No, I didn't even tell SS I'm sick yet. I'm 64 and will be 65 in Jan. That is soon enough. I didn't feel like doing the paperwork. It is the insurance company that declared me fully disabled. That qualified me for the waiver of premium benefit on the big insurance policy. They will make the premium payments for me now. I also got a refund on premiums paid last year since I got sick in Sept. I don't need the few hundred dollars of income I'd get from SS anyway fortunately. My electric bill at the ranch is more than my SS check will be when I turn 65. I sold my company in 2004 and retired in 2006 with more than enough to live on--God has blessed us, and my health insurance is very good. I only paid $35 for my last week long visit to the Cleveland Clinic. For those with WG that have life insurance policies, it could be worth hundred or perhaps thousands of dollars to them if they have a waiver of premium rider on their life insurance policies. I had forgotten I had it, so that is why I started the thread about the matter, just in case others had done the same.
Hope your situation improves. We pay taxes all our lives and even after we die (inheritance tax). Seems like it is the Government's time to pay up in your case. Arm movement isn't enough if you are too short of breath or too weak in the thighs to move about with whatever you picked up. Even if you just punch a keyboard, you have to feel like going to work, staying there all day and being able to focus with all the symptoms that accompany the disease. Too bad WG isn't contagious in this case. Then you'd have no problem getting your disability. Maybe a doctor's statement would help your cause with the SS appeal.
J. Mike Milliorn, Santo Texas
Diagnosed Jan. 2011
at the Cleveland Clinic