my 8 year old son in hospital now.

[Sangye]

Katarzena, I'm really happy you didn't have some of the more common, awful side effects. It would upset me so much more if I knew that a young person like you were having a harder time. I hope the Wegs goes into remission for you and you never have to deal with it again.

[talentx7]

Wow Katarzena, I am glad to hear you have had minimal side affects. Dosen't look like anyone can avoid the MOON face. My son has a very nice one as well. Carter goes in for his IV dose of Cytoxan tomorrow. He however has not returned to school yet. They fear he might catch a cold. They tell me that would be very bad. He is however complaining of an itchy nose??? Dose anyone know if that is a side affect of meds or something new????

[katarzena]

Thanks Sangye I'm hoping for the same. Yes everything is going great for now and I'm really trying to keep the positive thinking but I live in a fear. No one knows it tho.
Talentx7- I didn't have an itchy nose, don't know about the others. About the moon face, there was one woman that has been on prednisone for a long time and never got the moon face! Argh! I envy her so much! Without the moon face and other prednisone side effects it would be much easier. I guess I'm super shallow but the looks bother me a lot. lol!

[Jack]

Not super shallow at all!

I would say that I was typical of a certain type of male stereotype in thinking that I was the least vein person in the world. I did not care too much what I wore or how I looked, it just did not bother me. However, when I had a moon face, I was shocked at my own reflection and would avoid it and now that I have the emaciated look I can't stand to have my photograph taken. Our own self image is a very important part of us and can easily be wounded.