

[pberggren1]

I won't use the new name and neither will my doc so I will always be a Weggie.

[Dryhill]

Good for you and you doc, I really cannot see why the name needs to be changed after all these years. That is realy the point of my thread to show the stupidness of the change.

[Psyborg]

Maybe we can all be GranPA's ?

[Geoff]

Thats really cool Bob!!

I agree with the others here, I will always be a Weggie!

[Hammy8241]

I can see no good reason why they decided to change the name other than someone wanted a bit of publicity for themselves. Weggie for ever!

[Psyborg]

I actually understand it, but think it is silly. A name is just a name. I think the man was morally reprehensible, but that doesn't mean he should have his name blotted out. I'm probably weird though, kind of a history junky.

[Hammy8241]

I actually understand it, but think it is silly. A name is just a name. I think the man was morally reprehensible, but that doesn't mean he should have his name blotted out. I'm probably weird though, kind of a history junky.

I guess im in the majority of one, but the fact that the name can be linked to the Nazis actually makes it a better name for the disease. Whatever name/word you can think of to describe them, relates very well to one aspect or another of WG, Nasty, evil, sneaky, morally reprehensible and so on.

But I do agree that its only a label and on life’s list of great things to worry about, it comes very low down on the list BUT if i die from this disease and some snotty nosed Dr enters GPA as cause of death, I promise that I will come back and haunt them forever!!!!!

[NicShaf]

Along the lines of Weggies...we could be GRANNIES...but that could get confusing, hahahaha

[chrisTIn@]

I actually understand it, but think it is silly. A name is just a name. I think the man was morally reprehensible, but that doesn't mean he should have his name blotted out. I'm probably weird though, kind of a history junky.

In the Europeen mainland/on the continent the occupation by the nazi's and the crimes against humanity they committed will never be forgotten. People of the post-war generation learn the stories of their parents and grandparents, in school during history lessons their is much awareness of the misery caused by the second World War.

When I was in Hawaii. I visited Pearl Harbour, where the American involvement in the worldwide battle begun during the years 1940-1945.
To see the memorial there had a great impact on me, because I also saw the 'killing fields' in France, where so many American men were killed by the German nazis.
Europe wouldn't be the same today, we owe our freedom here to the allied partners, which we never will forget.

But, to stay on topic, I also like the name 'Weggie'.
If Wegener hadn't described our disease, who WOULD have?
That is still the question, I suppose...