Mom recently diagnosed with Wegener's

[Sangye]

Cindy, thank you for posting your mom's obituary, because it was like getting to know her a little bit, you know? I love that she helped in the food bank often. Thank you for taking donations to the VF. It will benefit countless lives.

[Brooke]

We appreciate you sharing your mom's obituary and that you are taking donations to the Vasculitis Foundation. Thank you for sharing her story and I hope you stay a member on this forum!

[Psyborg]

I'm so sorry to hear of your loss. Just remember she's gone on to a place where this suffering will only be a memory.

[mikecaven]

There is hope. I had a similar experience in late 1981 and early 1982. 30 days in hospital...very ill. The only difference is I did not have as much kidney involvement (no dialysis). I went through lung biopsy and was very ill at age 34. I am now 63 and have had been out of remission twice in the past 2.5 years. So I was in remission almost 27 years and was very healthy. Strongly recommend bactriban ointment in the nose and on any skin areas that could be staf infection. I am fairly convinced that some type of bacteria takes me out of remission....so staying clean, healthy, and strong, is very important to me to stay in remission.

I hope this encourages you and your mother.

[mikecaven]

I truly apologize...after I wrote this, I saw the other note. Sympathies.

[Sangye]

It's good to see you, Mike. Your story often inspires me. How are you doing?

[elephant]

Mike, you story is very encouraging for all of us. Knowing that you were in remission that long gives up hope. I will look into Bactriban ointment in the nose. How long have you been using Bactriban?