Our Book - Just a Reminder

[maria garcia]

Hi Marta welcome back you have been missed. I was reading your blog and I m not sure I read how you are doing now. Are you in remmision? Are you taking any meds? Your one of the wise ones in his forum but gentle with words.

[marta]

Hi Maria Garcia, I'm doing much better thanks. I am still on 150mg Imuran, 8mg pred, and I just came into the city to see about another RTX shot as I'm feeling things start to show themselves. I want to nip it in the bud before I have to go up on the pred and feel like I'm starting from scratch. I've been super busy, work, kindergarten pick ups and droop offs, and home and there isn't much time left to go on the computer so I've been trying to fit everything in unsuccessfully.

Thanks for the compliment, but I wouldn't go as far as wise nor gentle with words. I tend to be a hot head sometimes and not think thouroughly before typing. I know I have made some people mad, but I can't change the past and when I have a rant it's usually coming from a good place (trying to stick up for a person or an idea that I believe is for the best of the majority or the underdog). I really do think about everyone on here a lot and feel like I have made some amazing connections with some amazing people on this forum. I think you/we are all fighters to the n-th degree, and this Wegener's excercise is building stronger, gentler, kinder, wiser human beings.... i.e. 'prettier' on the inside to compensate for what's going on on the outside.

A friend who has lyme disease asked me the other day how I deal with the feelings of depression. I thought about it and realized how lucky I have been thus far from that perspective. Then I wondered why. I think it's because I try and keep my little brain busy with the book, the forum, the Weggie merchandise, the survey... just keeping my brain going. And there are so many people on this forum that have channeled the negative from the disease experience into a positive of helping others. So there. That's my story and I'm sticking to it

My mom and sister just came in and I will now log off.... besides my sister is rubbing my back as type, so how good is that?

Peace out my friends.

marta

[Palmyra]

Hola Marta, from way down South (Texas, in the USA)...
I saw your bit on U-tube, and it was very, very good by the way. Your words were articulate and well formed, so this is merely a message to offer encouragement for your efforts. Your advice about channeling one's efforts into helping others as a means of warding off negative emotions, is good food for thought. Thank you for all you do!

Jane (aka Palmyra, mom of Alison..diagnosed 2006 and doing well)

[jola57]

Marta, I am envious, I want my back massaged too. You can never make anynone mad, we can all have different ideas. It is that we are all a big family that listens, shares and cries together and never, ever gets realy upset with each other. We've all been there.